 |
|
10-16-2009, 11:29 AM
|
#41
|
|
Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
My dearest Marie,
I am relieved for Ed, and sad for you. I wish I could fly over and hold you in my arms and tell you it will be okay. He was a great man and his spirit will linger with us for a long time. Probably till you join him!
May his memory help you through the bad times, and inspire you in good times.
Hugs
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
|
|
|
|
10-16-2009, 11:30 AM
|
#42
|
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
I want to say that I am so sorry for your loss. My sympathies go to you and Ed's family. The Mighty Oak is watching over all of us and providing shade for all cancer patients now. Ed's experience taught us alot about fighting cancer.
I want to add Ed to the "in loving memory" section of my website. I was just there starting to update it, but I am not finished, so I will add his name the next time I do more updating.
Please try to get a little rest before you go back to work and start fighting cancer on behalf of everyone. We can wait until you are well rested and ready to fight.
|
|
|
|
|
10-16-2009, 11:33 AM
|
#43
|
|
Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
You have my heart felt sympathy....and your hubby my blessings.
Barb
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
|
|
|
|
|
10-16-2009, 11:58 AM
|
#44
|
|
Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
So lucky he was to have you fighting by his side.
|
|
|
|
|
10-16-2009, 12:39 PM
|
#45
|
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dearest Marie -
Accept my big cyberhug, and hold on to all of us who are here to lean on as long as you need.
Your precious Ed is in the big "cruise ship in the sky" and waiting till the time he can get you a coffee again. Until then his large spirit is alive in many sectors bringing knowledge and a will to fight to others who suffer from or treat such rare cancers.
Let your sails down for a bit and run with the current. May you content in the unconditional love you have known and still feel for a long time in the future.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
|
|
10-16-2009, 01:00 PM
|
#46
|
|
Senior Member
Join Date: Mar 2007
Posts: 33
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
May God be with you both. Thank you for all of your help and support. Your posts helped me make it through some of my bad days and I will be forever grateful. My heart goes out to you Marie, as I sit here typing... I do truly believe that one day you and Mighty Oak will be together forever. May God's angels comfort you and may God's love keep you at peace.
Ruth Ann
|
|
|
|
|
10-16-2009, 01:19 PM
|
#47
|
|
Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
My eyes are filled with tears for you Marie. It has been a long and difficult journey. And now it is time to grieve. And then it will be time to celebrate - celebrate the love you shared and celebrate the incredible life that was the Mighty Oak. And then, my dear, it will be time for you to rest. I can only imagine the utter exhaustion you have built up.
Know that you are and will continue to be in all of our hearts and prayers.
Unable are the loved to die. For love is immortality. ~Emily Dickinson
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
|
|
|
|
|
10-16-2009, 01:38 PM
|
#48
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Oh Marie...although I knew the day was fast approaching and I so wanted Ed's suffering to be over my heart aches all the same. I feel as if I have lost a friend.......you have made your Mighty Oak as real to those of us here that I almost felt I could reach out and touch him.
My sincere condolences sweet Marie for your loss. May God's comfort and peace hold you and surround you today and always.
Love......Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
10-16-2009, 01:53 PM
|
#49
|
|
Senior Member
Join Date: Feb 2006
Posts: 437
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dearest Marie,
Words fail me. I am so sorry.
Love never dies...Take care of yourself
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
|
|
|
|
|
10-16-2009, 01:58 PM
|
#50
|
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
Our deepest sympathy to you and your family.
Love,
J & M
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
|
|
|
|
|
10-16-2009, 02:31 PM
|
#51
|
|
Senior Member
Join Date: Oct 2007
Location: Portage, IN
Posts: 198
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie
I am so sorry for your loss. I will continue to pray for you during this time. Please know that you and Ed are loved.
__________________
10/15/07: Diagnosed at age 46 lymph node removal (2)
ER/PR - Her2 +++
11/07: Port Installed
11/07 - 1/08: AC
1/30/08: Right Mast Stage lllC
2/28/08: Start Taxol and Herceptin weekly.
5/15/08: Finished Taxol
8/12/08: Finished 33 Rads
1/29/09: Finished Herceptin
|
|
|
|
|
10-16-2009, 02:50 PM
|
#52
|
|
Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dearest Marie,
Thinking of you in your time of loss and pray for comfort in this time of mourning and loss but rejoicing for Mighty Oak as there is no Breast Cancer in heaven!
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
|
|
|
|
|
10-16-2009, 03:35 PM
|
#53
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie, I'm sorry for your loss. You and the Mighty Oak were so blessed to have each other.
__________________
For Nicola
|
|
|
|
|
10-16-2009, 04:01 PM
|
#54
|
|
Senior Member
Join Date: Sep 2005
Posts: 95
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
I am so very sorry. There are no words.
__________________
Cynthia
Diagnosed 9/03 @ 43 years (pre-menopausal)
Her2+++
4 nodes +; High Grade
ER+/PR+
Bilateral Mastectomy; Reconstruction
CAF x 6; Radiation; One Year Late Herceptin
Oophorectomy; Arimidex
Completed E75 Vaccine Trial; Completed E75 Vaccine Booster Series
|
|
|
|
|
10-16-2009, 04:11 PM
|
#55
|
|
Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
What more can be said? I join all the others offering
you my love. What a team you were. Please take
care of yourself and rest. Always
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
|
|
|
|
|
10-16-2009, 04:22 PM
|
#56
|
|
Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Hi Marie,
Thank you so much for sharing your journey together with Ed. Your thoughts and wisdom have meant so much to me. I have felt so sad for both of you over the past few months. Although I have not written much lately, the two of you have been constantly in my thoughts.
Please accept my sincere condolences.
Barbara H.
|
|
|
|
|
10-16-2009, 04:47 PM
|
#57
|
|
Senior Member
Join Date: Sep 2005
Posts: 556
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
I am so sorry to hear the news. It is so depressing that still there is no cure. Please take care of yourself in these difficult days.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
|
|
|
|
|
10-16-2009, 05:48 PM
|
#58
|
|
Senior Member
Join Date: Nov 2006
Location: South Carolina
Posts: 183
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
I am so sorry to hear this news. My heart and prayers are with you.
He was a very lucky man, you both lived life to the fullest and there is not doubt about how much he was loved by you.
Take good care of yourself, God bless you!!
__________________
Anita
er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
|
|
|
|
|
10-16-2009, 06:15 PM
|
#59
|
|
Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Dear Sweet Marie,
I wish I could give you a huge hug. I can't image the pain you are in right now. I too wish I could have met Ed in person. I read your posts when I was a newbie and from you both I learned to become strong and fight my own battle. Your love story reminded me of what is truly important in this life. Thank you for sharing Ed and yourself with all of us.
I pray that you have peace and rest over the next several months. Then, when your ready, you will be gearing up to take on cancer once again for Ed and the rest of us.
Although my heart is breaking, I am relieved for Ed and rejoicing that he has won victory over cancer . His transistion into eternal life was I'm sure a glorious one.
Love you,
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
|
|
|
|
|
10-16-2009, 07:03 PM
|
#60
|
|
Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
|
Re: ~Mighty Oak Has Earned His Wings And Halo...
Marie,
There are no words to express the feeling of great sadness but also great joy that Ed's passing brings. Sadness that he has gone from us, and most especially from you, but joy that Ed's fight is over and he has earned the greatest reward.
My love to you,
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 06:59 PM.
|
Linear Mode
