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10-16-2009, 06:37 AM
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#21
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Senior Member
Join Date: Jun 2008
Location: NY
Posts: 81
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
I'm so sorry to hear but so relieved that our loved ones are now free from suffering. Thank you for sharing your life with us. You and Ed really are an inspiration to me. I will never forget your fiesty posts.
My thoughts are with you at this difficult time.
love,
Sue
__________________
Hi i'm Sue. I've been part of the her2support family since 08'. My amazing mother Hong was her 2 stage IV 9 years and bravely earned her wings, I still love this board and continue to her fight. Plz reach out if you want to connect:)
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10-16-2009, 06:39 AM
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#22
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie, My heartfelt sympathy to you and your family. You are a shining example of what a true caregiver is...as well as a true soulmate. Your Mighty Oak is at peace now and as the seasons change, he will be with you always. May God keep you close. Ceesun
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10-16-2009, 06:40 AM
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#23
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
Despite your unrequested participation, both Ed and you have contributed so much to the lives and fights we all face in this thing called breast cancer.
I am very grateful to have been allowed to witness such love and dedication.
My best to you and your family-
Maria
__________________
--------------
Dx'd 8/04 at 41
Stage 1 for some onc's; Stage II for others (if you add up the sizes of all tumors).
Infiltrating DCIS
HER2+, ER+10% & PR-
.9cm tumor not visible on mammo, but palpable; visible on ultrasound
Lumpectomy/ clear margins, no nodes
Had Breast MRI after lumpectomy that revealed two more tumors in same quadrant(.4cm and 1.6cm) that were not visible on either mammo or ultrasound.
Re-excision
DD AC+T; Herceptin one year
Rads
NED/Taking Tamoxifen reluctantly
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10-16-2009, 06:49 AM
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#24
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Senior Member
Join Date: Aug 2006
Posts: 3,380
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
I am so very sorry for your loss. I hope that your memories of Ed will comfort you in this difficult time. You will be in my thoughts.
Hopeful
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10-16-2009, 07:36 AM
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#25
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie:
My heartfelt sympathy goes out to you and your family. The Mighty Oak was a strong and true warrior and I know that will help him on his continuing journey.
Marie, you have been a super caregiver and Ed was so lucky to have you by his side. Please take excellent care of yourself and treat yourself kindly and compassionately. These are difficult times for you but I want you to know you are not alone. You and Ed will always be in our hearts and minds.
Lee
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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10-16-2009, 07:38 AM
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#26
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
This is the first chance I have had to check in this morning. Please try to rest. My heart aches for you. Call you later.
Amelia
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10-16-2009, 07:39 AM
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#27
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Senior Member
Join Date: Sep 2005
Posts: 161
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
I'm so sorry to see the news about Ed. What a strong and loving wife you've been to him.
Sue
__________________
Diag. Oct. 2004 age 54 left breast
Stage 1 grade 3; 6mm IDC; unknown amount of DCIS
with comedo necrosis; node neg.
Nottingham Grade 7/9
ER 91% PR 62%; Her2 3.6 by ICH; KI-67 35%
Nov 2004 Lumpectomy; SNB failed so had
full axillary clearance;
Dec 2004 2nd lumpy for clean DCIS margins.
Jan/Feb 2005 4 A/C dose dense;
33 rads finished 6/2005;
Began 5 years Arimidex in 6/2005
No Herceptin
9/2007 Quit Arimidex due to severe side effects.
NED
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10-16-2009, 07:39 AM
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#28
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Senior Member
Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
The world feels different to me this morning . . . just like it did when I lost my mom and then my dad. Everyone around me is going through their routine at work, school or home. But for me - this will be a day of mourning and a day of reflection. You and your wonderful Ed have touched me in ways you will never know. I have gained strength through your courage & I have gained knowledge through your wisdom.
Do you realize what you have done by sharing his story with us on this board? Your Mighty Oak has planted acorns in all of us. All across the U.S. and indeed the world, we have the seed of his memory planted deep within us and we will not let it go. I thank you for that, you have given us such a great gift.
Take care of yourself as you travel down this road not wanted. Some days will be rough and some will be better. You will see that time will be a gift, but it does take "time". You know we love you, you know I LOVE YOU. The mom in me wants to take away your hurt because I know it runs very deep - because you love Ed so deeply. But I can't. You have been brave for so long, but remember it is okay to not be brave for awhile.
You are in my prayers, as you have been since we spoke this summer. Finally, remember that even though it might feel like it - you are NOT alone.
With deepest sympathy,
Alice Larson Mueller
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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10-16-2009, 08:13 AM
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#29
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Senior Member
Join Date: Jan 2008
Posts: 154
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie, I'm so sorry that Ed lost his battle with this damn cancer. I've been dreading reading this but like you, I'm telling myself that he is finally free from it. I don't know what else to say other than my heart goes out to you and Ed......
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
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10-16-2009, 08:15 AM
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#30
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Senior Member
Join Date: Sep 2005
Posts: 290
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Re: ~Mighty Oak Has Earned His Wings And Halo...
My Dearest Marie,
I am so, so sorry for your loss, yet relieved for Ed. Although he and I will not be able to exchange birthday cards next month, he has been born again into the Kingdom of our Creator, and will patiently await you in paradise.
Godspeed dear Ed, as you embark on the most magnificent journey there is to experience. I regret having never met you, but feel as though I know you well. God bless you Marie for all you did for Ed and for all of us.
Dear Lord, please welcome our beloved Ed into Your waiting arms, and present him his just reward for fighting so long to keep the life that You gave him. Bless him and keep him until we shall all meet again on Your immortal shore.
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10-16-2009, 08:19 AM
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#31
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: ~Mighty Oak Has Earned His Wings And Halo...
((((Marie)))) Your HER2 family has said it all so eloquently....We love you and send our most sincere sympathy. Do your next work in tribute to Ed and for the good of us all. I wish you comfort and healing.
Barb A.
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10-16-2009, 08:30 AM
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#32
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Founder - HER2 Support Group
Join Date: Feb 2005
Location: Carlsbad, CA
Posts: 361
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Re: ~Mighty Oak Has Earned His Wings And Halo...
On behalf of Joe, myself, our Board of Directors and the entire HER2 Support Group Community, I wish to send our most heartfelt condolences to you and your family.
Hugs
Christine
__________________
1990, July DX 1.1cm er-, pr-
Lumpectomy, 5U4, radiation
1999, June mets to chest and brain
HER2 3+++, er- pr-
AC, Taxol, Herceptin, Gamma Knife (3 treatments) WBR
NED July 2001
December 2001 - Founded HER2 Support Group
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10-16-2009, 08:44 AM
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#33
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Re: ~Mighty Oak Has Earned His Wings And Halo...
I'm breathing a breath of relief for Ed as his spirit soars freely today. I have to tell you, my husband, son and I did our local Soroptimist Walk for Life last weekend, and I got a pink balloon with Ed's name on it to honor his journey (I'll send a picture soon, the balloon is still on my special alter at home). My six year old son and I talked about Ed. I told him that Ed fought cancer for a long time, and now the cancer is too big and he is going to be an angel now. At first my son's response was of course, he'll be o.k. won't he? I told him, well, he's going to be an angel, soon. Then, he accepted that and said, "maybe we can ask his wife where his grave is and we can go there and wish him good luck being an angel!" Wow, my heart fluttered and I said that was a great idea, and that we could wish him luck from right here with our hearts. He held on tight to that pink balloon and guarded it loyally until it was safe at home in its special place.
My family and I are there in spirit, and wish we could be there to hug you. Thank you for staying in touch with us.
Love, Celeste
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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10-16-2009, 08:47 AM
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#34
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie, Jen and I would like to extend our deepest sympathies to you. We know that Ed is at peace at last from his long, brave fight. We wish peace and comfort for you also in the fond and loving memories you have of your life together. Our thoughts and prayers are with you.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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10-16-2009, 08:57 AM
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#35
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie,
Please accept my prayers and love. Your Ed was a warrior and a true fighter. You were a great voice for him during his fight. Thank you for being such a wonderful caregiver to Ed. I know that he could feel your love for him til the end. What more could one ask for.
Love,
Lexi
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10-16-2009, 09:14 AM
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#36
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie,
I am so sorry for your loss. May Ed rest in peace with God. I pray for you to find peace.
love,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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10-16-2009, 09:40 AM
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#37
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Well, Sweet Marie
I've been holding my breath, along with you, for weeks. Thinking about what to say and knowing that no words are worthy, or necessary. You know you are gently but firmly wrapped in my love, and that you will go on. And that your Mighty Oak is now soaring, whole and complete and free from pain.
Very shortly after my mom died, I had a dream in which I was stuck in a large crowd moving through turnstiles - like into a concert or ball game. The crowd wasn't moving at all, it was stifling. My mom was standing on the railing separating the lines. No, she was actually dancing - doing a jig high above the rest of us. Joyful and free at last...
Much much love to you my sweet Marie.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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10-16-2009, 09:52 AM
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#38
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Senior Member
Join Date: Jul 2006
Location: ontario, canada
Posts: 48
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie,
My deepest and most heartfelt sympathies are extended to you and yours. Praying you will find peace, strength and comfort in your faith and in the love of family and friends in the days ahead.
Blessings,
~Karen
__________________
Karen
"The Good Lord gave us mountains, so we could learn how to climb!"
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10-16-2009, 10:38 AM
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#39
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Senior Member
Join Date: Aug 2006
Posts: 492
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Re: ~Mighty Oak Has Earned His Wings And Halo...
the Mighty Oak will live forever in your heart. Thank you for sharing your incredible love story with us. Big hugs and more hugs, chin up Marie so he can see your face.
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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10-16-2009, 11:25 AM
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#40
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Senior Member
Join Date: Jun 2007
Posts: 216
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie,
You have been so strong for Ed with all your love and care that has shone out on this site.
Take care.
Sending love.
Janie
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