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Old 09-21-2007, 08:30 AM   #141
Believe51
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Smile Joy Joy Joy

Today's Joy: I was lucky enough to get a deep tissue massage from my boy who is too fatigued to even do his walks. He seen me walking and knew my back was out again. As I continued my house work he called me over and just when I was going to say:


WHATTTTTTTT!!!! (LOL, never talk to him like that but sometimes I think it...hehehe!!)

.....he made me lie down for his famous back rub!! It felt like the normalcy I yearn for each day. After the rubdown I thanked God for being alive and for having the chance today to love my favorite person another day!!>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 09-21-2007, 08:34 AM   #142
marshbird
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Smile Sweet Joys!

Waking up this morning to the sound of rain on the roof. What a perfect time to cuddle with my husband and count my blessings!
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Old 09-21-2007, 08:51 AM   #143
lilyecuadorian
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Smile good results from brain MRI

Just come from my Doc and he said 2 spot look stable ...no evidence of D so he said is a good news ....he give appoiment for the next 3 months ...but I got some fever I dont know why ??? 100.2 so I did call my Doc and leave the message ...thanks for read ...
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Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 09-21-2007, 09:34 AM   #144
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Well, it is a joy to hear YOUR joys! Lily, how wonderful to get a good scan...and Marie, even better than the massage was getting a feeling of normalcy. And I feel joy for Ed, that he was able to nurture YOU for a change. And Sandy, glad to hear you can stand to read the "joys" column and that you have a little more "time" to attend to more fun things. I tell you, I know I'm getting old when I know where the best public restrooms from Santa Cruz to Tioga Pass.

My joy today is that I'm NOT in the office, and taking my day for me. Of course, I've already checked and send email to work since I'm just not ready for COMPLETE withdrawl.

It's a sort of fall like day here, clouds in the sky (maybe GASP even some rain in the forecast) and I'm looking forward to going out in the world on a weekday. Maybe shopping...maybe go hang out at the coffee shop...maybe work out or go for a swim or in the sauna or jacuzzi. OK, maybe NOT work out LOL but the jacuzzi sounds good!
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 09-21-2007, 12:05 PM   #145
Andrea Barnett Budin
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Wink I Love The *coincidences*...!

Brenda, First chance I've had to respond to your post about your *accidental* happening upon the building named in loving memory of your niece and nephew. What a joy to come upon such a thing! I, of course, believe that COINCIDENCES are messages. I think you were led to that street, my your brother and sister-in-law. They are with you. You can't see them the way you see Dasher but they are just over your shoulder.

My Chase and Scamper are (Maltese) doggies but I talk to them all the time, as if they can understand me. We rescued our boys when they were 4 mnths old and Chase was especially sick with a devastating case of mange (mites were attacking his immune system and he was losing his battle). I confess -- I am a dog whisperer. The vet was amazed by his turnaround. I used the meds and some supplements (taking a chance, guessing at dosage, like for infants) and I sent healing, loving energy to him daily. Our boys are 4 yrs old now and happy and perky and playful and full of kisses and waggy tails and fun ways of expressing themselves. They are a joy.

My daughter has a Maltese the same age as ours and an old Bichon. Dibs and Dash!

I love the T-shirt story. The tragedy you endured must feel enormously painful, yet from my perspective I see that these people who truly loved one another are still together. And I believe they want you know they are okay and more than just in your heart forever.

Your post was just beautiful. I wish you tears of joy often! And love (and health) and laughter always....
Andi

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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 09-24-2007, 11:24 AM   #146
Believe51
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Talking Oh My Joy

Today's Joy: For me there are just simple joys that add up to make my life glorious. I want to just express my complete joy for all of you and your support. I recieved a phone call from Kareng to tell me she talked to Nicola's husband. I know she was going to post this update but how we all pull together to follow through on questions or concerns really makes me all warm & fuzzy.

You all make me so proud to know you My Fine Warrior Sisters. It is my complete joy to have you in our lives and has made our journey a memorable one (Ah yeahhhhh....like I could forget if I wanted to!!! LOL). I have a piece of all of you deep within my heart and keep you there protected from the evils.

I LOVE YOU ALL!!>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 09-24-2007, 12:47 PM   #147
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My SE (spousal equivalent) loved the breakfast tacos I made this morning. THAT was a joy, as he is a reaaalllly picky eater. Glad there wasn't any cat hair in it...LOL - as he is one who could pick fly poop out of pepper, if you know what I mean. OMG, he is a nut. A wonderful nut, but sometimes quite a tough customer...
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 09-24-2007, 01:07 PM   #148
Believe51
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Cool A Nut???

Well it is my joy today to tell you Brenda:

It takes one to know one!! LOL! And you cannot blame him nor the cat!! Hehehe!! Speaking of, is crazy man still sleeping in the sink you bought for him??>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 09-24-2007, 01:44 PM   #149
Andrea Barnett Budin
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Wink Getting in touch with my roots...

Joy today was receipt of a voluminous genealogy full of juicy details going way back in my Mother's family. Great read. What a creative, brainiac group of prof's, authors, and award winners.

Details from newspapers in the mid nineteen hundreds were full of such charm and breeding. No sound bytes but rather carried you away to the time deliciously.
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 09-24-2007, 06:00 PM   #150
Believe51
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Took A Scream Ride Just To Yell Out My JOY!!!

Today's Joy: I had so much joy today that I felt if I did not let some of it out I would POP (guess you could call it 'tonight's joy'..LOL)!! My joy today is that my husband's MRI said we are on the road to claiming our miracle. Not only does he not have any more added mets, the ones he has have shrunk in size from 5-9mm to 2 mm!!!!! News we were not expecting for a few months so you can imagine the damage we are going to witness then!!!! The hard work this man has accomplished in the last year has finally taken a sharp turn for the better (at one point he did have his markers at almost normal). These nasty cancer cells are finally getting the hint that they are up against My Mighty Oak and they do not stand a chance.

So take that ya nasty little bug-looking cancer cells with X's for your eyes and your legs up, I can see you now and I like you much better GONE!! You may have outsmarted our first chemo plan but you will not survive this. You are not wanted here and never were.

Now go away, we are scheduled for a dance with NED & friends are expecting us (You girls know who you are!!). You are interferring now and have been for over a year. And while you are at it, leave my friends ALONE!!

Usually my 'Today's Joy' I try to leave the C word out of it, guess you can see why I could not resist this time!! So glad I am saving for the spa, I am going to need it when we are through with this one. Thanks for loving us girls and we are so happy we get to tell you some positive news about Ed's journey for a change!!

I Always Believed!!!>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 09-25-2007, 10:44 AM   #151
Andrea Barnett Budin
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Talking

Today's joy was an email I received that included this priceless KIDS' LETTERS TO GOD. My heart is smiling. Wanted yours to also glow...


"Dear God, Instead of letting people die and haveing to make new ones why don't you just keep the ones you got now?"

Precious, no...?!


Andi




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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 09-26-2007, 01:44 PM   #152
Andrea Barnett Budin
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Wink The Joyous Things Kids Say And Do

More KIDS LETTERS TO GOD... Dear God, Sometimes I think about you even when I am not praying Elliot

ME TOO... I am one with the Universe.
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 09-26-2007, 05:49 PM   #153
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My joy today was hearing an unexpected knock on my front door and finding my youngest grandchildren ( Shannan-6 and Austin-9) there. They thought they were supposed to ride the bus to my house today so they did. We called their mother, fed them a snack, and romped with them, Dale did anyway, they play too rough for me right now, and had a great time with them until Athena picked them up. We see them often but it was fun to see them so unexpectedly. They were so full of energy.

Leslie
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In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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Old 09-26-2007, 08:31 PM   #154
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My joy today was receiving my 4th of 6 TCH infusions! Past the half way mark! The dietician wandered by and told me I needed to gain weight and instead of the low fat stuff that I keep buying (old habits die hard!) she said in addition to drinking Ensure I should be putting Haggan Daz in it for milkshakes! Welll, a few minutes later a drug rep who was trying to curry favor there, came along with a freeze container giving away Haggan Daz chocolate covered ice cream bars!!! lol I told him he must be a gift from God. He said he was God's rep on earth. (More like a drug rep on earth! lol) Then a differernt rep brought Jamba Juice smoothies!! Boy, Wed is a much better day than Tues (my regular day) around there!
My white count is in the low normal range. Very low. But still normal
So, a good day all in all.
And I am recovering from the joy of several days of visits from friends who cared enough to fly here to see me. I am blessed.
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 09-26-2007, 08:56 PM   #155
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My Joy today was reading good news on Esther's GammaKnife and Joy's scans. Also the good news on Ed's MRI (Believe51 - Marie) And Bonnie, now you only have 2 more treatments left -- you can do that standing on your head! Sure wish they passed around ice cream at my infusion center. I must admit I prefer Ben & Jerrys over Haggen Daz but I certainly wouldn't turn it down. Nothing makes me happier than to hear good test results as it offers encouragment for everyone. You women/men are really quite teh warriors!
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 09-26-2007, 09:05 PM   #156
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I am also glad to hear good test results from my sisters and brothers and this board. I also enjoy the things that give each of you joy. My joy today was seeing my 3 month old granddaughter smile and talking to an old friend that I have not seen since high school. This illness has prompted me to get in touch with friends that I have not talked to in a long time and I love that feeling. Thanks for being there for me and I will be praying for all of you tonight and everynight.
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Old 09-26-2007, 10:21 PM   #157
BonnieR
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Tousled, they must have heard you too. I later saw Ben and Jerry's icream cones being passed out. And popsicles!! What a surreal day.
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 09-27-2007, 10:15 AM   #158
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Talking Catching Up....

"Today's Joy" was going to an appointment with Ed at the Infusion Unit just built, a building all on its own. We loved the old unit but this is a gorgeous place with lots of room to get treatments.

Each time we go to the area which is near the Imaging Department at the hospital we see a chipmunk. It is a pleasure that we see him all the time!! As you know Ed and myself name our wilderness friends so when we refer to them we know what we are talking about. I decided to name him Chester the Chipmunk. A day after naming him I realized...hey how perfect of a name!!! 'CHEST'er the chipmunk has helped us on our journey since we started in September 2006, we constantly see him. He is our BREAST CANCER MASCOT and really has made going to the hospital an anticipated event.....are we going to see Chester??

I am really hoping that PinkGirl will allow Tiptoe to visit with us for a bit. I have heard that chipmunks and mice can get to be great friends and Chester is very lonely since we only go to infusion once a month instead of twice a week. Please let me know when and if he can visit PinkGirl, Chester is in dire need of new friends. I will treat him like he is my own. I know he does not like the cold so I will make every effort to make him comfortable here in Little Rhody (Rhode Island). Please say yes. No pressure but I kinda let Chester know he will have relatives visiting as soon as their schedule clears up.

Sending giggles and laughter your way>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 09-29-2007, 04:55 AM   #159
R.B.
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A bird singing so sweetly outside my little working space.

RB
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Old 09-29-2007, 10:02 PM   #160
BonnieR
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I glanced outside into our courtyard this afternoon and saw a gift bag with a pink balloon attached. Seems a neighbor had attended a breast cancer walk and brought home the "goodie bag" for me!! It contained lots of little samples of skin products, a pink ribbon pin and tee shirt and several discount coupons for restaurants!!! The enclosed note said he did the walk in memory of his mother who died of breast cancer and in hope of my recovery. How wonderful was that?
__________________
Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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