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Old 10-19-2007, 11:30 AM   #1
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
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Smile ~Tiptoe's Rhode Island Adventure

Well Ladies, as you know I left work twice yesterday to retrive Tippy. We stayed up late talking about life, our hobbies, our dreams. Tiptoe heard many secrets from me and I need to reassure StillHere that she is a good secret keeper, feel safe trusting her Karen with all your deepest secrets, she will not squeal. Our eyes are baggy today from our late night party. She was content with the pine nuts I fed her and is excited to know her next meal should be with Chester.

I read the journal thoroughly and smiled, laughed and said a special tribute to our dear friend Pink for allowing us to visit and share. PinkGirl, I too am excited, what a wonderful proposal for us to take part in. You may hear your ears ringing tonight as Tip is a bit home sick, I told her we could talk about her adopted family when she woke up from her nap tonight. Sorry to mess up her schedule, like I said, she is homesick and a little spoiled from Andi!!! Go figure!! Tehehe! Ed is in love with her, he let me take Randy, his squirrel with me today. They were sharing acorns last night together after I came out of the shower. Tip was hiding under some leaves and did not want to come out. Randy offered her some acorns and pinenuts and she was fine.

I have a special treat for TT on Monday, she is having her own company. I know she is chatty but for some reason she was a tad bit shy at first. I also know she used to have few friends, well that was then. She is quite popular in Rhode Island. All my friends have met her, of course that was at the time she was timid so I did not want to shoot any pictures then. I did not want her to feel uncomfortable. She does carry a spectacular positive energy vibe, I picked up on that before she even came completely out of the box.

I really need to go to the hospital while Ed watches Tippy, as I mentioned I fell with all my weight on my shin three days ago. Thought I would be over it by now but it is worse. They could tell me that I splintered a bone and I promise you all.....Tiptoe will never know. She is sensitive and I worry she will be too concerned with my minor health issue. By the way, Tip is the greatest caregiver I know. It amazes me that Pink is so generous to share her with us all when we know how very much she misses her.

I have a busy weekend and will try to update as much as possible, do not worry if you do not hear from us for a day or two. Love you all..>>Believe51, Ed and Tiptoe
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 10-19-2007, 03:33 PM   #2
PinkGirl
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Smile Thanks

Thanks for keeping us posted Believe. I like to know where
she is -- a bit of separation anxiety on my part.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 10-20-2007, 11:45 AM   #3
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Thumbs up Love To Tipsy

I too am emotionally invested... Marie!

Is Tip aware of the hullabaloo about the Dalai Lama being presented with the U.S. Congressional Gold Medal at the White House? China's really mad. As you know, TT cherishes her picture of him w/her. Pinkie forwarded it on this site for me to copy and paste in her journal, having forgotten it. Wish I could post her pink pen and have you copy it and include in her *luggage*. So sorry about that...

Some religions teach that Life is all about getting in to Heaven. Some that Life is about preparing for Eternal Life. Some that Life is about following Laws to the letter, striving to be godlike.

The Dalai says Life is about finding happiness. That is what we were meant to learn to attain, using our human abilities to be: Compassionate, caring and giving of ourselves and our special talents. Aspiring to genuinely seek to understand the words and actions of others. From living with an open heart, grateful for our many blessings and awed by Life's beauty -- we are on the path to Happiness.

Chronic fretting affects your well-being and your health. So we must learn to live in The Now and not get caught up in the What Ifs. Tippy and I discussed this at great length when she was here. I miss her.
PEACE... Andi

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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 11-02-2007, 08:39 AM   #4
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Talking My RI thread will update you all on our adventures

I will be using this post next week to continue the bag-logged saga of Tiptoe @ Marie & Ed's....stay tuned for more of the Tippy adventure in Rhode Island...>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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