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10-23-2009, 11:42 AM
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#101
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Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie, you and Ed have been often in my thoughts. I was so sad to hear your news. I hope that you are okay.
Leslie
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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10-23-2009, 11:12 PM
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#102
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Senior Member
Join Date: Jul 2006
Location: Shingle Springs, CA - near Sacramento
Posts: 295
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Ah Marie, such an amazing fight the two of you waged! A Mighty Oak indeed! Please take the time you need to recoup after this hard fought battle......I am so sorry. We are all here for you, but you know that.
Love, Donna
__________________
Donna in the Sierra Foothills of California
Diagnosed 6/7/06 invasive ductal carcinoma/ductal carcinoma in situ
Lumpectomy 6/21/06
Pathology: Er 99% Pr 10% Her2/neu 3+
DNA Index 1.0
S-Phase 3/High
Primary Tumor 2.4 cm Sentinel Node Tumor 2.1cm
A/C/T+ Herceptin + rads + Arimidex
stopped Herceptin after 7 mos. due to low MUGA
Surgery for thickened uterine tissue May 2008 - conclusion: side effect of Arimidex
Switched from Arimidex to Femara - joint/tendon problems significantly better!
2 year mark Pet scan and Echo shows all clear!
5 year mammogram with ultrasound shows no sign of cancer - yay!
11 years, 11 months new breast cancer - found lump
Mastectomy 4/30/2018
Pathology: Er99%, PR 28%, Her2 negative! (new type)
Faslodex
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10-24-2009, 04:21 AM
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#103
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Senior Member
Join Date: May 2009
Location: White Rock , B.C. Canada
Posts: 76
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Re: ~Mighty Oak Has Earned His Wings And Halo...
So sorry to hear of your loss Marie.
__________________
Mar.25/09 - Fine wire biopsy + lumpectomy of left breast.
Surgical report shows 5 cm tumor ER+++
PR++ HER2+++ no clear margins.
Apr.29/09 - Mastectomy of left breast and node removal
show 1 node+ 1.8 cm tumor , clear margins.
June 25/09 - FEC every 3 wks.x 6
Nov. 09 - Herceptin every 3 wks. x 16?
Nov.09 - Radiation daily x 16
Nov.09 - Tamoxifen 2 yrs.?
"There are only two ways to live your life.One is as though nothing is a miracle.The other is as though everything is a miracle." ( Albert Einstein) I continue to see the miracles of life!
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10-27-2009, 12:04 PM
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#104
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Oh gosh, Marie, I am just reading the post for the first time. I want to offer my most sincere condolances.
And now, no more suffering or pain for Ed, and blessed peace for you, knowing that he is finally at rest. You have a lot of love, support, and prayers coming to you from complete strangers. Bless you.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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10-27-2009, 05:32 PM
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#105
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Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
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Re: ~Mighty Oak Has Earned His Wings And Halo...
I am so sorry! I will pray for comfort in this terrible time...
__________________
Michele Ulmer
Dx.2003 Stage 3b 35 pos nodes
Dx August 2003 Stage 3B with 35/35 nodes IDC age 39
Lumpectomy
A/C x4 Taxol x12
35 radiation tx
1Year Herceptin in trial
HER2 vaccine trial Seattle
3 months Tykerb off label
NED
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10-31-2009, 10:44 PM
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#106
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie,
Thinking of you and wishing you love and strength.
Hugs, Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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11-16-2009, 09:48 AM
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#107
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Re: ~Mighty Oak Has Earned His Wings And Halo...
I am beyonds words here. I thank you all so much for walking with us, for loving and guiding us through the hardest of all of lifes horrors. We could have never done this without you all. ,I thank the many of our quiet family how all stepped up to carry me when I needed you the most. For the offers to come from Boston, Conn, Newport, New York and New Jersey to give me rides. I just can go on and on. I love you so much!..........Marie
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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11-16-2009, 09:58 AM
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#108
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie, It's good to hear from you. How have you been?
Hugs
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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11-16-2009, 10:12 AM
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#109
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Considering it all, remarkable and I try to be no hero here. I still hurt bad and the lonliness makes me want to scream. Been travelling and enjoying family and friends.
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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11-16-2009, 11:49 AM
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#110
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Glad to hear you are able to enjoy family and friends. I'm sure Ed is with you when you travel. But not having him there to point out something you notice, to comment on something must be exceptionally hard.
Hugs from across the ocean.
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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11-17-2009, 11:30 AM
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#111
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Good to hear from you Marie. Tried to send a PM a few days ago but the box is full. xo Ceesun
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11-17-2009, 10:20 PM
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#112
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Senior Member
Join Date: Nov 2007
Location: Brentwood, CA
Posts: 76
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
I mostly lurk but I have followed Mighty Oak's and your journey. I'm so sorry for your loss and know how hard and bravely you both fought against this disease. You both contributed more good than you will know.
Janelle
__________________
Janelle
Diagnosed October 2006 at age 37 wtih grade 3 IDC and high grade DCIS
Stage 1c triple positive, no node involvement but
vascular invasion
multifocal disease
Lumpectomy November, 2006
A/C every 3 weeks (started Jan., 2007 and finished March 2007); followed weekly Taxol (finished June 2007) concurrent with Herceptin (finished March 2008);
Bilateral Mast with immediate recon in Sept 2007; finished recon Dec. 2007
Started 5 years of tamoxifen Nov. 2007; started peptide vaccine clinical trial at MD Anderson October 2008 and finished active part of trial in April 2009 (monthly injections of AE37 peptitde (HLA type specific) with GM-CSF or GM-CSF alone depending on if I was in experimental or control group); started Zometa infusions June 25, 2009- 4mg every 6 months for 3 years (taking it "off-label" to try to prevent mets)
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11-18-2009, 01:08 AM
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#113
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Senior Member
Join Date: Oct 2007
Location: Australia
Posts: 309
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Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Marie, so sad to hear your news yet glad in a way too that Mighty Oak has found a release from his suffering. Sorry I only just read the news having been in and out of hospital myself. And as time goes on its good to see you back in the saddle again. Much love and blessings to you and Ed.
Blessings
Hermiracles
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
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