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Old 08-09-2006, 07:24 AM   #1
RhondaH
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Exclamation ***Please read my speech and provide input***

the MAIN sticking point (but if you notice any others, please advise) is the bold area and the "tenses" can anyone offer any suggestions? My speech is tomorrow (8/10/06) morning at 8am est. Thanks for ALL your help.

Rhonda

"Not only am I one of the many employees at Foremost Insurance Group who has been touched by breast cancer, but I am also an 18-month survivor and today I am celebrating. Today, not only am I celebrating what will HOPEFULLY be my last infusion of Herceptin, but I am ALSO celebrating all the people that shared with me this “journey”, though it was by all means no "walk in the park". I celebrate the skilled surgeons who painstakingly removed the tumor. I celebrate the aggressive YET supportive oncologists who give us the treatment that will hopefully make us better. I celebrate the motherly nurses who “react” with every ache and pain we have. I celebrate the friends that we have made in the treatments facilities and support groups who either HAVE or WILL receive treatment and either shared their experiences with us or we with them. I celebrate the loving family and friends who accompanied us on doctors appointments, cooked meals for us, kept our homes in order, entertained our children so that we could rest & lent a shoulder to cry on when we just needed to “let go”. I celebrate the employers who support the employee while undergoing treatment, making it easier for them to concentrate on “getting better” and I celebrate the memories left behind by the men and women who fought hard, brave battles that, in the end, their bodies could no longer endure - though their spirits survive. I encourage you to take this opportunity to team up with the American Cancer Society (the nation’s leading voluntary health organization) in the fight against breast cancer (the number one concern of American women today). Breast cancer is up to 97% survivable when detected early- we are helping to inform women about the importance of early detection. Mammograms save lives! Our team will be there at Calder Plaza on October 14, to help make breast cancer “a thing of the past.” Our team will be there rain or shine, leading greater Grand Rapid’s fight against breast cancer, and we hope you’ll be there to join us."
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Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln

Last edited by RhondaH; 08-10-2006 at 02:38 AM.. Reason: correction that Steph caught:)
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Old 08-09-2006, 10:35 AM   #2
Vi Schorpp
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The power of one

Rhonda, it's a great speech. Most people don't realize you can talk about breast cancer and celebration in the same sentence, let alone an entire speech. Well done.

I’d like to quote Edmund Everett Hale:

I am only one, but still I am one. I cannot do everything, but still I can do something; and because I cannot do everything, I will not refuse to do something that I can do."

Like Christina and Joe, you can do something, and you do. Not only on the board, but in the community. Thanks so much!

Last edited by Vi Schorpp; 08-09-2006 at 10:38 AM.. Reason: centering problem
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Old 08-09-2006, 06:33 PM   #3
Berta
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Rhonda; Great Speech, I don't think you need any changes. BERTA
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Old 08-09-2006, 06:43 PM   #4
Lolly
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Yes, very good speach Rhonda...and may I add you are REALLY BRAVE to be able to get up in front of people and talk about your experience and reflections on BC. I have a fear of talking in front of groups, although I'm fine one on one. So I greatly admire you for doing this. Good luck and let us know how it goes!

<3 Lolly
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Old 08-09-2006, 07:01 PM   #5
StephN
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Wink

Hi Rhonda -
Do you mean that your speech is on 8/10 instead of 8/1 ?? That threw me for a moment.

I wonder if you are celebrating for YOU or for all the others as well. You have a lot of "we's" in the text and I thought you were celebrating YOUR last treatment.
One more thought. I am not partial to the word "journey" when describing all we go through for cancer treatment. How about something like "shared the hard times and good times" or something more descriptive, as this is NOT a walk in the park.

I know you will speak out loud and clear and get your message out.
Congratualtions on finishing your adjuvent treatments. And I wish you well that this is a good crossroads in your life.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 08-09-2006, 07:17 PM   #6
LOPSIDED
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RHONDA, YOUR AN INSPIRATION. THIS DISEASE HAS SHOWED ALL OF US JUST HOW STRONG WE ARE, I'LL BE THINKING OF YOU ON THURSDAY.
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SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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Old 08-09-2006, 07:41 PM   #7
IRENE FROM TAMPA
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Thumbs up I think ii's a wonderful speech

and it truly moved me .

Thank you for including us all in your journey Rhonda.........

You go girl
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1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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Old 08-09-2006, 09:12 PM   #8
chrisy
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Thumbs up Beautiful speech!

Rhonda, your speech brought tears to my eyes! I would offer only one suggestion, the following sentence
"I celebrate the memories left behind by the men and women who fought hard, brave battles, that though their spirit survives, their bodies could no longer endure."
is so powerful, and true. I might reorder it a bit as follows:
"I celebrate the memories left behind by the men and women who fought hard, brave battles that, in the end, their bodies could no longer endure - though their spirits survive."


You are amazing!
Chris
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 08-10-2006, 02:45 AM   #9
RhondaH
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Thumbs up Thank you ALL for your input...

corrections made (the best I could) and the final is printing. Lolly, no I TOO am scared to death...we'll see how it goes. Steph, yes the 10th is correct (my proofreaders eye didn't correct it, but I just now edited it) I agree with you on the word "journey" and when tried to find something comperable in Rogets, most words were "travel" oriented, so I hope you like the "compromise" I made. Though I am celebrating, many others can relate (though some cannot) and I wanted to HOPEFULLY make it an "all inclusive" celebration, for all the reasons I listed ( I hope I accomplished this), so I guess the I's and We's stay. Chris, just the change I needed...it sounds MUCH better with ALL your suggestions...I love and cherish you all. Take care and God bless.

Rhonda
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 08-10-2006, 05:14 AM   #10
fitztwins
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You will do great! Maybe I will see you in October. By the way...I am hosting a crop for cancer in November. Scrapbooking event!
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Enjoy Every Sandwich


dx 12/2004, er/pr+ her2+++ Stage IIIC
AC/Taxol dd 4/4,33 Rads,
Herceptin ( every 3 weeks) 5/05-5/06,
Tamoxifen 1 year
Femara 2 years
dx with Mets to pelivs bone 6/08,
herceptin, 6 tx Taxotere, rads, zometa
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Old 08-10-2006, 05:15 AM   #11
koolbreeze
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I thought it was fabulous! Thanks for sharing. Linda
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DX 3/05
Stage IIB 1.3cm w/ lymph node involvement
ER+++PR+, HER2+++ G3
Surgery - Left mastectomy 4/05, Lymph node removal 5/05, breast expander removal 6/05, partial thyroidectomy 7/05, Right mastectomy 1/06
Post Menopausal due to hyserectomy 2/03 (took hormone replacement)
Treatment - A/C, Taxol and Herceptin, Herceptin only (finish 10/06), Arimidex daily.
Age 50
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Old 08-10-2006, 06:06 AM   #12
al from Canada
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Rhonda,

That is truly outstanding.......you are a credit to all. One thing to consider, when you talk about BC is the #1 threat to women, may mention that 1 in 8 will get it in their life time....or is it 1 in 7 now???
Good luck,
Al
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Old 08-10-2006, 08:25 AM   #13
RhondaH
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Smile WELL...it's over...AND...

I bawled all the way through it (had a hard time seeing the paper through the tears), but everyone said I did fine. Janis, I would LOVE to meet you, maybe as it gets closer, we can meet or take the kids (if yours are coming too, as Tony went last year and can't WAIT for this year) for lunch after. Also, I have TONS of scrapbooking that needs to get done (I started a book when he was a baby and got 4 pgs done, all the stuff is together, though not sorted and I'm excited I have an area in the basemet to work on it) if you don't mind my "hording in" may I come? If so, please let me know time, date, details etc. Al, actually the American Cancer Society speaker brought up the 1 in 8 topic. It was a VERY emotional time, EVERYONE was crying through the whole thing. Now to get through this afternoon. Take care and God bless.

Rhonda
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 08-10-2006, 08:44 AM   #14
fitztwins
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Smile

Rhonda! You are so invited to my scrap. I will email you the stuff! I would love to have you. All the $$ raised goes to BC.org. Maybe we can make a donation to this site too! =0)


Janis
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Janis

Enjoy Every Sandwich


dx 12/2004, er/pr+ her2+++ Stage IIIC
AC/Taxol dd 4/4,33 Rads,
Herceptin ( every 3 weeks) 5/05-5/06,
Tamoxifen 1 year
Femara 2 years
dx with Mets to pelivs bone 6/08,
herceptin, 6 tx Taxotere, rads, zometa
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