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01-09-2013, 01:20 PM
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#1
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Senior Member
Join Date: Sep 2012
Posts: 62
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Portecath Question
I've had my port for almost 9 months now and it doesn't move around like it use to. Does tissue grow to, or around it that would cause it not to float around?
__________________
**********************************
05/2011 Mammogram - Clear
3/12/12 Found Lump Lt Breast (BSE).
3/13/12 44th Birthday, Mammogram, Ultrasound.
3/15/12 Needle Biopsy on Lump and Suspicious Node.
3/20/12 Dreadful "C" Word.
ER90% PR90% Her2+
1 cm, IDC, Stage 1, Grade 2
4/19/12 Portecath, Lumpectomy & Sentinel Node Removal. 0/4 Node Involvement...Yea!!
Margins Clear......Yea!!
5/17/12 Chemo Begins. TCH x 4.
Herceptin Weekly x 4, every 3 wks thereafter for 1 yr. Muga Scans every 3 mos.
8/13/12 Rads x 30
9/24/12 Start Tamoxifen
10/22/12 CT/Whole Body Bone Scan. No Cancer Detected......Yea!
1/31/13 Annual Mammogram and Ultrasound....NED....:)
5/23/13 Final Herceptin Appt
6/25/13 Port Removal
5/2017 Stop Tamoxifen (Thickening of Uterine Walls)
5/2017 Start Arimadex
6/2018 Start Lupron Shot
9/2019 Stop Arimidex and Lupron Shot
6/2020 Last Oncology Appt
4/2024 NED (No Evidence of Disease)
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01-09-2013, 09:56 PM
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#2
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Senior Member
Join Date: May 2006
Location: Mesa, Az
Posts: 219
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Re: Portecath Question
yes the tissue does "grow,adhere" and kinda hang on to the port a little more once it starts to settle in a little more, don't forget to get it flushed according to Dr recommended frequency
Darita
__________________
dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
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01-09-2013, 10:10 PM
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#3
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Senior Member
Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
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Re: Portecath Question
I've had mine for 6 years and it stills moves a bit. As long as there's no trouble with it working, I wouldn't be concerned. 
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.
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01-10-2013, 06:40 AM
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#4
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Senior Member
Join Date: Sep 2012
Posts: 62
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Re: Portecath Question
Thank you for your replies. My Muga scan in November showed injection fraction was low, so I skipped a Herceptin infusion in December. Next appt on Monday but no one mentioned it needing to be flushed.
__________________
**********************************
05/2011 Mammogram - Clear
3/12/12 Found Lump Lt Breast (BSE).
3/13/12 44th Birthday, Mammogram, Ultrasound.
3/15/12 Needle Biopsy on Lump and Suspicious Node.
3/20/12 Dreadful "C" Word.
ER90% PR90% Her2+
1 cm, IDC, Stage 1, Grade 2
4/19/12 Portecath, Lumpectomy & Sentinel Node Removal. 0/4 Node Involvement...Yea!!
Margins Clear......Yea!!
5/17/12 Chemo Begins. TCH x 4.
Herceptin Weekly x 4, every 3 wks thereafter for 1 yr. Muga Scans every 3 mos.
8/13/12 Rads x 30
9/24/12 Start Tamoxifen
10/22/12 CT/Whole Body Bone Scan. No Cancer Detected......Yea!
1/31/13 Annual Mammogram and Ultrasound....NED....:)
5/23/13 Final Herceptin Appt
6/25/13 Port Removal
5/2017 Stop Tamoxifen (Thickening of Uterine Walls)
5/2017 Start Arimadex
6/2018 Start Lupron Shot
9/2019 Stop Arimidex and Lupron Shot
6/2020 Last Oncology Appt
4/2024 NED (No Evidence of Disease)
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01-10-2013, 05:02 PM
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#5
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Portecath Question
I think every six weeks is the norm for flushing the port.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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01-14-2013, 07:30 PM
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#6
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Senior Member
Join Date: Feb 2010
Location: TN
Posts: 175
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Re: Portecath Question
I had my port removed today and I brought up this subject of movement as I discussed the procedure with the surgeon before starting. I was told that the port really shouldn't move much since it is sutured (tied) into place on the chest wall. I had mine in for 3-1/2 years and never noticed it moving about. I could even feel the knot used to secure the suture. At any rate, my surgeon recommended that I have the port taken out since I was not actively receiving infusions and since there is always a risk of infection during the flushing process. For what its worth, my infusion nurse told me that they once had a patient (man) who didn't have his port flushed for several years. Something came up where the port was needed again. She said it worked just fine for him but she didn't receommend I follow that fellow's example. I didn't and now my port is history. I hope I never need another one.--bird
__________________
Male Breast Cancer, DX 5/15/09, IDC, STAGE 1, 1.7 cm, HER2+++, ER+(95%)/PR+(75%), Ki67 40%, grade 3, 0/5 nodes, TX: mastectomy, TCH finished 7/19/10, radiation 6 wks., Tamoxifen on going, bisphosphonate 24 mos.
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01-14-2013, 09:41 PM
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#7
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Senior Member
Join Date: Sep 2012
Posts: 62
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Re: Portecath Question
Congratulations Bird on your port removal. I too hope you never need it again. 1 round with this beast is more than anyone should have to deal with.
__________________
**********************************
05/2011 Mammogram - Clear
3/12/12 Found Lump Lt Breast (BSE).
3/13/12 44th Birthday, Mammogram, Ultrasound.
3/15/12 Needle Biopsy on Lump and Suspicious Node.
3/20/12 Dreadful "C" Word.
ER90% PR90% Her2+
1 cm, IDC, Stage 1, Grade 2
4/19/12 Portecath, Lumpectomy & Sentinel Node Removal. 0/4 Node Involvement...Yea!!
Margins Clear......Yea!!
5/17/12 Chemo Begins. TCH x 4.
Herceptin Weekly x 4, every 3 wks thereafter for 1 yr. Muga Scans every 3 mos.
8/13/12 Rads x 30
9/24/12 Start Tamoxifen
10/22/12 CT/Whole Body Bone Scan. No Cancer Detected......Yea!
1/31/13 Annual Mammogram and Ultrasound....NED....:)
5/23/13 Final Herceptin Appt
6/25/13 Port Removal
5/2017 Stop Tamoxifen (Thickening of Uterine Walls)
5/2017 Start Arimadex
6/2018 Start Lupron Shot
9/2019 Stop Arimidex and Lupron Shot
6/2020 Last Oncology Appt
4/2024 NED (No Evidence of Disease)
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