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10-05-2013, 12:13 PM
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#41
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Senior Member
Join Date: Feb 2013
Location: Lincoln, NE
Posts: 265
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Re: Emergency mri &%#@$!!
Indeed, Blessed be the Lord!! So glad to hear this news!!
__________________
10/18/12 Found pea size lump right breast
11/7/12 Biopsy
12/14/12 Lumpectomy
1/4/13 Rexcision, NO CLEAR MARGINS!! :(
2/11/13 Mastectomy with Expander Placed
2/15/13 INFECTION at Mastectomy site...emergency Surgery!!! Expander removed :(
DX: DCIS, IDC, Stage 2a, 2.7cm, 1/5 nodes positive
ER/PR-, HER2+++
3/28/13 Port placed
4/1/13 Begin 6 Cycles TCH Therapy
4/1/14 Finished Herceptin!!
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10-05-2013, 12:49 PM
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#42
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: Emergency mri &%#@$!!
So happy to see your post Denise!
Keep well, enjoy your weekend sweetie!
xo
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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10-05-2013, 02:08 PM
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#43
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: Emergency mri &%#@$!!
NEDenise,
Hoorah! & Huh?
I am so glad that no big scary new lesions have dared to pop up in your brain.
I am even more glad that you don't have any bleeders.
What crazy symptoms. Shaking arm, you (of all peoples) short of words, and an UFO. Ah . . . the misadventures of being a breast cancer survivor! It sounds like something out of a House episode - quick, sell the rights to the story and make some spending money for Hawaii!
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10-05-2013, 02:19 PM
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#44
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Senior Member
Join Date: Mar 2010
Location: Thornhill Ontario
Canada
Posts: 266
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Re: Emergency mri &%#@$!!
Yeah for Denise!!! OMG I did it again put the smiling face in wrong. So very happy to hear your news
__________________
August 2008
Lumpectomy left breast
1 tumour 0.9 cm
Her2 negative
lymph nodes negative
venous/lymphatic invasion absent
ER+PR-
Stage I Grade 2
Radiation and Femara
November 2008
Lumpectomy right breast
2 tumours .03 cm and .05 cm and extensive DCIS
.05 tumour Her2+
lymph node negative
venous/lymphatic invasion "indeterminate"
ER+PR low postive
Stage 1 Grade 2
January 2009
bilateral mastectomy
chemotherapy taxotere
Herceptin one year
Femara
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10-05-2013, 03:33 PM
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#45
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Re: Emergency mri &%#@$!!
Hi NED,
Just scooped in for a quickie. Computer out all day, and me out and about all wk...
Whoa! And YAY! I'm going w/Caroline's take. Of course your adrenals are shot! How could they not be?
Sending my love (even in my absence, I am beaming it your way anyway allll the time). Plus healing energy, soothing serenity... PRAYERS!!!
Assume you will be fine. LIVE in that assumption. You're drawing it to you. It already exists. Stay certain. And hold on!
Great big hugs, my NEDenisey,
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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10-05-2013, 06:08 PM
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#46
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Senior Member
Join Date: Nov 2010
Posts: 186
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Re: Emergency mri &%#@$!!
Just checking in, Denise, and hoping for continued good news. You are our shining star.  |
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10-05-2013, 07:33 PM
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#47
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: Emergency mri &%#@$!!
Thank God! Thank God! I am praying ever so hard for you Denise and your beautiful family. Your strength and courage leave me in awe! Thank you for your sharing spirit, you are so loved by so many my friend. May the peace of The Lord be with you and your family always.
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10-05-2013, 09:25 PM
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#48
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Senior Member
Join Date: Jul 2012
Location: Utah
Posts: 124
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Re: Emergency mri &%#@$!!
We need a "LIKE" button her! LIKE LIKE LIKE!
__________________
Diagnosed 16Dec1993 ITP (auto immune disease - low platelets)
Splenectomy 11Nov2009
Rituxen May2011
ITP playing nice
Diagnosed 3Jul2012 BC
2 cm - Grade 2 - Stage IIB
HER2+++
ER+/PR+
bilateral mastectomy 20Jul2012
Metastasized cancer found 1 lymph node
expanders placed during surgery
TCH chemo "cocktail" started 24Aug2012
every 3 weeks - 6 treatments
Herceptin - 18 treatments
LAST treatment Taxotere & Carboplatin 7Dec2012 -yay!
Continue with Herceptin 26Dec2012
Started Arimidex 01Jan2013 (for 5 years)
Surgery to remove expanders/reconstruction 18Jan2013
Infection in left breast from reconstruction/infection in most nails - SO many meds! 22Feb2013
Left implant not playing nice.... might need to remove and try again - blah! 04Apr2013
3Jul2013 - one year since diagnosis - booo cancer!
15Aug2013 LAST chemo infusion!! YIPPPEEE!!!
13Sep2013 2nd reconstructive surgery.. the FOOBs are looking good!
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10-06-2013, 05:24 AM
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#49
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Senior Member
Join Date: May 2012
Location: Bethlehem PA
Posts: 395
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Re: Emergency mri &%#@$!!
Ah Denise! YAY!!!
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10-06-2013, 08:47 AM
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#50
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Senior Member
Join Date: May 2010
Posts: 184
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Re: Emergency mri &%#@$!!
Yippee! Enjoy your reprieve, you deserve some relief. Looking forward to hearing about Hawaii.
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10-06-2013, 09:33 AM
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#51
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Member
Join Date: Nov 2011
Posts: 17
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Re: Emergency mri &%#@$!!
Happy! Happy! Joy! Joy!
__________________
11/2010 Breast conservation, 0 nodes negative for malignancy, clear margins, tumor the size of a lime...say what? Tumor was IDC and DCIS, ER-PR-, HER2+
BRCA-
01/2011 - Chemo AC +T and Herceptin for a year (also included a break because of low EF)
Followed by 33 rads
04/2012 - finish Herceptin
06-2013 - sterotactic biopsy confirms 8mm DCIS with a micro-invasion of .5mm
07-2013 double mastectomy...T1mic...2 micro-invasions=.2mm each! Clear nodes...time to heal
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10-06-2013, 10:12 AM
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#52
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Senior Member
Join Date: Oct 2011
Location: British Columbia, Canada
Posts: 139
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Re: Emergency mri &%#@$!!
Denise!
Hope you're enjoying you weekend! You are one amazing woman! To celebrate I want you to watch this video- the words "when I'm feeling down I only wanna be with you" reflect how I feel about this site. I listen to this song everyday. Usually I post the lyrics version but I like watching everyone dance and celebrate.
I'm Alive by Michael Franti http://www.youtube.com/watch?v=Fw0oOjZydZY
__________________
Dx Age 47 July/09 Stage 2B/3
Left Mast. Aug 09- 1 of 3 positive nodes in axillary dissection (yes only 3)
ER+ 90%, PR+ 20%, HER2+++
4 x AC, 4 x Paclitaxol and H (Neupogen for 7 cycles), Herceptin complete Nov 10
Mar–Apr 2010 25 Rads
Apr 10-Oct 11- Tamoxifen
Oct 11 – 3 cm met to sternum
Oct 11-Letrozole for 3 mths, start Clasteon-bone remodeller
Nov-Dec 11 - Happy 50th Birthday -20 rads to sternum
Jan-April 2012 Taxotere/Herceptin-6 cycles (Neupogen for 5)
Herceptin every 3 weeks-Letrozole added Nov 2012
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10-06-2013, 10:18 AM
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#53
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Senior Member
Join Date: Oct 2011
Location: British Columbia, Canada
Posts: 139
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Re: Emergency mri &%#@$!!
Oops, sorry I just watched it and the insulting preview of Britney Spears' new song is the advertisement so maybe put the video on mute until the actual video plays because I find the preview songs are different and not usually what I find very positive.
__________________
Dx Age 47 July/09 Stage 2B/3
Left Mast. Aug 09- 1 of 3 positive nodes in axillary dissection (yes only 3)
ER+ 90%, PR+ 20%, HER2+++
4 x AC, 4 x Paclitaxol and H (Neupogen for 7 cycles), Herceptin complete Nov 10
Mar–Apr 2010 25 Rads
Apr 10-Oct 11- Tamoxifen
Oct 11 – 3 cm met to sternum
Oct 11-Letrozole for 3 mths, start Clasteon-bone remodeller
Nov-Dec 11 - Happy 50th Birthday -20 rads to sternum
Jan-April 2012 Taxotere/Herceptin-6 cycles (Neupogen for 5)
Herceptin every 3 weeks-Letrozole added Nov 2012
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10-06-2013, 11:46 AM
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#54
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Senior Member
Join Date: Apr 2012
Posts: 183
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Re: Emergency mri &%#@$!!
Glad to hear the update, Denise. Hope you enjoyed the weekend with your family. As you can see from all the responses, know you are really cared about.
Peace to you,
Jackie
__________________
10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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10-06-2013, 09:21 PM
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#55
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Member
Join Date: Oct 2012
Posts: 9
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Re: Emergency mri &%#@$!!
Denise,
I really really do hate cancer too .... I'm so sorry for the hell you're going through and will be praying for you and sending out healing light for strength in dealing with this new hurdle. I hope you find out quickly whats going on and fix it so you can take that trip to Hawaii with your family.
Hugs,
Debbie
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10-07-2013, 06:26 PM
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#56
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Senior Member
Join Date: Jun 2011
Location: Somerset, NJ
Posts: 487
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Re: Emergency mri &%#@$!!
Hi Denise,
I'm so glad that it's not anything dire, although having experienced similar symptoms (all but the shaking arm), I know it feels pretty dire anyway.
We have different genes, which explains why your brain has held up better than mine did, even with the additional treatment you've been subjected to. But holding up better isn't immunity to the detrimental brain effects of the treatments.
Aricept has worked for me--I'm very nearly myself again, although I still tire pretty easily (whether the labor is physical or mental)--but I have another friend who's taking Ritalin. Focalin is also possibility (and it's better than Ritalin for those who are taking tamoxifen, although that doesn't apply to you). If one of those won't screw up the medicines you're currently taking, you might want to consider a trial just to see if it will help some of the symptoms.
Oh, and for the flying things? Try a sleep mask.
I hope you had a fabulous weekend.
Love,
rl
P.S. to everyone else: I'm trying to be back. I don't know how it will go, but I've missed you all terribly, so I'm put forth my best effort.
__________________
2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
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10-07-2013, 06:54 PM
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#57
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Senior Member
Join Date: Aug 2010
Location: New York, New York
Posts: 1,580
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Re: Emergency mri &%#@$!!
Enjoy your weekend! Yay, Denise! I knew it, didn't I?
__________________
World Trade Center Survivor (56th Floor/North Tower): 14 years and still just like yesterday.
Graves Disease, became Euthyroid via Radioactive Iodine, June 2001.
Thyroid Eye Disease. 2003. Decompression surgery in 2009; eyelid lowering surgery in 2010.
Diagnosed: June 2010, liver mets. ER-/PR+10%; HER2+++.
July 2010: Begin Taxol/Herceptin. Eliminate sugar from diet. No surgery or radiation.
January 2011: NED
April 2011: Progression in liver only. Other previous affected areas eradicated. Stop Taxol/Herceptin after 32 infusions.
May 2011: Brain MRI: clear.
May 2011: Begin Tykerb daily, Xeloda twice per day for one week on, one week off, and Herceptin.
November 2011: Progression in liver. All other tumors remain eradicated.
December 2011: BEGIN TRIAL #09-093 Taxol, MCC-DM1 (T-DM1), Perjeta.
Trial requires scans every six weeks, bloodwork and infusions weekly.
Brain MRI: clear.
January 2012: NED. Liver mets, good riddance!
March 2012: NED. Developed SMA (rare blood clot) in intestinal artery and loss of sight in right eye due to optical nerve neuropathy. Resolved when Taxol removed this month.
Continue Protocol of T-DM1 weekly and Perjeta every 3 weeks.
May 2012: NED.
June 2012: Brain MRI: clear.
June-December 2012: NED.
December 2012: TRIAL CONCLUDED; ENTER TRIAL EXTENSION #09-037. CT, Brain MRI, bone scan: clear. NED.
January-March 2013: NED.
June 2013: Brain MRI: clear. CEA upticking; CT shows new met on liver.
July 3, 2013: DISASTER STRIKES during liver ablation: sloppy surgeon cuts intercostal artery and I bleed out, lose 3.5 liters of blood, have major hemothorax, and collapsed lung requiring emergency resuscitative thoracotomy, lung surgery, rib rearrangement and cutting deep connective tissue, transfusion. Ablation incomplete. This life-saving procedure would end up causing me unforgiving pain with every movement I make, permanently, otherwise known as forever.
July 26, 2013: Try Navelbine/Herceptin. Body too weak after surgery and transfusion. Fever. CEA: Normal.
August 16, 2016: second dose Navelbine/Herceptin; CEA: Normal. Will skip doses. Watching and waiting.
September 2013: NED, Herceptin only. CEA: Normal. Started Arimidex.
October-November 2013: NED. Herceptin and Arimidex. CEA, CA125, 15-3: Normal.
December 2013: Something brewing. PET lights up on little spot on liver; CEA upward trend, just outside normal. PET and triphasic liver scan confirm Little Met. Restart Perjeta with Herceptin, stay on Arimidex. Genomic sequencing completed for future treatments, if necessary.
January 2014: Ablate Little Met on the 6th. Happy New Year.
March 2014: Brain MRI: clear. PET/CT reveal liver mets return; new lung mets. This is not funny.
March 2014: BEGIN TRIAL #10-005 A(11)-Temsirolimus plus Neratinib.
April 2014: Genomic testing indicated they could work, they did not. Very strange drug combo for me, felt weird.
April 2014: Started Navelbine and Herceptin. Needed something tried and true, but had significant progression.
June 2014: Doxil and Herceptin.
July 2014: Progression. Got nothing out of it. Brain: NED.
July 2014: Add integrative medical hematologist-oncologist to my team. Begin supplements. These are tumor-busting, immune system boosters. Add glutathione, lysine and taurine IV infusions every three weeks.
July 2014: Begin Gemzar, Herceptin & Perjeta. Happy.
August 2014: ECHO perfect.
January 2015: Begin weekly Vitamin D Analog infusions. 25 mcg. via port.
February 2015: CT: stable.
April 2015: Gem working, but not 100%. Looking into immunotherapy. Finally, treatments for the 21st century!
April 2015: Penn Medicine. Dendritic cell immunotherapy.
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10-07-2013, 08:47 PM
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#58
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Member
Join Date: Oct 2012
Posts: 9
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Re: Emergency mri &%#@$!!
Yes! There is power in prayer... so happy for your good news...
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10-07-2013, 09:51 PM
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#59
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: Emergency mri &%#@$!!
How was your weekend? Im just so glad you were able to spend it without stressing out about any new tumors. I hope it was wonderful and you were able to relax. Praying for you, as always. Know that you are amazing, and we all admire you.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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10-07-2013, 10:01 PM
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#60
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Senior Member
Join Date: Jul 2013
Location: Hot Springs, South Dakota
Posts: 158
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Re: Emergency mri &%#@$!!
Keep us posted on your progress - lots of healing thoughts coming your way!
__________________
Paula T. (saygoon means dog, yes I am Native)
DX March 2012
Stage IV w/ 5 bone mets to spine 2 on ribs
Herceptin, Zometa, Taxotere and Anasterole and of course radiation
2/14/2014 2 mets on pelvic bone
Stop Anasterole continue on Herceptin and Zometa start radiation (again)
2/24/2014 start T-DM1 continue Herceptin and Zometa
4/28 more radiation that brings total to 5 (10 days ea) - I think I will soon glow in the dark....
6/01/2014 Great news! Rib mets gone, 4 of 5 spine mets showing new bone growth and pelvic mets shrinking.
8/28/2014 T11 on spine is being stubborn started Perjeta, Herceptin, Zometa and Taxol - goodbye hair!
9/04/2014 Tomo therapy - pain finally gone
1/3/2015 - starting New Year out as still stable. Feeling positive
2/23/2015 - problems with left leg, bone met flaring up - MORE radiation Whew!
2/24/2015 Stress fracture in right side of pelvic - (great just great) back to wheelchair then walker then.....
2/26/2015 Off Taxol!! Still on Perjeta, Herceptin and Hormone Blocker starting to feel a little more human.
4/10/2015 Cancer has spread to spinal fluid - not sure where I go from here
6/29/2015 Omaya Port placed,begin IT Herceptin on 7/7/2015
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