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03-10-2009, 04:53 AM
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#21
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Chrisy,
Great news on your scans.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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03-10-2009, 05:58 AM
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#22
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Chrisy,
Glad to hear your good news.
What does LFT's stand for?
Amelia
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03-10-2009, 09:01 AM
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#23
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Senior Member
Join Date: Nov 2007
Posts: 210
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super news chrisy.. tell us how the next stage of your treatment works with the new follow up trial..
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03-10-2009, 09:19 AM
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#24
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Hey sisters, thank you for helping me through the scanxiety last week, I really needed and appreciated your support!
Barb, it isn't so much the taste of the beet juice I love, its the mess I make when I juice it! But it helps keep the LFT's (liver function tests) in line...
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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03-10-2009, 10:10 AM
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#25
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Thanks for letting me know what LFT means. I have thought about juicing myself.
What is the test called that they check you liver with on your blood test?
The doctor really checked my liver when I went to Seattle for my second vaccine.
Do you think that juicing might help me to prevent the cancer in my liver?
Amelia
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03-10-2009, 11:26 AM
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#26
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Chrisy,
This it just the BEST news!!! I am thrilled for you. It is an amazing update. What else can I say? In addition to your great news this is a very hopeful sign of things to come.
I hope to some day join the trial or make it to the approval date - until then "If I can't join um I will beet them"! Congratulations on your news and keep on doing whatever you are doing.
Love, Hope, Peace,
Carolyn
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03-10-2009, 12:43 PM
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#27
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Now that is what I am talking 'bout. Rock on Warrior!! I am so thrilled for my Chrissy!!! Wait until Ed hears.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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03-10-2009, 05:37 PM
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#28
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Amelia
Re LFT's
They check for liver enzymes with blood tests, on me they measure AST, ALT, Alk Phos, Bilirubin and a few others. My doctor put it as "seeing how hard your liver is working".
The beet juice, carrot salad, milk thistle bla bla bla may help to generally cleanse the liver and keep it healthy from a functional standpoint. I don't think it would have anything to do with preventing cancer recurrence, but if your liver is healthy it will be better able to process the myriad of drugs we put in our bloodstream.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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03-10-2009, 09:16 PM
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#29
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Senior Member
Join Date: May 2006
Posts: 3,142
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Clean scan hat trick !!
Is the carrot salad the kind with raisins. I love that one.
When I make fresh beet juice I freeze half and use it later, so I don't have the mess too often. Some health food stores carry beet powder which can be added to spaghetti sauce, used as a spice or added to smoothies.
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03-11-2009, 12:50 PM
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#30
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Elaine, when I make beet juice, I put it in an icecube tray and then it's easy to use later. Makes the mess a once a week affair! I actually love the carrot salad, I make it with carrots, lemon juice and olive oil, and "something else" which lately has been craisins. Sometimes I add toasted slivered almonds and it is SOOOO good!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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03-11-2009, 09:08 PM
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#31
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Senior Member
Join Date: May 2006
Posts: 3,142
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Clean scan hat trick !!
Thanks for the information about beet juice and carrot salad. I was just about to make some beet juice from some beets I cooked. I will try the carrot salad tomorrow.
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03-11-2009, 10:06 PM
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#32
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Wonderful news. Congratulations!
Karen
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03-11-2009, 10:41 PM
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#33
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Ya-Ya-Ya-YaYa Chrisy!!! That is my typical victory yell!! Am SUPER happy for you.
If you feel like it, drop by the campfire and for a victory toast!!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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03-12-2009, 01:35 PM
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#34
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Senior Member
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
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Chrisy,
Fantastic news!!! What a relief!!
I am on vacation and have actually had a couple of glasses of wine. I was wondering if I should ease up. But...after reading this good news I will have "just one more" to celebrate on your behalf.
Lori
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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03-12-2009, 03:34 PM
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#35
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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You made my day! Wonderful news.
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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