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Old 11-06-2009, 01:10 PM   #1
julierene
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Location: Illinois
Posts: 327
Re: Waiting on Trial, got Brain Mets...

I kinda wish I had an way to just burn it all from my mind. His Mormon beliefs disgust me to this day, (sorry to any Mormons I may have offended) and I feel like I will forever be the victim of my own lack of judgment. I find it hard to forgive myself for the man that I chose.
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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Old 11-06-2009, 02:12 PM   #2
MJo
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Location: Wilmington, Del.
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Re: Waiting on Trial, got Brain Mets...

Time will help you forget. And you need to destroy those mets so you have lots of time. I made a horrendous choice too and lost 6 important years of my life in my 20s. I comfort myself that I never have to be that stupid again. It's really a comfort. Just think..you never again have to be that stupid about a man. You never have to live that way again. As the song goes "I'm so glad I'm not young anymore."
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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