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04-06-2011, 12:29 PM
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#41
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Senior Member
Join Date: May 2010
Location: Ireland
Posts: 271
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Re: Prayers For Sheila
So pleased to hear things are improving for Sheila, she is so supportive of us all here on this website. Very best wishes.
__________________
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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04-06-2011, 12:50 PM
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#42
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Prayers For Sheila
I did'nt get online today so just seeing this news now, Jenn thank you for the regular updates and I'm glad to know Sheila is feeling a little better now the tube is out, adding my prayers to all those going up for her and all the Irish luck I can muster!!!  xx
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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04-06-2011, 12:56 PM
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#43
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Prayers For Sheila
Just talked to Mom and told her about all your love and prayers and to be strong and get better. Mom asked me if I had called Dr. Hammerberg's office and cancelled Jazzy's doctor appointment for tomorrow (Mom was going to take us up there Thursday). That is how my Mom is always thinking of others around her even at a time like this. She is truly an amazing woman and an inspiration to all of us. Mom also told me she really wants to get out of the ICU. Please continue to keep her in your thoughts and prayers so she can get what she wants.
Jen
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04-06-2011, 01:32 PM
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#44
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Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
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Re: Prayers For Sheila
Thank you Jen, I just got on to hear the news. God works in great ways. Glad your mom is better. Sending up prayers.
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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04-06-2011, 01:53 PM
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#45
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Senior Member
Join Date: Nov 2010
Location: PA
Posts: 297
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Re: Prayers For Sheila
Jen, so happy to hear that Mom is feeling so well that she wants to get out of ICU. That is so wonderful and she is such a wonderful, inspirational women. She is in my prayers. Mary L
__________________
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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04-06-2011, 01:53 PM
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#46
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: Prayers For Sheila
Thanks for your updates Jen. So glad to hear that your Mom is doing better. Hopefully she will get out of ICU ASAP, when she is well enough.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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04-06-2011, 02:05 PM
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#47
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Senior Member
Join Date: Jan 2010
Posts: 170
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Re: Prayers For Sheila
My prayers and positive thoughts are on their way. She is such a fighter and I know she will be out of the ICU soon.
Thank you so much for keeping us updated.
Praying for a strong recovery,
Emelie
__________________
Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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04-06-2011, 02:54 PM
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#48
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Re: Prayers For Sheila
Hi Jen,
Please tell Sheila that my thoughts are with her. She was such a help to me when I was having issues having my Tykerb approved. She is inspirational and such a support to this group.
Best,
Barbara H.
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04-06-2011, 04:11 PM
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#49
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Prayers For Sheila
Jenn,
Your Mom has been a wonderful inspiration to me too and I'm very fond of her and hope she's back home very soon.x
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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04-06-2011, 05:33 PM
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#50
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Senior Member
Join Date: Oct 2007
Location: Portage, IN
Posts: 198
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Re: Prayers For Sheila
Jen
Thank you for all the updates and your mom is always in my prayers.
__________________
10/15/07: Diagnosed at age 46 lymph node removal (2)
ER/PR - Her2 +++
11/07: Port Installed
11/07 - 1/08: AC
1/30/08: Right Mast Stage lllC
2/28/08: Start Taxol and Herceptin weekly.
5/15/08: Finished Taxol
8/12/08: Finished 33 Rads
1/29/09: Finished Herceptin
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04-06-2011, 05:34 PM
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#51
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Senior Member
Join Date: Mar 2010
Location: Thornhill Ontario
Canada
Posts: 266
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Re: Prayers For Sheila
Sending a prayer and many many positive thoughts for Sheila and her family. Sheila you are incredibly strong and are an inspiration to us all. Keep strong, you will again fight back and overcome. Lois.
__________________
August 2008
Lumpectomy left breast
1 tumour 0.9 cm
Her2 negative
lymph nodes negative
venous/lymphatic invasion absent
ER+PR-
Stage I Grade 2
Radiation and Femara
November 2008
Lumpectomy right breast
2 tumours .03 cm and .05 cm and extensive DCIS
.05 tumour Her2+
lymph node negative
venous/lymphatic invasion "indeterminate"
ER+PR low postive
Stage 1 Grade 2
January 2009
bilateral mastectomy
chemotherapy taxotere
Herceptin one year
Femara
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04-06-2011, 06:28 PM
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#52
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: Prayers For Sheila
just logging in to read all what's happening w/Sheila. I am so happy to hear she is rebounding. i will keep her in my prayers that she continues to improve.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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04-06-2011, 06:51 PM
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#53
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Senior Member
Join Date: Oct 2010
Posts: 123
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Re: Prayers For Sheila
Jen,Keeping you all in my prayers,Hoping for a speedy recovery,Joanna
__________________
found susp.lump Feb 2009
DX Feb 2009 ...Her2+ stage IIa ER/PR- grade 3
partial mast. Right breast,clear margins
chemo (2) carboplatin & Taxotere
could not finish chemo (hospitalized because of infection)
37 rounds radiation
Herceptin (1 yr.)
No clinical trials
Jan.2011 BRAC 1/BRAC 2 Neg
Aug.2011 clear bone/catscan NED
Apr.2012 clear digital mammo
& ultra sound of breasts
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04-06-2011, 07:04 PM
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#54
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: Prayers For Sheila
Jen
Thanks for the update. I know your mom well as we've been roomies on San Antonio a couple of times - and I "helped" her Christmas shop there this year. Sheila is always in my thoughts - really all the time. I love her so much and will be calling on all the prayer warriors now
Much much love
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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04-06-2011, 07:23 PM
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#55
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Prayers For Sheila
Just like a nurse to want out of the ICU! Tell your ma that I totally love her and just know she is gonna kick this newest "event" aside. Will keep praying. Much relief that she is responding so well. Now the question of what caused things. The chemo? It can bring on ARDS. The Halaven was going so well hoping it was not the cause. Need our Sheila kicking butt and taking prisoners!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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04-06-2011, 07:32 PM
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#56
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: Prayers For Sheila
Jen,
Please tell your Mom that I have had her in my thoughts and prayers since Laurel e-mailed. Sheila is my "visual" miracle since San Antonio when we literally watched her skin mets receding on Halaven. Hope she can feel all the love and strength being sent her way.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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04-06-2011, 08:08 PM
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#57
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: Prayers For Sheila
jen
I posted late because I haven't been online and wanted to add my prayers immediately. Now that I'm on a real computer and able to have read all the updates, I'm glad to see that things are looking up. Intensive care, intensive prayer...can only imagine how glad your mom was to get the breathing tube out!
Sheila, never give up.
Much love
Chris h2b sister
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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04-06-2011, 08:10 PM
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#58
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Prayers For Sheila
Talked to Mom again tonight she said the team at Rush didn't think it was ARDS but all this could have been caused by blood pressure. It is truly heart warming to see all the love you guys have for my Mom. She knows that all of you are lifting her up in your thoughts and prayers and said you guys were a wonderful group that is very special to her. I am hoping she is well enough to come on here soon to see all the out pouring of love, prayers and concern you have for her. I can't thank you enough for all the love, prayers and kind words you have given to us at this time. As always continue to lift her up with your love and prayers as it DOES make a difference!!
Jennifer
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04-06-2011, 08:47 PM
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#59
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: Prayers For Sheila
Jen,
I have not been on the board the last few days and just reading about your Mother....I was upset but as I read along the thread, the tube was out, she is progressing, a sigh of relief was felt.
As you already know your Mother is a very special lady,
one who never ever complains, is always positive and is a true leader to many of us.
Prayers will be said and please tell she is deeply loved.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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04-06-2011, 10:29 PM
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#60
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Prayers For Sheila
I am so glad Sheila is doing better. I have been praying.
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