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Old 05-03-2008, 08:02 AM   #61
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
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Unhappy Dearest Karla

I want to thank you for being the friend you are to Kate and to us and I want you to know that you have also remained in my prayers. I am still blown away from this news about Kate, I have been talking to her weekly or so for a very long time and have heard her labored breathing AND the spirit of fight in her voice. However, I never expected this to happen, atleast right now. I do believe in miracles and I am praying for her to receive one! Kate has always reached out to us all and now it is our turn to reach out yet again for her. We all stand tall as we come together to pray and fight for another Sister in need. Our power as a group cannot go unnoticed, God hears all these pleads.

Dear God please wrap your hands around this Angel and keep her comfortable and as pain-free as possible. I know I have begged you for help so much in the last year and a half. I am asking again for you to guide her easily to wherever you feel she needs to be. And please God, help her not to be scared and afraid. Do not let her lose her spirit no matter where her journey leads her. We who know her are all blessed to have had the chance to love her and we all beg for a miracle if you can wait.

My heart is heavy as I know all of yours are. I pray for us all to remian strong and positive for Kate and for ourselves. I am so happy that THIS is the place where we all understand one another because I know of few other places.

GOD BLESS US ALL>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 05-03-2008, 08:17 AM   #62
tricia keegan
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Unhappy

Karla thank you again for keeping us posted. All my thoughts and prayers will be with kate and her family right now. I pray comfort and peace will be with our dear kate. What a sad week on the board.
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 05-03-2008, 09:31 AM   #63
Sheila
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Kate remains in my prayers that she feels the love that surrounds her at this time. I am so sad with this news.
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 05-03-2008, 09:51 AM   #64
Soccermom
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Dear Kate ...I envision you being held in angels arms.wishing you peace and no pain.
Marcia

Thank you dear Karla for keeping us posted.
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Old 05-03-2008, 11:34 AM   #65
PinkGirl
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Unhappy

This is all so sad. Thank you Kavy for finding the time and energy to post this new information about our Kate.
I am sending her all of the good vibes that I can muster
up - hoping for peace and comfort for Kate and her family.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 05-03-2008, 12:09 PM   #66
Patb
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My prayers are with Kate and her family. So sad. Looking for
miracles for all our dear ones.
patb
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Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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Old 05-03-2008, 12:42 PM   #67
Andrea Barnett Budin
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My Head Is Bowed...

Cold shivers covered me as I read your words Karla. Bless you for bringing them to us all just the same. Maryls seemed to post precisely what is in my heart. Her words are the same as mine.

I cannot stop myself from still praying for a miracle. It is my nature. Kate's extraordinary courage and strength, and her ever positive Spirit, seem to embrace something divine. She emanated an energy that reflects a supreme Knowing. The beauty of her grace staggers me ever time.

If it is time for our sweet Sister Kate to return home, to what I call the Spiritual Realm, it comforts me to Know that she will be at peace, free of all pain and suffering. I Know her struggle will be ended and that her Soul will still be! I do not believe death is the end of our story. All the Lessons Kate gathered in this lifetime will go with her. And all the loving kindness that she has left behind will remain, in our hearts and minds. That wondrous energy will grow exponentially as it goes out from each of us, remembering her unique qualities worthy of seeking to emulate as we go on.

I Know there are those Kate loves dearly who are already in Heaven, waiting with open arms to greet her and revel in her. Surely her son is there, having gone on ahead of her, too soon for sure, yet having learned Life's Lessons well.

However, if it is possible, I would ask that she remain with us, with her beloved family, her darling daughter and adored grandson. So I will continue to pray. And to surely send my love to my friend Kate and to all those who hold her in the highest esteem as well.

With Hugs,
Andi
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 05-03-2008, 04:38 PM   #68
Ruth
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I pray that she is kept as comfortable as possible. Dear Kate we all love you so.

Ruth
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Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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Old 05-03-2008, 06:31 PM   #69
tdonnelly
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Dear Kate,
I am deeply saddened to hear of your recent struggles with bc. I do not post often but visit this sight regularly for my daily affirmations and see how everyone is doing. Thank you for helping me over countless hurdles this past year. Although we have never met; to me you were the Big Sister on this website. Your gift to share your experiences and wisdom will always be cherished by me. I wish you peace and love to you and your family.
Tamara
Invasive Ductal Carcinoma 10/2006 HER2+
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Old 05-03-2008, 08:05 PM   #70
Jeanette
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Kate

Katie darling, we have never met, but I have followed your posts and you have amazed me with your strength and willpower. My hope for you Kate is a miracle, but if that does not happen, I wish you peace and know there are Angels waiting for you. You are one wonderful Warrior Woman. Hugs and Blessings, Jeanette
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Old 05-03-2008, 09:32 PM   #71
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Praying for a miracle. Love ya all Bev
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Old 05-04-2008, 07:37 PM   #72
lisajones4
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I am praying for Kate and her family and wishing them all peace. I am so so sorry ... she was such an inspiration to me.

Lisa
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Old 05-04-2008, 08:59 PM   #73
Bill
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Thanks Karla, for all you have done. If you can, please let Katie know how much she means to me. And she is in my prayers, and I'm still praying for her to beat this thing. Love, Bill
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