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06-25-2006, 03:16 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Wellsburg, WV
Posts: 26
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update on urostomy
I have been in hospital for almost 2 weeks, again. This time, as in the last 5 admits since Jan, it was for my kidney and ureter. I could not take the pain anymore so decided to go with the surgery. The good news is that it will NOT Be a urostomy, but a nepherostomy stent insertion. The make a small slit in your back and slip a small catheter into area and attach this to a bag tied to your leg. This process is reversable. Any way, went to our small community hospital to have it done and was on table, face down and urologist said, your Kidney if fine, I am not going to do this. I told him that we knew my kidney was fine and that since I only had 1, was trying to save it. He knew all this and still pulled this stunt. I demanded tio be released from hospital that day, came home and called specialist's office. They worked all day to get ne into a hospital in Pittsburg, got it done and I had the surgery on Thursday. Came home on Friday, and we were able to have our party that we had been planning for months. We celebrated our 35th wedding anniversary with lots of family and good friends. It was such a wonderful day!!!!!!
I don't like wearing this bag on outside, but for the first time since Jan that I have been pain free. Thank your Lord for small miricles. Instead of worring about my looks, I should have been ( and now am) thankful that there was something out there that could help me.
God Bless to all and thank you for listening.
Sherry
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06-25-2006, 06:40 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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So glad that things finally worked our for you and you were able to enjoy the party!
Best Wishes,
Sassy
________
PrettyPusa
Last edited by sassy; 08-22-2011 at 08:49 AM..
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06-25-2006, 07:01 AM
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#3
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Senior Member
Join Date: Mar 2006
Posts: 306
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Wow! You may not feel like this, but I see 'warrior' as one of your middle names! You obviously knew just what you wanted, were ready to DO, in order to stop your pain; save your remaining kidney. Knowing about the 'bag' in advance, the trade off being painfree...
And I am so delighted for you that this surgery has done just that!
When I had the temp bag after hysterectomy, I wore those elastic/drawstring pants that are a bit baggie otherwise, sort of crinkle cotton? mid-calf length. Hope you can find something similar that YOU like and that will help you 'deal' with the added bulk........
BIG hugs,
xoxoxpattyz
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06-25-2006, 08:43 PM
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#4
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Wow, what a story. I'm glad your results are acceptable. Best of luck. BB
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06-26-2006, 03:54 AM
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#5
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Sherry,
I can't begin to imagine being on the table ready for a procedure and having the doc come in and say he isn't going to do it! It takes so much mental preparation for things like that! I'm glad that you got a better doctor. Best of luck to you.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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