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10-11-2006, 06:43 PM
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#21
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Steph I know you will get through this and be fine in the end. I'll be sending positive thoughts your way on Thursday.
Keep us posted on your progress.
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10-11-2006, 07:36 PM
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#22
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Senior Member
Join Date: Sep 2005
Posts: 556
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Wish you all the best Steph, waiting to hear the good news.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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10-11-2006, 07:57 PM
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#23
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Keeping you in my thoughts and prayers. Your positive attitude will stand you in good stead.
________
Glass Smoking Pipes
Last edited by sassy; 08-22-2011 at 08:55 AM..
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10-11-2006, 10:06 PM
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#24
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Steph;
All the very best during your surgery and recovery. You will be in my prayers.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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10-12-2006, 12:23 AM
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#25
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Thanks so much everyone ...
... all these Good Wishes make me feel better already. I have eaten light and hydrated myself today. Now I am squeeky clean and ready to get up at 5:30am to check in at 6:30.
Yes, I do have some sense of relief that I am finally going ahead and dealing with this problem. I just hate all these setbacks, when it is not even the cancer doing it!!
See you in a few days 
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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10-12-2006, 04:21 AM
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#26
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Speedy Recovery Steph
I am sorry but I just today read your post about your surgery today.
If you do read your post from the hospital, of course I am sending you
all of my prayers today for your surgery.
I know you will do well. Your fighting spirit assures that.
Please let us know how you are soonest you are up to it.
Take strong my friend
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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10-12-2006, 04:23 AM
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#27
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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What courage and determination. I'm praying this morning for you Steph and also am grateful for strong women like you! God Bless and may your stay be brief and peaceful and UNEVENTFUL! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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10-12-2006, 03:20 PM
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#28
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Senior Member
Join Date: Sep 2005
Location: Central Valley, CA
Posts: 73
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Sending positive thoughts and prayers your way ....
Helen
__________________
- Diagnosed May 2005 8 months after giving birth. Stage IV due to a single liver mets.
- Carbo/Taxotere/ Herceptin combo for 6 months
- Herceptin/ Navelbine
- Recurrence on the same liver spot in 7/07
- Liver resection 9/07
- Tykerb/xeloda 10/22/07
- NED since 9/07 and continued Tykerb/xeloda
- PET/CT in May 2009 show small spot in lungs. Continued Tykerb/xeloda
- PET/CT in Aug 2009 shows progression on lung nodules (slightly bigger)
- Onc considering Taxol/avastin
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10-13-2006, 06:27 AM
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#29
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Senior Member
Join Date: Sep 2005
Location: Atlanta
Posts: 87
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Steph~
Thinking of you, praying for you. Sending lots & lots of love, light & rapid healing your way. Hope you're enjoying all the jello, over-cooked green beans & other gourmet hospital cuisine you heart desires!
I especially hope that you are able to rest & your nurses and docs are taking extra, special care of you...
Prayers, Faith & Courage!
Jess
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10-13-2006, 06:33 AM
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#30
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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Thinking of you that all will go wellPrayers
MCS (maria)
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10-13-2006, 06:37 AM
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#31
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Steph-
you're in our thoughts and prayers - thanks for always being so knowledgeable and caring.
Shell
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10-13-2006, 09:24 AM
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#32
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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I have been off for a few days...just rad your post this morning. Hope everything went well...wishing you a speedy recovery and home soon!!!
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10-13-2006, 06:35 PM
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#33
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Senior Member
Join Date: Sep 2005
Posts: 161
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Sending healing thoughts your way.
__________________
Diag. Oct. 2004 age 54 left breast
Stage 1 grade 3; 6mm IDC; unknown amount of DCIS
with comedo necrosis; node neg.
Nottingham Grade 7/9
ER 91% PR 62%; Her2 3.6 by ICH; KI-67 35%
Nov 2004 Lumpectomy; SNB failed so had
full axillary clearance;
Dec 2004 2nd lumpy for clean DCIS margins.
Jan/Feb 2005 4 A/C dose dense;
33 rads finished 6/2005;
Began 5 years Arimidex in 6/2005
No Herceptin
9/2007 Quit Arimidex due to severe side effects.
NED
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10-13-2006, 06:57 PM
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#34
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear Steph
Sorry am late . Hope it all went well and you are recovering.
love
linda
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10-14-2006, 01:24 AM
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#35
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Dear Steph,
Been off line all week, hope you're recovering well and without pain. We're all anxious for news.
hugs and love
sarah
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10-14-2006, 06:31 AM
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#36
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Senior Member
Join Date: Sep 2005
Posts: 202
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Dear Steph,
I haven't been on in a while either.....I hope you are recovering well and You are always in my prayers. Looking forward to your next post to hear the details.
__________________
Take care, k
DX: 10/29/03-Stage IIB, 3/12 nodes +, er/pr-,
Grade 3
MRM: 11/07/03
TX: TCH-BRICG Study-6 tx's; 12/15/03
Herceptin; til 12/14/04
Rads: 30 days
BRCA neg
S-Gap: 12/15/04
Oct 05: LAVH
NED
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10-16-2006, 11:32 AM
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#37
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Recovery
Steph, by now you are past some of this, and I am wishing you a steady recovery with no more bumps in the road. Hope to see you soon.
AlaskaAngel
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10-16-2006, 05:41 PM
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#38
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Senior Member
Join Date: Apr 2006
Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt.
Posts: 224
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kat in the delta
I will be thinking and praying for a full recovery and that everything will go smoothly. kat in the delta
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10-16-2006, 08:20 PM
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#39
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Hope they fix you up. Praying all works out. BB
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