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03-03-2010, 08:39 PM
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#41
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Going through a difficult time
Oh, Sheila, I am so very sorry for all you have had to bear this past month and these long 8 years. I am thankful your father seems to be coming around and so sorry for the severity of your mother's cancer. Your little Jasmine seems like a chip off the old block. Definitely her Grandmother's granddaughter, a fighter.
I wish you healing and strength through this difficult time. My prayers are with you.
Laurel
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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03-04-2010, 09:57 AM
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#42
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Going through a difficult time
Dear Sheila,
I hope your burden will be lightened by all the love and support being sent your way. This is tough, more than tough. You will need all your strength during these coming months. I hope your Mom and Dad, who are an inspiration to all of us, through your posts, will find the strength to carry the load of these difficult times. May your mother be painfree and may she be comforted by the knowledge that she is loved and cherished.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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03-04-2010, 10:01 AM
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#43
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Senior Member
Join Date: May 2009
Posts: 510
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Re: Going through a difficult time
Dear Sheila,
I am sorry you're going through this. Words escape me at the moment, but please know that you and your family are in my thoughts and prayers.
To better days ahead,
Marcia
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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03-04-2010, 11:00 AM
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#44
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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Re: Going through a difficult time
Sheila -
I am so sorry to hear this news. What a hard time overall for your family!
I know I always preach the diet and nutrition, but it really can save your life (and your moms) many people have beat cancer -without chemo - even when they are too weak to battle anymore - and have been sent home to get their affairs in order - just with juicing, detoxing the body - and nutrition --- it is really that simple. (not easy - as eating the right foods is hard to do - if you don't know where to start!)
Please buy you and your mom a copy of these two books - if she doesn't feel up to reading - you can listen to the CD that comes with Beating Cancer with Nutrition.
Beating Cancer with Nutrition
Cancer Battleplan Sourcebook
(see the book section below in my "favorites" to see the authors. You can order them on amazon.com)
Personally, if I ever see mets or disease return in my body - I would do a combination of a serious cleanse (like they reference in the Cancer Battleplan Sourcebook) and implement the Gerson diet --- it is really strict - juicing every hour of the day - but it is really powerful!
It is never too late - don't give up!
Live long - live strong - Karen
Favorite Books:
- The Cancer Battle Plan Sourcebook (this is the updated version) - by David Frahm
- Beating Cancer with Nutrition – by Patrick Quillin PhD, RD, CNS
- Crazy Sexy Cancer Survivor – by Kris Carr
- Eat to Live – by Joel Fuhrman, MD
- The Gerson Therapy – The amazing nutritional program for cancer and other illnesses – by Charlotte Gerson and Morton Walker, DPM
- A Cancer Therapy – Results of Fifty Cases – by Max Gerson, MD
Few of my favorite sites with loads of information:
http://www.i-amperfectlyhealthy.com/index.html
http://www.cancerfightingstrategies.com/index.html
http://www.carcinomacancer.org/cance...ph-factor.html
www.drday.com
http://www.cancerrd.com/
www.livingfoodsinstitute.com
http://cancermonitor.blogspot.com/20...reatments.html
http://www.creativehealthinstitute.com/wheat_grass.htm
http://www.healthquarters.org/
www.gerson.org
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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03-04-2010, 12:28 PM
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#45
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Senior Member
Join Date: Aug 2009
Location: Owasso, OK
Posts: 185
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Re: Going through a difficult time
Shelia,
I am so glad that you posted to give us an update, but heart broke for you and your family as I read this post. There are no words to say except that your her2 family is here for you, and will be here always for you. I am so sorry to hear of all that February has brought you and your family, and pray that there are better days ahead. Until you post again, please know that you will continue to be in the thoughts, hearts and prayers of many on this board.
God bless,
Hayley
__________________
Hayley
Oklahoma
3/35/2009 - Diagnosed, age 39
5/7/09 - Mastectomy and reconstruction started. Two tumors found. Tumors were side by side. DCIS tumor was 2.8 cm, ER-, PR-, grade 2. Invasive tumor was 1.1 cm, poorly differentiated, grade 3, ER+90%, PR+95%, HER2+3. Thankfully, no node involvement.
5/29/09 - Second surgery resulting from difficulty healing from mastectomy.
6/2/09 - Began Herceptin treatments
6/23/09 - Began Taxotere and Carboplatin treatments along with Herception every 3 weeks.
10/06/09 - Completed Taxotere and Carboplatin - Yeah!!!
10/27/2009 - Herceptin maintenance and began Femara
12/10/2009 - 2nd stage reconstruction surgery
2/2010 - Body rejected saline implant
3/18/2010 - Second stage reconstruction using silicone implant
5/4/10 - Completed Herceptin - YEE-HAA!
May '10 - Body rejects silicone implant...taking a break.
11/29/10 - Hysterectomy
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03-04-2010, 08:13 PM
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#46
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Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
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Re: Going through a difficult time
Sheila, I had no idea this was all going on! I've been so busy at work i haven't been on for awhile. I will say an extra prayer for you tonite! Hang tough...
__________________
Michele Ulmer
Dx.2003 Stage 3b 35 pos nodes
Dx August 2003 Stage 3B with 35/35 nodes IDC age 39
Lumpectomy
A/C x4 Taxol x12
35 radiation tx
1Year Herceptin in trial
HER2 vaccine trial Seattle
3 months Tykerb off label
NED
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03-04-2010, 09:19 PM
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#47
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Re: Going through a difficult time
Dear Sheila,
Prayers to you and your family. What a heavy load. So sorry that your parents and granddaughter got drawn into the mix too. We are going to have to mix up a special brew to help make things get better for all of you. Sending love and support your way.
Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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03-05-2010, 06:51 AM
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#48
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Senior Member
Join Date: Dec 2006
Posts: 415
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Re: Going through a difficult time
Oh Sheila~
Praying for great strength & comfort and endurance to come your way, as you deal with far more than your share of burdens.
Post if and when you can.
In the meantime, your family of friends are here, doing what we can to lighten the load for you and each other~
Keep the Faith~
Jessica
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03-05-2010, 07:34 AM
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#49
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Going through a difficult time
Sending prayers and thoughts your way. I hope you and yours are having the best day possible.
__________________
For Nicola
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03-06-2010, 01:19 AM
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#50
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Senior Member
Join Date: May 2006
Posts: 157
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Re: Going through a difficult time
Sheila,
I am so sorry to hear your news. You and your family are in my prayers.
Hugs,
KarlaV.
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03-06-2010, 04:19 AM
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#51
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Going through a difficult time
Sheila, how are things today? Just wondering & sending healing vibes.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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03-06-2010, 08:15 AM
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#52
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Member
Join Date: Feb 2010
Location: Riverside, CA
Posts: 19
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Re: Going through a difficult time
Dear Sheila,
Our thoughts and payers are with you.
__________________
Wifes Dx:
Found tumor 11-09
Biopsy 11-09 positive: IDC Stage 4 grade 3 Her2 +, 3 nodes of 16 positive.
Surgery 12-09
CT scan: liver mets
MRI of Head: clean
Bone scan: clean
1st treatment: 1-28-10
Taxotere & Herceptin every 21 days
6 rounds of Taxotere
Herceptin every 21 days (on going)
Liver mets...GONE!
CT scans,bone scans & MRI's NED
NED to date
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03-06-2010, 09:28 AM
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#53
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Senior Member
Join Date: Jan 2007
Location: I live in south Carolins, Anderson.
Posts: 40
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Re: Going through a difficult time
Hi, sheila,,
I fully understand about your difficult time right now and know you need some down time. God will never give you more than you can handle and if he takes you to it, he will take you through it.
I just recently had a blood clot to the brain and everyone thought it was strep throat. , but my onco got me on blood thinners in time and thankfully it wasn't a brain tumor.
hugs to your whole family,
kathy
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03-06-2010, 06:42 PM
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#54
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Re: Going through a difficult time
So sorry Sheila. You are dealing with so much. My
thoughts and prayers are with you. Take care of
yourself.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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03-07-2010, 12:53 AM
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#55
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Re: Going through a difficult time
Sheila, my heart and prayers go out to you and your family....
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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03-07-2010, 08:58 AM
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#56
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Senior Member
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
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Re: Going through a difficult time
Sheila,
I am sorry these words of compassion are so delayed!! (dang that work thing)
I can not imagine a more difficult time. Please know that as the earlier posts have indicated, you are a woman of AMAZING strength. Your story inspires everyone on the board to meet your standards.
Praying that you continue to receive strength and peace to sustain you during the challenges ahead.
More thoughts and hugs coming your way.
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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03-07-2010, 09:09 AM
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#57
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Re: Going through a difficult time
Sending you thoughts of strength and love. Hope you can feel it.
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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03-07-2010, 09:23 AM
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#58
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Re: Going through a difficult time
Hi Sheila, Thank you for sharing. I am sorry that you are going through such a rough time. It seems like we should get a pass on some of this stuff with all we must handle ... but it doesn't work that way. You are in my thoughts and prayers. Carolyn
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03-08-2010, 12:49 PM
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#59
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Going through a difficult time
Keeping you in my thoughts and prayers Sheila. ((((hugs))) xx
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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03-12-2010, 11:13 AM
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#60
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: Going through a difficult time
Sheila,
My prayers go out to you in dealing with all these issues. It's heart-breaking to see our family go through trauma and to also see to our own medical problems.
Jasmine is a real fighter. Last year your avatar was a photo of you and your grandchildren, and I remember seeing Jasmine with her long hair.
Sending you a lot of hugs,
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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