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12-17-2012, 04:15 PM
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#81
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Senior Member
Join Date: Sep 2007
Location: Near Chicago
Posts: 196
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Re: Sheila has earned her wings
Everyone here should know that the priest in the funeral/memorial mass mentioned this group as a major place where Sheila had positive input. And I am told we (you) are family. Nancy was there Sunday for visitation (I think a 6 hour trip) and Donna and I today for the mass and the meal afterwards. Those of Sheila's family we talked to knew of this group. So please know you are cherished (considered as family) ...and that her contribution to us is understood. Melanie
__________________
Diagnosed: 7/13/07 (or 7/7/07)
Surgery: 8/15/07 Modified Radical One Side with Lymph Node Dissection
Pathology Report: ER/PR-, HER2+ with FISH at 8.4 copies, Grade 3, Stage IIIa, 3.2 cm tumor plus 4/19 positive lymph nodes
Portacath: 9/7/07
Chemo: 9/14/07 with AC (every three weeks) for four rounds
Physical Therapy for ROM Loss / "Cording" (but not Lymphodema)
Taxol + Herceptin weekly (started 12/2007 with 8 of 12 Taxol)
Radiation: (28 rads from 3/07 to 4/07)
Reconstruction (silicone implant)
Herceptin done (10/08)
Cognitive Remediation (11/08 - 12/08)
Lymphedema Diagnosed 5/10/10 (almost 3 years post cancer diagnosis)
Lymphedema Rehab 9/10/10 - 11/10/10
Six years NED...7/7/2013!
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12-18-2012, 10:43 AM
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#82
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Sheila has earned her wings
Thank you Nancy, Melanie and Donna for your presence while we mourned Sheila's passing/celebrated her life. I was truly humbled and honored to meet you special gals. Myself and the rest of the family appreciated you sharing what Mom meant to you and how she touched your lives. Mom wanted to be remembered for how much she helped others even through this terrible disease.
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12-18-2012, 12:37 PM
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#83
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Sheila has earned her wings
Your mum has certainly got her wish. There are just so many that she has helped all over the world. What a legacy to leave.
Ellie
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12-18-2012, 06:02 PM
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#84
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Sheila has earned her wings
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12-18-2012, 06:06 PM
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#85
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Sheila has earned her wings
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12-18-2012, 06:10 PM
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#86
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Sheila has earned her wings
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12-18-2012, 07:13 PM
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#88
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Senior Member
Join Date: Oct 2010
Posts: 123
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Re: Sheila has earned her wings
Jen,So Sorry to hear of your mothers' passing...She inspired a lot of people on this site,(Me Especially) I always read her posts,she was a Great Warrior....I have No Doubts,that she will Inspire in Heaven.....Let Peace Be With You....She would want that,Hugs & Prayers,Joanna J
__________________
found susp.lump Feb 2009
DX Feb 2009 ...Her2+ stage IIa ER/PR- grade 3
partial mast. Right breast,clear margins
chemo (2) carboplatin & Taxotere
could not finish chemo (hospitalized because of infection)
37 rounds radiation
Herceptin (1 yr.)
No clinical trials
Jan.2011 BRAC 1/BRAC 2 Neg
Aug.2011 clear bone/catscan NED
Apr.2012 clear digital mammo
& ultra sound of breasts
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12-18-2012, 07:24 PM
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#89
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Sheila has earned her wings
Dear Jen -
Thanks so much for sharing those photos. I also took a few moments to listen that that AWESOME video.
Seeing the urn drove home the realization to me that Sheila will only be here in spirit. I will miss you so much, dear friend.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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12-18-2012, 08:00 PM
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#90
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Sheila has earned her wings
Steph I know Mom touch the lives and became "family" to countless on this site from all over the world who could not be there so I figured taking these pictures and sharing them with her Her2 family would be welcomed. Sheila loved you guys as much as you loved her.
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12-18-2012, 10:11 PM
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#91
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: Sheila has earned her wings
Jen, Thanks for posting these pictures and the Somewhere Over the Rainbow video - I know your mother is def. over the rainbow now, at peace, no longer suffering.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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12-18-2012, 10:42 PM
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#92
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: Sheila has earned her wings
Dear Jennifer, You are such a wonderful, kind, generous loving women. Thank you for being our friend also. You are so appreciated. Your friend, Nancy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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12-19-2012, 05:07 AM
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#93
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Sheila has earned her wings
Thanks Nancy. All of you gals are really special not only to my Mom but to me and all of Sheila's family. It has been an honor to share my Mom with you.
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12-19-2012, 04:26 PM
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#94
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: Sheila has earned her wings
Hi Jen, I am so sorry to hear of your Mom's passing. She was a formidable person in very good way. I believe she is in a better place and free from pain. She will be missed and absolutely remembered.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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12-27-2012, 08:35 PM
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#95
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Senior Member
Join Date: Jan 2010
Location: Wisconsin
Posts: 80
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Re: Sheila has earned her wings
I just saw this today. I am so sorry, I am so saddened by this news. May she RIP. Always remembered, never forgotten. Sandra
__________________
Sandra from WI
Stage 1, Tumor 1.4 cm, Grade 3, ER-/PR-/HER2+++
Poorly Differentiated IDC with comedo type necrosis with DCIS/ALH :(
Mammogram: 11/12/09
Call Back Mammo: 11/17/09
Biopsy: 11/25/09
Diagnosis Call: 12/2/09
Partial MX: 12/16/09. 3 LN clean.
6 Cycles Chemo (TCH) Jan-April/10; Herceptin all of 2010; 33 Rads complete 7/10. Herceptin done 12/10.
FOLLOW UPS:
Bil mammo, and Breast MRI 12/10 - CLEAN! (after a second lump was biopsied and BENIGN - showed giant cell reaction?).
Bil mammo 6/11 - CLEAN!
Left mammo 12/11 - CLEAN!
PET/CT scan 4/6/12 - CLEAN!
Bil mammo 8/12 - CLEAN!
November 2012 - Gallbladder Removed.
Bil MRI 2/13 - CLEAN!
http://www.caringbridge.org/visit/sandragreen
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12-29-2012, 12:49 PM
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#96
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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Re: Sheila has earned her wings
I was checking the board as I always do when there's doubt or ignorance on my part on a subject matter
And I see this message. My heart just shrunk and sadness in my head and tears in my eyes
Your mom had always a positive attitude even it was bad news. She answered a couple of my threads
I miss her . I offer my condolescens to all of you. She was a fighter, should be proud of that.
Pardon me but damn i hate this decease!
Love to you. Peace in 2013 as you recover from lour loss
Maria del Carmen
(MCS)
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12-29-2012, 06:41 PM
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#97
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Sheila has earned her wings
Jenn I'm late coming in here but thank you for posting the pics, it was sad but also helped me get some closure, I was so fond of your Mom and think she felt the same and we chatted often about my life here in Ireland. xx I'll miss her too!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-31-2012, 04:09 PM
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#98
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Senior Member
Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
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Re: Sheila has earned her wings
Jen, you have my heartfelt sympathy. I know this journey was difficult for you, but hold all your fond memories close to your heart and cherish them forever. Sheila was very special to all of us too. Her previous signature had an expression about dancing (I don't know why it just escaped my mind just now). I know she is not suffering and is dancing in peaceful paradise somewhere over the rainbow. I pray for her soul and her memory. And acts of Kindness in Sheila's Honor will be done---what a wonderful idea. Bless you Jen. Hugs, Joanne S
Last edited by Joanne S; 12-31-2012 at 04:13 PM..
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09-22-2013, 02:59 PM
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#99
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Re: Sheila has earned her wings
Jen, let me first extend my condolences to you and the entire family and say how sorry I am for your loss. I will never forget how kind, thoughtful and caring your mother was. She was one of the first to reach out to me when I first joined the amazing Her2 Support Forum. We lunched together and shared our stories both about cancer as well as about our families. As you know helping others and family were most important to her and no matter what she was dealing with, she always had the time to help others. Sheila was a true inspiration to all and while she will be missed terribly, I am happy she is at peace and not suffering. I am sure she has joined the other Her2 angels and will be watching over all. So sorry this is so delayed, I don't check in as regularly as I should, but I did notice the silence that existed from your mom.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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