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Old 03-10-2011, 11:55 AM   #1
Colleens_Husband
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Re: I'm Taking Care of My Mom

Merry:

I took care of my wife, Colleen and I know what you are feeling about all of this. This can easily be the most frustrating and taxing thing you every will do in your life, and it also can be the most rewarding thing you can ever do at the same time.

I hear what you are saying when you mentioned that you do not know if you are doing things the right way. It really doesn't matter too much if you are a perfect caregiver. What matters is that you are a caregiver. Just being there and trying is enough. You aren't a medical professional, you are just a normal person doing the best you can and that makes you a saintly person in my book.

Finally, when I was getting overwhelmed taking care of someone with chemo, raising two children, and trying to keep a business running in bad economic times, someone said something that really opened my eyes. When the oxygen masks fall from the ceiling of the airplane, the parents are supposed to put their oxygen masks on first so that they can effectively care for their children. This is a very sensible thing for the health and safety of both the parent and child. Likewise, you need to take care of yourself in much the same manner as the oxygen mask. If you get emotionally and physically beat down, then you will not be able to care for your mom. If you need to, arrange hospice care for an afternoon (and if you are clever, you can get it for free) and go take a walk, go to a movie, spoil yourself, do whateveer you need to do to recharge yourself. If you do this, then you can do a much better job caring for your mom.

Being a male person, I am sometimes plagued by the delusion that I can be Superman. I can do anything, endlessly without respite, without thanks, and without help. This is, of course a useful form of madness, but it is madness all the same.

Merry, please take excellent care of yourself. The path you are following is not easy, but you will ultimately be very glad you followed it. Remember that you are not alone. We are here for you. You are in our hearts and prayers.

Lee
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This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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Old 03-10-2011, 02:11 PM   #2
Jackie07
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Location: "Love never fails."
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Re: I'm Taking Care of My Mom

Perhaps to seek a 2nd opinion?

Chemotherapy for lung cancer can be harsh. The Mother of two of our church members had refused chemo after just a couple of rounds 13 years ago. Her local oncologist had stated she'd not last more than 6 months without chemo. Her daughters took her to MD Anderson for consultation and they changed her medication. She lived three more years with good quality of life - attending church regularly, even gave a public testimony one time, until a couple of months before she passed in 2001.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Last edited by Jackie07; 03-10-2011 at 02:24 PM..
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