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04-27-2009, 04:49 PM
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#1
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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~My Dear Father Is In Need Of Prayers Now~
My poor Daddy had a grand mal seizure this afternoon, the last one he had was 25 years ago. Daddy does not have epilepsy either. We did not know why this happened to him, nor what is going on here. Mom said that he is talking alright now but they are unsure if there is any damage right now. All prayers and positive healing thoughts welcomed. Ho hum.>>Believe51
PS: I have not taken a xanax for months now but you better believe I did today. Ed's Mom is mad we did not spring her from the rehab today and kind of blaming me. WooWee is she maaaad at Marie.....still smiling (of course this could be drugged induced)
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
Last edited by Believe51; 04-27-2009 at 09:11 PM..
Reason: did a boo-boo
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04-27-2009, 05:13 PM
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#2
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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I am so sorry to hear this news and know that your father is in my prayers. It sounds like a xanax was called for!
karen
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04-27-2009, 05:19 PM
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#3
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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i am sorry to hear this and just want you to know that you have y prayers.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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04-27-2009, 06:48 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Marie,
Your prayers were strong for my father; know I am keeping strong prayers for your father. Hopefully all will be well.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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04-27-2009, 06:53 PM
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#5
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Prayers from Canada Marie - you are one tough cookie -
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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04-27-2009, 06:58 PM
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#6
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Praying hard for your dear father. I am sorry that you have to go through so very much.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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04-27-2009, 07:05 PM
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#7
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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So sorry to hear this Marie. Hope that your dad will be ok.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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04-27-2009, 07:25 PM
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#8
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Senior Member
Join Date: Oct 2005
Posts: 823
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Marie many prayers going out for Dad. I pray that all well be fine with him.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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04-27-2009, 08:29 PM
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#9
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Senior Member
Join Date: Sep 2005
Posts: 589
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It sounds like you have a lot on your plate right now. My thoughts and prayers are with you for your father and the strength to deal with you mother in-law.
To help a bit with the strength, maybe a little bit of vodka wouldn't hurt!
Eric
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04-27-2009, 09:10 PM
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#10
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Eric thanks. I only write what my heart feels on this site, never sugar coating or telling someone what I think they need to hear. I say it like it is, this is the real me, the true Marie. Lately I feel like this sounds like I am a crazy co-dependant, pyscho! I really cannot believe this is all happening to Ed and I and it is not a pity thing. I have to smile right through it because I think I'd crack. This is my real life and sometimes I do not want to ask for prayers or sound like I am complaining. This upbeat attitude is mine, I own it and I have to for my quality of life. Hmmmm, let's see, in the last 2 months alone my Mother-in-Law was in an almost fatal accident, coma, now rehab and giving me trouble to go home. My Father has had several episodes in the hospital for his heart, the last one being a grand mal seizure. Lost my job, life insurance and benefit package at a job I had for 7 years. And My Sweet husband, my best friend is starting chemotherapy on Wednesday.
I am handling the stress well despite I do not understand how besides acceptance and determination. I figure that God has to have alot of faith in me to handle this amount of pressure and not crack. Do not get me wrong, I am not no superwoman, I am just an average woman in love with being alive loving these people and life itself. Besides, the big guy needs to know that I will be alright if he is not here.
I did take a Xanax and this has helped me to just chill out tonight and go slow enough to not get so stressed until I shook. I refuse to let stress rent space in my head as much as possible. And you guys, well, I always feeled protected and loved and prayed for. I gather strength and life force here. I am rambling and did not realize I needed to vent that bad.
Thanks you all for the prayers and the strength. Not only do I feel that God has alot of faith in me to handle these things but you all do too. You give me strength, love and courage to be able to move past things and really enjoy my life.>>Believe51
Gee Eric, maybe I should have had a shot, I might have passed out by now......ROTFL!!
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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04-28-2009, 04:53 AM
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#11
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Marie,
Thanks for the card. I got it yesterday. I am sorry to hear about your dad. Please let us know how he is doing today.
Tell Ed I hope he has a good day and you too.
Amelia
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04-28-2009, 05:59 AM
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#12
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Senior Member
Join Date: Mar 2009
Posts: 508
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~My Dear Father Is In Need Of Prayers Now~
Good morning, Marie. I am also sorry about your father's grand mal and have already said a prayer for him and for you. I hope that today brings better news and that tomorrow goes well for the big guy. I am also not a xanax taker, but have been very grateful for the help that the occasional xanax can give. Hugs to you.
Barb A.
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04-28-2009, 06:14 AM
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#13
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Dear Marie,
I'm sorry you are dealing with all this. It's a lot for one person. You have always been strong for all of them, so they expect you to solve their problems. You have been there for your dear mother in law, and she isn't used to you saying no. So naturally she's disappointed and mad. But that's her problem right now. She will deal with it, and she'll handle the disappointment. You are worried about your father right now, and he deserves your attention. Is there a shoulder for you to cry on, amidst all that is happening? Is there an arm around your shoulder? Because I think you are entitled to some support yourself. We can only do so much online. My arms are long, but they don't stretch to the other side of the Atlantic Ocean, alas. You are in my thoughts, though, and I'm sending warm, comforting rays for you, and healing rays for all your loved ones.
You are a very special, honest, loving person. I admire you a lot. Hang in there girl!
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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04-28-2009, 06:35 AM
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#14
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Senior Member
Join Date: Aug 2006
Posts: 3,380
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Oh Marie,
How much can one person take? Please know you are in my thoughts.
Hopeful
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04-28-2009, 09:40 AM
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#15
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Marie, keeping your entire family in my prayers as always.
Hang in there!
Hugs
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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04-28-2009, 11:46 AM
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#16
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Marie, I know that your heart must be heavy. My mom-in-law has had a couple of grand mal seizures also and it is truly scary. Your plate is full and I know that your whole family is truly blessed to have you on their side. But girl, remember that you can't give out of an empty bucket. Make time to fill up your bucket too, sweet girl. I'll be having a tea party in your honor in my little mind tomorrow around mid morning. I'm deciding right now on all the different types of cookies and treats to be served to my special friend. Oh, yes, my imaginary limosine will pick you up early; so that you can cruise the glory of the God's great world before sitting down for tea with your Her2 friends. Join me mid morning and we'll toast a beautiful day and a brighter tomorrow. Much love to you and a peaceful evening. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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04-28-2009, 01:31 PM
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#17
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Haha....I am hoping that the limo has a sunroof.....Aaaa, you never know when I am going to blow. Thank you for the real big smiles I have on my face right now.
My sincere thanks to you all, you are the best and I could not do without you. Now if that does not sound co-dependant nothing does. (laughing real loud)>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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04-28-2009, 03:49 PM
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#18
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Senior Member
Join Date: Sep 2005
Posts: 589
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Marie,
I thought Jacqueline expressed it perfectly. I don't see you as dependent, I see you as human. I believe we all need emotional support and being independent is allowing others "in" while not allowing anyone else to dictate your reaction. I see nothing in your threads that expresses neediness and dependency. On the contrary, I see someone who is extremely human and strong...with all the normal emotion that goes along with that. EVERYONE needs help.
You're WONDERFUL so be fair to yourself and allow yourself to be human with all the normal imperfections that go along with it.
Eric
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04-28-2009, 05:08 PM
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#19
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Thoughts are with you right now Marie 
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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04-28-2009, 06:48 PM
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#20
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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I am so happy to say that a heart attack or stroke is ruled out. We are working on a few things like the brain, dehydration, sugar issues or the darn UTI he had last month. My Daddy has a urine bag that goes into the bladder from his side. That health issue has never had infections so we are very lucky there thanks to Mommy. We are still working on it. I'll keep you posted if you could just continue the prayers for us. After all I 'Believe'>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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