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View Poll Results: ER+/PR- HER2+ staging poll
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I am stage 0 or 1 ER+/PR- HER2+ and originally diagnosed as stage 1 with negative lymph nodes
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9 |
22.50% |
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I am stage 0 or 1 ER+/PR- HER2+ and originally diagnosed as stage 1 with positive lymph nodes
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1 |
2.50% |
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I am stage 2 or 3 ER+/PR- HER2+ and originally diagnosed as stage 2 or 3 with negative lymph nodes
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7 |
17.50% |
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I am stage 2 or 3 ER+/PR- HER2+ and originally diagnosed as stage 2 or 3 with positive lymph nodes
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15 |
37.50% |
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I am stage 4 ER+/PR- HER2+ and was originally diagnosed as stage 4
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2 |
5.00% |
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I am now stage 2 or 3 ER+/PR- HER2+ and was originally diagnosed at a lower stage
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0 |
0% |
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I am now stage 4 ER+/PR- HER2+ and was originally diagnosed at a lower stage
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4 |
10.00% |
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My cancer metastasized less than two years from original diagnosis
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3 |
7.50% |
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My cancer metastasized two years to four years from original diagnosis
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2 |
5.00% |
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My cancer metastasized in greater than four years from original diagnosis
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1 |
2.50% |
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08-17-2006, 09:29 AM
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#1
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Senior Member
Join Date: Jun 2006
Location: Central North Carolina, USA
Posts: 112
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ER+/PR- HER2+ staging poll
I was curious as what stage most readers are and how many were stage 1 that have now metastasized. I am only allowed 10 poll question so I am going to do this Three times, here for ER+/PR-/HER2 + and another for ER+/PR+ HER2+ and a third for ER-/PR-/HER2+ .
I am stage 1C. My sister who died at 40 years young was also stage 1C. She metastasized within the first 6 months and died 2 years later. She received 8 rounds of AC and 8 rounds of Taxol. When she metastasized she had a bone marrow transplant. She died in 1996 so Herceptin and HER 2 testing were not available yet. She was ER/PR+ node negative.
__________________
DX 11/14/05, Stage 1C, Her2+ 3.4, ER+, PR+, K167 23%, Node Negative, MX0, Grade 3, 1.8CM, Lumpectomy 12/7/05; 6 rounds dense dose Taxol bi-weekly, 35 radiation, 1 year Herceptin, & Tamoxifen ongoing.
Last edited by astrid; 08-18-2006 at 04:55 AM..
Reason: corrections
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08-17-2006, 09:57 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Hormone neg/neg
This version of the poll lets out those of us who are ER AND PR negative. I think there are a number of us here.
Maybe that can be a separate poll?
Or at least a roll call, but a poll with the original stage at DX and going from there might be interesting.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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08-18-2006, 04:56 AM
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#3
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Senior Member
Join Date: Jun 2006
Location: Central North Carolina, USA
Posts: 112
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I made a separate poll for those who are ER-/PR- HER2+
__________________
DX 11/14/05, Stage 1C, Her2+ 3.4, ER+, PR+, K167 23%, Node Negative, MX0, Grade 3, 1.8CM, Lumpectomy 12/7/05; 6 rounds dense dose Taxol bi-weekly, 35 radiation, 1 year Herceptin, & Tamoxifen ongoing.
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05-25-2011, 05:10 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: ER+/PR- HER2+ staging poll
Im so sorry for the loss of your sister 
I'm triple pos but did'nt see this in the poll? Maybe I missed it though!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
Last edited by tricia keegan; 05-25-2011 at 05:13 PM..
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05-28-2011, 06:46 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: ER+/PR- HER2+ staging poll
Hi Astrid,
It was sad to read about your sister and my first thought was timing...1994 - 1996...there have been strong advances since then. But, we are still fighting the beast.
I enjoyed your poll but have a question regarding the timing...those that recurred did they have herceptin
and those that recurred what stage were they first dx.
for instance...how many stage 1 who did not have chemo/herceptin recurred?
I was wondering if a poll could done adding not only stage but along with treatment for those that were early stage...since most often the later stage did have some form of treatment...and those who had herceptin.
Thanks,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-28-2011, 07:27 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: ER+/PR- HER2+ staging poll
Jean, and to the others here. This seems to be an old post from 2006 that got brought up top? That's why the poll is a bit dated. We must of had a spammer attached a post to this thread--then the moderators caught it and removed it? Just guessing?
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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