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07-12-2006, 07:59 AM
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#21
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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article
There are many articles on the interenet about these infections. Since one of Sandy's intentions to make us aware of them, here is an article:
http://www.health.state.mn.us/divs/i...community.html
Best regards,
Barbara H.
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07-12-2006, 08:19 AM
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#22
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Senior Member
Join Date: Oct 2005
Location: Minneapolis, MN
Posts: 189
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Sandy,
So sorry. May the Lord's presence with His love, comfort and peace surround you and your family.
Cheryl
__________________
Cheryl
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07-12-2006, 08:20 AM
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#23
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Oh Dear Sandy - I am so sorry. There is nothing I can say to make this any better. This is so terrible and such a loss. You and your family are always in my prayers...
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07-12-2006, 10:09 AM
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#24
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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in support of more careful use of antibiotics
Dear Sandy,
I try to imagine what it would be like to lose my sister so suddenly, and I am so sorry at the news of your sister. I know you knew about the issue of staph infections but thank you especially in your time of hardship for as always bringing it to the attention of others who are immunocompromised.
So I will add a comment of my own about the issue of staph infections. One major reason the serious kind of staph infections have become more common is because so many people who come down with relatively minor illnesses that are very frequently viral in nature and do NOT benefit from antibiotics have pushed the doctors to give them antibiotics because they believe they might not have to put up with the minor illness for quite as long as it takes while their body fights it off on its own. This frequent use of antibiotics for the wrong reasons is resulting in more people who can become resistant to the first level of antibiotics and that ends up leaving only the ones used to fight the more serious kinds of staph infections. Doctors have been warning us about this problem for a long time. As I understand it, it has been decades since there has been the development of additional antibiotics.
AlaskaAngel
Last edited by AlaskaAngel; 07-12-2006 at 10:11 AM..
Reason: grammar
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07-12-2006, 10:33 AM
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#25
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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I am so very sorry about your loss. Sisters shares a special bond. May you find comfort somehow. I will keep you in my prayers. Take care.
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07-12-2006, 11:24 AM
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#26
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Dear Sandy -
Having roomed with you twice in San Antonio, I know you a little better. You are a very practical person with that Northeast "no nonsense" type personality.
We all certainly appreciate your posting this tragedy as a warning, but we can't help but be shocked and feel sad for the sudden loss to the family. (I could barely put myself in your shoes as I have 2 very dear sisters, both younger and in good health.) {{{hugs}}}
Regarding the staph germs - this is why they pumped me full of $1,600 worth of antibiotics while I was in the hospital last month with my lumbar drain. One other thing. When the resident chief came to see me and saw I had an IV in my hand, he ordered the nurse to remove it and use my port.
Also why my GP was shaking his head and rolling his eyes when he heard about my recent stay in the hospital. He knows those risks. Fortunately, I gambled and won this time.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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07-12-2006, 12:12 PM
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#27
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Dear Sandy,
I am so very sorry to hear about your sister's sudden death. My heart goes out to you.
Sarah
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07-12-2006, 12:27 PM
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#28
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Sandy;
I am so sorry for your loss. You are so correct in reminding us about the dangers of hospitals but what a horrible way to be reminded. My thoughts are prayers are with you and your family.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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07-12-2006, 12:58 PM
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#29
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Senior Member
Join Date: Sep 2005
Location: Wellsburg, WV
Posts: 26
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Heartfelt sorrow
for the loss of your sister. One thing I think that is so hard for us saddled with this disease is that we are Expected to die, but then someone so called healthy dies before us.
May God comfort you and help you threw ths very difficult time.
Sherry in WV
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07-12-2006, 02:12 PM
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#30
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Senior Member
Join Date: Sep 2005
Posts: 290
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Dear Sandy,
I am very sorry for your loss. We often get so wrapped up in the whole breast cancer thing, that we forget that other family and friends can leave us in the twinkling of an eye. I hope God will comfort you through your period of grief and beyond. These events always remind me of just how close we all are on this board. We truly are one big family, and your loss is our loss as well. Please take care in this difficult time.
Sincerely,
Tom
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07-12-2006, 05:29 PM
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#31
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Dear Sandy,
I'm so sad about your sister. My thoughts are with you and your family.
Big hug,
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07-12-2006, 06:05 PM
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#32
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Thanks Barbara for the article. I read it and found it helpful because my husband is trying to get an abscess healed on his leg and he spent 5 days in the hospital in May. Now, I am really concern and will be even more careful for myself. Thanks for all your well wishes. I am doing o.k. still in shock but time will heal and I will focus on the memories we shared. Sandy
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07-12-2006, 06:32 PM
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#33
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Senior Member
Join Date: Sep 2005
Posts: 64
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Sandy: My thoughts and prayers are with you and your family. BERTA
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07-12-2006, 06:41 PM
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#34
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Wow Sandy, so sorry to hear the news of your sister. That's certainly an unexpected thing to happen. Thanks for the information, it may help somebody else out.
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07-12-2006, 06:43 PM
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#35
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Senior Member
Join Date: Dec 2005
Location: Montgomery Co, Pennsylvania
Posts: 110
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Sandy, I am so very sorry to hear about your sisters passing! A terrible shock to you all!
You and you family are in my prayers..
Maggie
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07-12-2006, 08:34 PM
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#36
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Senior Member
Join Date: Jun 2006
Location: Grand Terrace, Southern California
Posts: 114
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I am so sorry for the lost of your sister. I will pray for you and your family.
Rendi Cotton
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07-13-2006, 03:33 AM
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#37
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Dear Sandy I am very sorry for the loss of your sister. So many times we go through life thinking we have so much time left. This proves how fragile life is. My deepest sympathy to you and your family. Lu Ann.
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07-13-2006, 06:07 AM
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#38
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Dear Sandy-
I am so sorry for your loss. You and your family are in our thoughts and prayers - be sure to take care of yourself during this difficult time.
Cordially,
Shell
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07-13-2006, 07:56 AM
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#39
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Junior Member
Join Date: Jul 2006
Location: Toronto Canada
Posts: 2
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condolences
Hello,
I do not know you but yesterday I ws at the funeral of a very good friend of mine who as=lso unexpectedly lost her beatiful yonger sister. So sad, so very sad. My thoughts are with you. Love life, the way your sisterdid. Reach out to others, while thinking of her. Count on the strength and support of your friends, and know that though others do n ot know you, still we are surrounding you at thiw time.
Thea
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07-13-2006, 01:28 PM
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#40
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Senior Member
Join Date: Jan 2006
Posts: 58
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I'm so very sorry for your loss, Sandy.
What an awful thing to have happen. Thoughts & Prayers are with you and your family.
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