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Old 11-14-2013, 09:47 PM   #1
Pray
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Bone scan osteopenia?

Does anyone else have osteopenia from treatment or aromasin? My onc. Is talking about having me go back on zometa once a year. Anyone else taking a yearly dose? Thanks for any advise .
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dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 11-14-2013, 11:27 PM   #2
Rejoyce
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Re: Bone scan osteopenia?

I am on Femara and I have osteopenia now. I get a reclast infusion every 2 years
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Old 11-14-2013, 11:59 PM   #3
Pamelamary
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Re: Bone scan osteopenia?

I think it is generally accepted that the AIs like Aromasin worsen the lessening of bone density that often is part of ageing. I developed osteopenia after several years on Arimidex. As I am on Denosumab anyway, I hope that it is keeping this problem under control.
An annual dose of zometa sounds like a good plan, and of course you need to watch calcium and vitamin D levels, as well as trying to do weight-bearing exercise.
So many women have osteopenia - I hope it doesn't cause too many problems for you.
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Old 11-15-2013, 06:15 AM   #4
Pray
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Re: Bone scan osteopenia?

Thank you ladies for your response. One thing that is worry some to me is I have been taking 2000 mg vitamin D a day all along?
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 11-15-2013, 07:16 AM   #5
caya
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Re: Bone scan osteopenia?

I went from osteopenia to osteoporsis after switching from Tamoxifen to Femara. I had once IV of Reclast, and then after I finished my 2 1/2 years of Femara I redid the bone scan. Back to osteopenia... my endocronologist is very happy with this result, wants me to continue on Vitamin D3 ( I take 4000 IUD/day) 1200 mg. calcium and 1000 mg. magnesium. Is holding off for now on another Reclast IV, will see next year what my bone scan shows.

Osteoporosis runs in my family (my mother and her 2 sisters both have it) so I figured I would be certain to have it too - at some point. I had osteopenia before treatment, but the docs all feel the Femara definitely brought on full blown osteoporosis. As others have stated, this is a common s/e of AIs. But I am living proof it can be reversed after cessation of Femara and/or having the Reclast (or Zometa) infusion.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!

Last edited by caya; 11-15-2013 at 09:52 AM..
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Old 11-15-2013, 08:25 AM   #6
jaykay
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Re: Bone scan osteopenia?

Hi,

I had osteopenia before I started on Femara the first time (early menopause, family, etc). Took all the usuals - Fosamax, Actonel.

Had my first Reclast injection about 3 years ago and I've been holding my own in spite of 5 years on Femara. Had another injection just about 4 months ago since I am back on Femara again for the foreseeable future. Figure to do Reclast every 2 years.

I also exercise, take 2000 mg of D3 and 1500 mg of calcium.
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March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 11-15-2013, 08:48 AM   #7
linn65
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Re: Bone scan osteopenia?

At work we have a wellness program where you put the heel of your foot in this contraption and they told me I had Osteopenia. Arthritis does run in my family...Anyway, they told me to go to my primary doctor with all my results and the 3 things they detected were high cholesterol/tryclerides (sp) and Osteopenia. My doctor said well that test is not real accurate but he ordered some type of X-ray (I cannot remember what they called it-it was like 7 years ago). I thought it was a waste of a test but I did it anyway and sure enough it showed I had Osteopenia.

I haven't taken anything for it, but I do remember he said to take so many mg of vitamin D with magnesium/zinc in it, I think. Now, since this cancer deal, I think more about my health which prior I took for granted.

If I knew exactly how much and what kind of Vitiman to take I would. I am glad you asked this question...Call me lazy I don't want to figure it out I just want to be told what to do.

I did read when I started taking the tamox that it helped with your bones, so I thought oh GOOD!!
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myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 11-15-2013, 08:56 AM   #8
linn65
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Re: Bone scan osteopenia?

I am 48 started this stuff at 46, and I was not in menapose, but forced into it with chemo. However, I read somewhere I think that it can reverse too after done with chemo.

I don't know what Zometa is?? How do they check Vitamin D levels, do doctors do that?

And there are injections you can get for osteopenia???
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 11-15-2013, 01:54 PM   #9
Pray
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Re: Bone scan osteopenia?

I have my vitamin d checked in blood work. It was 11 when dx. Has never been over thirty now. I love hearing the treatment rebuilds your bones! I'm defiantly upping my D and 1 iv a year sounds good to me. Although we have settled in zometa just yet. Peace my friends
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 11-15-2013, 03:32 PM   #10
tricia keegan
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Re: Bone scan osteopenia?

I had Osteopenia and have been having a twenty minute once yearly iv of Zometa for the past three years, my last Dexa showed a huge improvement so its really paying off and I plan to continue on this med.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 11-17-2013, 09:40 PM   #11
Pray
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Re: Bone scan osteopenia?

Thank you everyone! I love that I can reverse the osteopenia ! You made my day!
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 11-18-2013, 12:25 AM   #12
BonnieR
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Re: Bone scan osteopenia?

I developed it during treatment. Saw a bone specialist who had me on Actonel and whatnot. Calcium and Vit D. I improved following treatment and he discontinued the meds saying his goal had been to get me safely through treatment. Mission accomplished!
Keep the faith
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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