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07-02-2011, 09:47 PM
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#1
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Member
Join Date: Jul 2011
Posts: 14
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neck lumps
Hello everyone, I'm new to this site, looking for some reassurance if there is any. I was diagnoised with stage 1 (small 8mm) breast cancer, right breast, on my breast muscle and also had LCIS in my left breast. I chose a double mastectomy. They removed about 5 lymph nodes. In third lymph node they found the HER2 gene. I am also Estrogen Pos and Progesterine pos. I had 12 rounds of Taxol plus Herceptin and am now on my 5th Herceptin alone treatment, 8more to go. I take Arimidex also. My problem is I have had two lumps in my neck which is worrisome to me since I also have CLL, chronic leukemia, stage 0. I heard the neck lumps could be caused by the Herceptin. Any thoughts? I will be seeing my hemotologist oncologist on Friday. Last time he checked he said its not bad, its not good???? Any thoughts?
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07-03-2011, 06:50 AM
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#2
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: neck lumps
Cam,
I've not heard of Herceptin causing neck lumps. The hematology oncologist is your 'chemo' doctor and he should be the one answer your questions. My 'guess' is that the lumps are cancer related - not good; they are also not enlarging - not bad.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
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07-03-2011, 09:33 AM
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#3
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Member
Join Date: Jul 2011
Posts: 14
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Re: neck lumps
Thanks Jackie for your reply. I'm also thinking it has something to do with the CLL. What throws me off is I went thru 3 months of chemo which should have helped. I also have two oncologists, one for the breast the other the CLL. They are both in the same department at Columbia. I guess I'll wait and see what is said on Friday.
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07-03-2011, 02:08 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: neck lumps
Hi Cam,
I'm sorry but I have'nt heard of this connected to Herceptin at all, I have a friend with CLL doing great (diagnosed after her bc) so hoping it's something easily treated in your case! 
Welcome to the site btw!!!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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07-03-2011, 04:07 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: neck lumps
Hi Cam,
Welcome to our wonderful site. You will be able to get lots of information and support here. The gals and men are a wondeful and very special group.
I was reading your post and just to be dx. with breast cancer and also have CLL is a full plate. But, keep this in mind very important....you caught your breast cancer in the early stage and your CLL is stage 0.
Herceptin has changed the stats for us Her2 gals.
I have not heard of lumps from the herceptin. Your dr. will check into the lumps in your neck. In the meantime take one step at a time. Not easy I am sure.
Sending you best wishes,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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07-04-2011, 06:00 AM
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#6
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Member
Join Date: Jul 2011
Posts: 14
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Re: neck lumps
Thanks Tricia and Jean for welcoming me to this site and also your encouraging words. I have to put my faith in my doctors skills and I always think of words I read in a chuch bulletin..."God chooses what we go through, we choose how we go through it."
Keep the faith!! Thanks again
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07-04-2011, 03:50 PM
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#7
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: neck lumps
Keep us posted on those lumps Cam and remember our symptoms are not always cancer related!!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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08-19-2011, 08:11 PM
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#8
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Member
Join Date: Jul 2011
Posts: 14
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Re: neck lumps
Finally saw my hemotology onc today. He said as far as the CLL I am still in stage 0. Neck lumps, which have gone down significantly, he thinks could be a from throat virus.
I had my 8th Herceptin only today. 5 more to go. Yea!!
__________________
Cam
6/00 DCIS left breast - lumpectectomy
LCIS both breasts
Evista 2001 thru 8/2010
8/10 diagnoised w/ Stage 1 invasive carinoma right breast
10/14/10 skin/nipple sparing double mastectomy with reconstruction
right breast - no carcinoma identified 3 axillary sentinal lymph nodes - no carcinoma in 2 right axillary sentinal lymph nodes
left breast LCIS no invasive carcinoma
ER/PR + HER2+ (HER2 gene found in a lymph node)
12/29/10 thru 3/18/11 - 12 weeks of Taxol/Herceptin - March 25th started 3 week Herceptin only treatment.
Right expander had to be removed before chemo due to infection. Replaced in June 2011. I had surgery on the 17th of November, replaced expanders with silicone implants and had my port removed.
Last Herceptin 12/2/11 YEA!!!
4/22/11 started Arimidex
6/15/11 started Boniva
Feb. 2012 started Wellbutrin for depression.
3/26/12 Surgery to try to fix reconstruction.
8/30/12 revision reconstruction surgery.
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08-20-2011, 06:57 AM
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#9
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: neck lumps
Great news on the neck lumps Cam. Hopefully they will continue to go down and disappear entirely.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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