HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 09-26-2014, 08:28 PM   #21
Mtngrl
Senior Member
 
Mtngrl's Avatar
 
Join Date: May 2011
Location: Denver, CO
Posts: 1,427
Re: Prayers needed... Scared

Keep in mind that your uterus and ovaries may protect you against heart disease. And you are very young to go into surgically-induced sudden menopause. You may find it unbearable, and then need hormone replacement therapy to cope, which might well make you wonder why you were so quick to cut off your natural hormone supply.

I wouldn't do it if I were you. It doesn't seem necessary, and it's quite possible that if you wait until you've got a bit more normalcy in your life, you will not be so freaked out about recurrence or so willing to do drastic things. At any rate, you should get a second and maybe even third opinion.

I like the "if all you have is a hammer, everything looks like a nail" analogy from higher up in this thread. I love my oncologist, and she's pretty unflappable, but I think that's true of her.

Good luck!

Amy
Mtngrl is offline   Reply With Quote
Old 09-29-2014, 06:37 AM   #22
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
Re: Prayers needed... Scared

A cyst is a cyst is a cyst. Get rid of the cyst if it's causing problems. In the meanwhile, get the BRCA testing done and talk to a genetic counselor if it comes back positive (that you have the BRCA genes which put you in greater risks ). He/she will help you chart your family history and consider all factors before helping you make your own decision.

Sending you good vibes.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
Jackie07 is offline   Reply With Quote
Old 09-30-2014, 04:59 PM   #23
v-ness
Senior Member
 
v-ness's Avatar
 
Join Date: Nov 2009
Location: western ma
Posts: 280
Re: Prayers needed... Scared

i had a partial hysterectomy before cancer and my remaining ovary out post cancer and i can tell you i have never regretted it for a minute. i had the partial because of a multitude of problems, cysts, severe cramps from endometriosis and several other issues and am so happy to be pain free ever since. so i'd give it the thumbs up, even if cancer was never involved. in my case, i suffered for decades from intense pain and for what? my surgery was a piece of cake and i was up and around again and even working out again in no time. frankly, i cared a whole let less about an ovary than peace of mind (my mom died of ovarian cancer shortly after i finished rads). it seems to me you will be repeatedly tormented by a cystic ovary and every time you will be worried is it cancer? i don't feel like any less of a woman. menopause is a drag but pain and anxiety and fear of cancer is 10x worse. good luck whatever you decide. v
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
v-ness is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 12:56 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter