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04-30-2008, 06:52 PM
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#1
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Senior Member
Join Date: May 2006
Posts: 157
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Update on our Dear Kate (Tousled 1)
It is with great sadness and tears in my eyes that I let you all know that our dear friend Kate is back in the hospital, and that she is not doing well.
Since she came back from the hospital, she has been feeling very tired. Then she started to feel weak, and her appetite was not good either.
Last Thursday, she went to see her oncologist, and she wanted to put her back on chemo right away, but Kate refused because she was feeling very weak, and she knew it would be too much on her body. This past weekend, she developed a cough, and Sunday she told me she was going to see her oncologist on Monday and that she decided to go back to treatment (Herceptin/Ixempra) even though she did not want to because she had no choice. After that, I hadn't heard from her, she did not return my phone calls, so I had a bad feeling that things did not go well. This morning she called me and said she is back in the hospital, and that she was admitted with severe short of breath, and they put her temporarily in a special breathing machine so that she could breath better. This afternoon I called her, and she told me that they did a broncoscopy and that it does not look good, her lungs are failing, and that they are calling hospice. She also added that the doctors at the hospital said that nothing is going to work at this point, but her oncologist is still willing to give her treatment if she feels better though.
I cannot believe this is happening to our dear friend. I hate this disease! I feel lost and helpless. I do not know what to say to her. I love her and I want her to keep fighting, I do not want her to give it up because while there is life, there is hope. And I feel there is still a lot of fighting spirit in her.
My sisters and brothers, Kate needs our prayers for this treatment to kick in so that she can keep the fight. I invite all of you to say a special prayer for her tomorrow (Thursday), at 3:00 pm pacific time, God will listen to our prayer again. And If anybody wants to send her a card, PM me that I will gladly send you her address, I think this will help lift her spirit.
God bless you all.
I will keep you updated.
KarlaV.
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04-30-2008, 07:04 PM
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#2
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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I lift our sister Kate up to you Lord. Comfort and give her healing as she is deeply in need. Lord we know you know our every need but we ask a special prayer for Kate today as she struggles with this disease. God grant her refuge in your arms, we all pray for your healing hands in this situation. Praise be to God for a miracle. Amen.
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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04-30-2008, 07:16 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Our dear Father,
We ask that you lay your healing hand upon our Kate. Give her courage,comfort and strength for her challenge.
Dear Kate, please know that we love and care for you, holding you close in our prayers.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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04-30-2008, 07:34 PM
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#4
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Senior Member
Join Date: Oct 2005
Posts: 823
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Oh NOOOOO, I'm so sorry to hear that sweet Kate is once again back in the hospital.
Prayers going out for Kate to get stronger so she can re-start treatment.
Please let her know I'm praying hard for her and family during this difficult time.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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04-30-2008, 08:18 PM
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#5
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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I am praying for a return to health for our dear Kate the Great...tears are misting in my eyes...all the best Kate
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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04-30-2008, 08:23 PM
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#6
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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I'm so sorry to hear this news about our beloved Katie. She is and will continue to be in my prayers. I pray that she will be strong enough to resume treatment. She is a tough warrior and a very special person.
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04-30-2008, 08:46 PM
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#7
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I will be praying for Kate tonight, tomorrow at 3:00pm and everyday. Please tell her I am thinking about her.
Vanessa
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05-01-2008, 12:49 AM
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#8
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Our Dear Kate
I was so sorry to see your post and had been looking out for an update form kate herself but thank you for letting us know. I'll be praying hard for kate to get over this setback and agree, while there is life there IS hope.
Kate my friend, you are one of the fighting Irish and a lady I've come to admire so much..I KNOW you won't give up.
We'll be willing you on and lending you strength to get through Kate so hang in there.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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05-01-2008, 04:05 AM
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#9
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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My heart is breaking this morning as I read this new update on our Kate. She has been through so much.
I, too, ask our God to hold you close, dear Kate. May He lift you up and give you His strength and peace to endure.. May your Spirit feel the love we all hold for you.
Gentle hugs and much love I send,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-01-2008, 04:49 AM
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#10
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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I am very sorry to hear that Kate is once again in the hospital. She will remain in my constant prayers.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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05-01-2008, 04:55 AM
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#11
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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I, too, was looking for an update from Kate. Knew she would if she could, and did not like the feeling in the pit of my stomach when thinking of her.
Even though it was a difficult task, Kavy, thank you for letting us know so we can send all our prayers and good energy to dear Kate as she takes on the heat of the battle.
Lots of warm, big hugs coming her way. May she find fortitude and peace.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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05-01-2008, 05:17 AM
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#12
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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I would like to give all my strenght to Kate to help her pull through once again. I can only give her my Love and thoughts. She is such a fine person. She helped so many of us by her support and courage. Please Please help her. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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05-01-2008, 05:58 AM
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#13
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Kavy, it is so kind of you to follow up and keep us aware of how Kate is doing. She is a special warrior blessing to us.
Kate, I'm sending love, hope, prayers, and appreciation for who you are and the abundance you always have shared. May God return your abundant giving!
May you experience our love for you, sweet Kate.
I'll keep praying for you and sending you love and hope. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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05-01-2008, 06:02 AM
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#14
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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As tears well up in my eyes...
I TOO can't believe this is happening. Prayers now and at 3pm.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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05-01-2008, 06:04 AM
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#15
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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I am praying so hard that Kate gets stronger and this passes. And thatnk you for the information, Kate will always be in my thoughts and prayers.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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05-01-2008, 06:12 AM
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#16
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Senior Member
Join Date: Feb 2008
Location: Newnan, Georgia
Posts: 80
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I am so sorry to hear Kate is doing worse. May God cover her with his comfort, peace and healing. She has been through so much. I can't believe this is happening. I will say a prayer today at 3:00 with everyone else.
__________________
Nancy
Diagnosed 4/06, age 45
IDC, 3.5 cm, 4/7 positive nodes
Stage IIB
Her2++, ER & PR++
Mastectomy, 4 AC, 4 Taxol & Herception for one year
Radiation
Ovaries out 4/07
Currently taking Arimidex and Zometa every 6 months
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05-01-2008, 06:45 AM
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#17
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Senior Member
Join Date: Oct 2007
Location: Australia
Posts: 309
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Oh.. I am so sorry to hear this is happening to dear sweet Kate... Kate you have such a generous sweet heart Sis. Praying for you everyday ~ may you be surrounded by love and healing and comfort.
We love you Kate.
♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥
Blessings
Hermiracles
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
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05-01-2008, 06:51 AM
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#18
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Senior Member
Join Date: Sep 2005
Posts: 556
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I feel sad and depressed about Kate's situation. This should not be happening. I am praying for her and holding her in my thoughts.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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05-01-2008, 08:03 AM
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#19
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Praying for Kate's recovery. I will be praying at 3:00 today with all of you. Lord, please hear our prayers.
Lexi
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05-01-2008, 08:11 AM
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#20
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Senior Member
Join Date: Jun 2006
Location: Wellington, FL
Posts: 68
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I feel like someone punch me in my stomach. It's so hard to write through tears. This really sucks. She's such a fighter. Prayers, prayers, and more prayers.
Ita
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