 |
|
10-13-2008, 07:54 AM
|
#1
|
|
Senior Member
Join Date: Jul 2008
Location: Murfreesboro, Tennessee
Posts: 48
|
Lifetime Movie on Herceptin
Just wanted to post that, at least in my cable area, Lifetime Movie "Living Proof" about Dr. Slamon and development of Herceptin starring Harry Connick Jr. and Bernadette Peters is showing Saturday Oct 18th at 8. I have the Tivo set and ready to go!
__________________
Dx June 2008, Age 44
Mother Dx age 54, deceased
1.2 cm tumor right breast, grade 3, ER 4+; PR 3+
HER2 +, invasive ductal carcinoma
Quadrantectomy right on 7/30/08
Path report, all 3 nodes taken were clear!!!!!!
Lymphatic/vascular invasion and sent out BRCA testing
Port in on 9/2/08. Chemo began 9/3/08. TCH (MUGA wrong - echocardiogram says 65% cardiac MRI 59% 9/10/98 elevated liver enzymes, PET scan 9/16/08 all clear.
TC ended 12/17/08
Port blood clot and hosp. 1/2/09
radiation begins 1/8/09
BRCA testing done - results NEGATIVE!
cardiologist said go back to coreg as it helps counteract heart effects of herceptin and slowly increase dosage - now 40mg daily.
|
|
|
|
10-13-2008, 08:00 AM
|
#2
|
|
Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
|
Thanks for the reminder Rebecca! Also Congrats on the negative BRCA test,
Hugs marcia
|
|
|
|
|
10-13-2008, 12:02 PM
|
#3
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Rebecca, I really appreciate the reminder. It seems I have the worse case of chemobrain possible. It's darn right embarrassing how bad it is. Reminders like yours will help burn it in my brain. lol I am so looking forward to watching this movie...I don't have tivo so I have to depend on my brain...scary! haha
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
|
10-13-2008, 03:23 PM
|
#4
|
|
Senior Member
Join Date: Sep 2005
Location: Ohio
Posts: 212
|
I am really looking forward to watching this movie, too. Wish everyone on this board could get together for a viewing party, but I know we'll all be together in spirit, cheering on our hero, Dr. Dennis Slamon, and all those brave women who signed up for the early clinical trials of Herceptin
__________________
Audrey
diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
|
|
|
|
|
10-14-2008, 08:39 AM
|
#5
|
|
Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
|
Just bumping this up since there is quite some interest in this topic and many of us may not have seen this post.
Maria
__________________
--------------
Dx'd 8/04 at 41
Stage 1 for some onc's; Stage II for others (if you add up the sizes of all tumors).
Infiltrating DCIS
HER2+, ER+10% & PR-
.9cm tumor not visible on mammo, but palpable; visible on ultrasound
Lumpectomy/ clear margins, no nodes
Had Breast MRI after lumpectomy that revealed two more tumors in same quadrant(.4cm and 1.6cm) that were not visible on either mammo or ultrasound.
Re-excision
DD AC+T; Herceptin one year
Rads
NED/Taking Tamoxifen reluctantly
--------------
|
|
|
|
|
10-14-2008, 08:58 AM
|
#6
|
|
Senior Member
Join Date: Jul 2008
Location: Murfreesboro, Tennessee
Posts: 48
|
Just a little further information - the TV guide has it in my area as 8:00 pm on Saturday.
__________________
Dx June 2008, Age 44
Mother Dx age 54, deceased
1.2 cm tumor right breast, grade 3, ER 4+; PR 3+
HER2 +, invasive ductal carcinoma
Quadrantectomy right on 7/30/08
Path report, all 3 nodes taken were clear!!!!!!
Lymphatic/vascular invasion and sent out BRCA testing
Port in on 9/2/08. Chemo began 9/3/08. TCH (MUGA wrong - echocardiogram says 65% cardiac MRI 59% 9/10/98 elevated liver enzymes, PET scan 9/16/08 all clear.
TC ended 12/17/08
Port blood clot and hosp. 1/2/09
radiation begins 1/8/09
BRCA testing done - results NEGATIVE!
cardiologist said go back to coreg as it helps counteract heart effects of herceptin and slowly increase dosage - now 40mg daily.
|
|
|
|
|
10-14-2008, 10:28 AM
|
#7
|
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
Can't wait!
Lexi
|
|
|
|
|
10-14-2008, 02:23 PM
|
#8
|
|
Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
|
I just found it on Dish at 6:00 on the west coast. I've got it set now to record.
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
|
|
|
|
|
10-14-2008, 02:34 PM
|
#9
|
|
Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
|
I've got my phone alarm set to go off on Saturday to remind me!
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
|
|
|
|
|
10-14-2008, 03:25 PM
|
#10
|
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
Unfortunately this wonderful movie is only available in the US - I checked the Lifetime website and the information in the FAQ section states that this channel is not available outside the US. I am very disappointed.
I hope it will be available to buy on a DVD. I think I recall Joe may have mentioned he was trying to arrange this.
Any update Joe?
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
|
|
10-14-2008, 10:05 PM
|
#11
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Caya, Even though I plan on watching it I still want a copy of it on DVD. I'm pretty sure after the movie airs they will have DVD's available.
I found one article that mentioned a big party they had for the actors that were in the movie...& it went on to mention that Peggy Siegal went up to Laura Bush & gave her a DVD of "Living Proof". So I'm hoping we will all be able to get our hot little hands on a copy after Oct. 18th. 
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
|
10-17-2008, 03:02 PM
|
#12
|
|
Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
|
Reminder
Tomorrow -- SATURDAY, OCT. 18 -- Lifetime channel --
DO NOT FORGET!
The movie about Herceptin and Dennis Slamon's remarkable journey to help save thousands of lives...
My DVR is set!
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
|
|
|
|
|
10-17-2008, 04:07 PM
|
#13
|
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Wish I could see it, please fill me in after!!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
|
|
10-17-2008, 04:14 PM
|
#14
|
|
Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
|
So I've been waiting for all these months for this movie and wouldn't you know it...my daughter has a Sweet 16 to go to (4 pm to 10 pm). It's about 40 minutes from home, and the movie starts at 9 pm here. After the party, we are driving to Connecticut so that we can be in New Haven bright and early for a tour of the U of NH campus for my daughter. Both my kids will be gone in the fall  . I have my sister armed and ready with the Tivo so I can watch it when I get to her house after midnight. I have my friend doing the same here so I can go to her house and watch it on Monday if need be...Don't forget the tissues!! I cry every time I see the commercial. I am going to be a blubbering idiot watching the movie....
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
|
|
|
|
|
10-17-2008, 09:23 PM
|
#15
|
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
Nah!
Maryann, you will NEVER be a blubbering idiot!
Maybe blubbering - but NOT an idiot. And that's final.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
|
|
10-18-2008, 11:26 AM
|
#16
|
|
Senior Member
Join Date: Jun 2007
Posts: 216
|
Like tricia, I wish I could see it.
Joe can you try and get a dvd sorted for this as I feel I am still here because of Dr Slamon and then this very accurate informative site with such genuine people to keep us going in the uk.
Thank you Christine and Joe
|
|
|
|
|
10-18-2008, 01:00 PM
|
#17
|
|
Senior Member
Join Date: Nov 2005
Posts: 943
|
I'm going to try to watch it, if it doesn't stir too many emotions for me. I read the book and I cried throughout it, knowing what these women were fighting and this was years before I ever knew I had her2 breast cancer. So whew, now I get to watch the movie, knowing I'm a her2 girl, awesome and kind of scary too, but thank God for Herceptin and for Dr. Slamon.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
Last edited by RobinP; 10-18-2008 at 01:55 PM..
|
|
|
|
|
10-18-2008, 01:52 PM
|
#18
|
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Joe, Like Janie in the UK it would be fabulous if you get dvd's of this that will show here. Please keep us posted if you do!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
|
|
10-18-2008, 03:48 PM
|
#19
|
|
Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
|
I am also very disappointed that I won't be able to see it down here in Mexico. (Sniff!). Hope we can get DVD's later. I have the American Network on anyway on my TV, just to see if by any chance there is something there. To all of you who can see it, please enjoy it!!!. Love to all,
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
|
|
|
|
|
10-18-2008, 05:45 PM
|
#20
|
|
Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
|
i've got my red wine with me ready to watch it!! I'm really excited!!
__________________
Michele Ulmer
Dx.2003 Stage 3b 35 pos nodes
Dx August 2003 Stage 3B with 35/35 nodes IDC age 39
Lumpectomy
A/C x4 Taxol x12
35 radiation tx
1Year Herceptin in trial
HER2 vaccine trial Seattle
3 months Tykerb off label
NED
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 01:03 PM.
|
Linear Mode
