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08-08-2014, 12:04 PM
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#1
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Senior Member
Join Date: Jan 2014
Posts: 109
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Anyone taking Arimidex?
I have moved from South Louisiana to East Tennessee to live with my daughter following the death of my husband in June. I have new doctors etc. This is a much smaller town than Baton Rouge, but so far everything seems good. My new doctor has prescribed Arimidex daily. It's a pill, and I knew I would be taking it, but I thought I'd begin after Herceptin.
Does anyone have any experience with this drug? So far I'm not noticing too many side effects other than an increase in neuropathy in hands and feet. :-(
Best to all,
Lynne
__________________
Bilateral mastectomy w/sentinel node biopsies, December 20, 2013
12 nodes positive; stage IIIb
Began chemo January 21, 2014
Priors:
Partial colectomy, January 1996
Radical colectomy, March 1996
Crohn's & GERD
Gluten sensitivity
Chronic anemia from GI bleeding
Relapsing polychondritis w/tracheomalacia and neuropathy in feet
Vasculitis
Sjogren's syndrome
Rosacea and ocular rosacea
Hypertension
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08-08-2014, 01:14 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: Anyone taking Arimidex?
I took arimidex for 5 years...starting about halfway through herceptin. Happy to say minimal side effects!!!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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08-08-2014, 01:54 PM
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#3
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Senior Member
Join Date: Oct 2012
Posts: 645
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Re: Anyone taking Arimidex?
Sorry about your husband, Lynne. I take letrozole - another type of aromatase inhibitor (of which Arimidex is one). I started after chemo and radiation and during Herceptin. I was also on it for 5 years with my first bc. Minimal side effects, can cause an increase in bone aches (or it's just my age). It should not cause neuropathy. That could be leftover from chemo?
Best
Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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08-08-2014, 02:16 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Anyone taking Arimidex?
Hi Lynn,
I took it for eight years and just stopped this summer on the advice of my Onc, the main side effect I had was stiffness in joints but not everyone gets that, bone loss can be an issue though so you need to get a Dexa scan done at the start so they have a baseline, it just measures bone density and I get one every two years, I did get osteopenia but this has been reversed since I began getting a once yearly iv of Zometa which is a bone strengther.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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08-08-2014, 02:53 PM
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#5
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Senior Member
Join Date: Jan 2014
Posts: 109
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Re: Anyone taking Arimidex?
Thanks, Tricia. I appreciate your input.
__________________
Bilateral mastectomy w/sentinel node biopsies, December 20, 2013
12 nodes positive; stage IIIb
Began chemo January 21, 2014
Priors:
Partial colectomy, January 1996
Radical colectomy, March 1996
Crohn's & GERD
Gluten sensitivity
Chronic anemia from GI bleeding
Relapsing polychondritis w/tracheomalacia and neuropathy in feet
Vasculitis
Sjogren's syndrome
Rosacea and ocular rosacea
Hypertension
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