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Old 02-29-2008, 07:56 AM   #1
IRENE FROM TAMPA
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Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
Smile Fractionated Cyberknife??

Joy suggested checking into fractionated Cyberknife. I dont know much about this procedure but am reading up on it. I did not think I would be a candidate for such a procedure but I am going to check with my oncologist when I see him in a couple of weeks. I know that everytime I ask if there is something that they can do that can go directly to the tumor, they say that the one's in my abdomin area are too close to areas that could cause great complications if they slip.

This procedure sounds great if they could do, especially to the areas in my neck that are so close to the surface.

Esther - I know you are getting ready to have done - any info you could pass on to me please do or anyone else.

I begin my new combo today of Ixempra/Xeloda and as I swallowed those first two pills of Xeloda this morning I remember vividly how bad my hands/feet got last time, but we can monitor and reduce if need be before it gets out of hand.

I am already searching for my next plan of action should this fail and hope the Herceptin/DM1 trial pushes through quickly for everyone. I am going to continue checking on that exclusion also.

My onc said that my CT of my sinus showed no abnormalitites and no infections so I think that this last set of chemos I was on was causing my nose to bleed and bad inflammation set in. I have been doing the NETI Pot rinse and I have noticed great improvement. I will continue doing this daily. If any of you suffer from nasal issues, I recommend it highly.

We took advantage of my feeling better and went to the opening day of our STRAWBERRY FESTIVAL yesterday. Very nice sunny day, small festival but very nice. GREAT strawberries - its just a shame that I could not get the full taste of them, but I am sure that will return. It feels so good and appreciated to have a good day....

You all are so wonderful and I feel so loved on this board - thank you all again for your support. My love and prayers are ALWAYS with everyone on this board.


Take care
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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