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05-27-2010, 07:27 AM
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#1
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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~It is your Believe51 talking~......
It is with spinal chills and tears that I feel when I log in once again that prove this is home. I check in from time to time but the pain keeps me speechless. As time goes by it is harder and harder to 'Believe' he is gone. I am doing well and have a Facebook account that recites the every day wonder in my life. Although I have lost my favorite person my life has never been so rich. I thank him daily for the wonderful person he helped mould into a tougher cookie than she was. I am living with a man I dated 21+ years ago and we are doing well.
But there is only one place that I can come that I can truly cry.....it is here...it is with you! I have missed the board but again cannot speak. I have been grant writing for the foundation AND Her2support for some time now and even though moving through phase 2, still not getting paid. We are viable though and have helped people across the US. I cannot bear the thought of life without fighting cancer.
Doing well health-wise. Yoga, meditation and working out has helped me to become a fierce 120 lbs of mean cancer fighting machine! It helped me to stay strong and endure the fight and now it will help endure new missions.
Oh and cancer.....thought I was gone huh? NOT...silent is deadly and I will spend my life fighting you and fighting for them!!
I LOVE YOU ALL> I am always right here!
THE ONE AND ONLY Believe51~
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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05-27-2010, 10:40 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: ~It is your Believe51 talking~......
Marie,
Love and hugs and as many shoulders and kleenex as you need.
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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05-27-2010, 11:19 AM
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#3
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: ~It is your Believe51 talking~......
Marie, I have been wondering about you the last few months especially. May God hold you close as you continue with this new part of your life. Big hug, Ceesun
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05-27-2010, 11:43 AM
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#4
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Senior Member
Join Date: Jun 2007
Posts: 216
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Re: ~It is your Believe51 talking~......
Dear Marie,
Have been thinking about you and so glad you have logged in.
Please take care.
Lots of love and hugs from Broadstairs England where I live.
Janie
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05-27-2010, 12:07 PM
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#5
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Senior Member
Join Date: Aug 2006
Posts: 492
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Re: ~It is your Believe51 talking~......
Enjoy your summer Marie and thank you for checking in 
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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05-27-2010, 12:19 PM
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#6
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: ~It is your Believe51 talking~......
Great to hear from you Marie and glad you are doing so well. Thanks for letting us know.
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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05-27-2010, 12:28 PM
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#7
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: ~It is your Believe51 talking~......
Marie,
I am so glad to hear from you. I have been doing Yoga too.
Amelia
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05-27-2010, 01:11 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: ~It is your Believe51 talking~......
Hi Marie,
I've been checking on you from time to time on FB, glad you posted an update here and sending hugs
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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05-27-2010, 01:12 PM
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#9
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: ~It is your Believe51 talking~......
Good to see your post. Love to get an update on Rexin-G and foundation.
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05-27-2010, 07:03 PM
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#10
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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Re: ~It is your Believe51 talking~......
I have thought of you often and hoped your were doing well. It is so nice to see that you are healthy and happy.
Sarah
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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05-27-2010, 07:31 PM
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#11
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: ~It is your Believe51 talking~......
Ah, dear Marie, so glad you are "out there" kicking butt and taking prisoners on our behalf! I woke up 2 nights ago in the middle of the night thinking about you. It is with relief that I read you are well and working through the loss of your Mighty Oak.
I miss your posts, your encouraging words, your hope....Please come back when you are able. You shall always be most welcome here with us!
You Rock!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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05-27-2010, 09:16 PM
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#12
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: ~It is your Believe51 talking~......
Welcome back. Feel free to drop by anytime to give us an update on how you are doing. Take care.
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05-28-2010, 03:53 AM
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#13
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: ~It is your Believe51 talking~......
Hugs & a shoulder are always waiting for you.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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05-28-2010, 12:28 PM
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#14
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: ~It is your Believe51 talking~......
Marie,
So glad to hear from you. I haven't logged on as frequently because I've been staying at my Father-in-law's house. It's not easy to take care of anyone 24-hour a day. You are truly a hero!
Best wishes to you and yours.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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05-28-2010, 01:39 PM
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#15
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Senior Member
Join Date: Feb 2010
Location: TN
Posts: 175
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Re: ~It is your Believe51 talking~......
Marie,
I am a scared and worried newbie here and feel almost presumptuous in attempting to post a comment to you. But I have read enough now of your story and your Mighty Oak's (Ed's) long struggle that I sense I understand a little of the the great love the two of you shared and the immense sadness you felt last November.
I have just passed my first 'cancerversary', and as bad as I may have felt physically and emotionally during the last year, I can only imagine how tough it was for you during that same period of time. It may sound strange, but I have found comfort in reading your brave accounts of all that you and Ed went through. They are inspirational and give me hope for the future.
As others here on this board have more elegantly stated, please let me add my gratitude to you for your efforts.
Phil (aka bird)
__________________
Male Breast Cancer, DX 5/15/09, IDC, STAGE 1, 1.7 cm, HER2+++, ER+(95%)/PR+(75%), Ki67 40%, grade 3, 0/5 nodes, TX: mastectomy, TCH finished 7/19/10, radiation 6 wks., Tamoxifen on going, bisphosphonate 24 mos.
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05-29-2010, 09:12 PM
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#16
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Re: ~It is your Believe51 talking~......
Good to hear from you Marie. I hope you continue on your road of healing and fighting. Take care. ((Hugs))
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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05-30-2010, 08:40 AM
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#17
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: ~It is your Believe51 talking~......
Hello Sweet Marie! It's good to hear from you. I'm glad you're doing well. You're always on my mind, Sister. Love ya, Bill
__________________
For Nicola
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05-31-2010, 06:11 AM
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#18
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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Re: ~It is your Believe51 talking~......
Marie love - you are as always my inspiration and I so love seeing you on FB! But here it is nice to see you logging in to give us all a big hug - and let us love you back! I am crying tears of joy for having you in my life...
I think of Ed everytime I see a cork --- oak tree now here in Sardegna - there is one outside my window at the house near the sea and I think of you daily --- you are loved and sending you lots of good energy - and so glad to hear you here again!
XOXO Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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05-31-2010, 01:05 PM
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#19
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: ~It is your Believe51 talking~......
Hello Sweet Marie,
Nice to hear from you - glad you are doing well.
Keep smiling!!
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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06-01-2010, 02:29 PM
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#20
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Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
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Re: ~It is your Believe51 talking~......
Marie,
What a breath of fresh air you are! It is great to hear that you are well! Hugs and kisses, lil' sis!
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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