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10-06-2012, 11:34 AM
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#1
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Prayers needed for Sheila
Jen,
Please tell your Mom that we are thinking of her and remembering both of you in our prayers.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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11-27-2012, 04:16 PM
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#2
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Senior Member
Join Date: Jan 2007
Location: UK
Posts: 617
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Re: Prayers needed for Sheila
Sheila is such a fighter and she has been positive for so long but this desease feels like a undeserved curse and it is so hard sometimes, you wish for the curse to stop but there is no way out, sometime this is simply too much for one person . I agree with the wise comment above all you can do Jen is show your love and give her hope for better days to come. Sending positive healing vibes from accross the pond
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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10-06-2012, 12:59 PM
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#3
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Prayers needed for Sheila
Hi Jen, please tell your Mom she's been in my thoughts and prayers. You too. Please try to take care of yourself, too, when you can. You need your strength so that you can be there for your Mom. Give her a hug for me, ok?
__________________
For Nicola
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10-06-2012, 03:42 PM
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#4
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: Prayers needed for Sheila
More prayers and positive energy and hugs and love for Sheila. Im glad to hear she has been able to return home. Lets keep this prayer chain going and going...Being in the hospital is exhausting. Now that she is home, I hope she is able to be comfortable, rest and get some strength back.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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10-06-2012, 04:41 PM
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#5
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: Prayers needed for Sheila
Praying for and loving you both.
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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10-06-2012, 04:56 PM
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#6
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Prayers needed for Sheila
Talked to Mom tonight she sounded a little better she is resting at home. Nancy I received your card in the mail today. God bless you too and you're welcome I will get the card to her as soon as I can.
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10-06-2012, 08:21 PM
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#7
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Re: Prayers needed for Sheila
Jen,
Is there an address (yours/your mom's) that we can send cards to?
If so, please post and we will flood the mail.
K
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10-07-2012, 05:30 AM
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#8
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Prayers needed for Sheila
Jen,
Sending love and prayers for you and your Mom. Sheila has a special place in my heart...she's a fighter, and I'm sure she'll do everything she can to stay strong, and heal. I hope all of our love and prayers is a comfort to her.
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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10-07-2012, 05:34 AM
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#9
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Prayers needed for Sheila
Karen Z my address is:
Attn: Sheila
%Jennifer Evans
705 S. Vermillion St
Streator IL 61364
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10-07-2012, 07:20 AM
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#10
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Prayers needed for Sheila
Just want to say thank you to everyone who is sending their love, support, prayers, cards, hugs, etc.. to my Mother Sheila. Sheila as well as her family sincerely appreciates it.
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10-07-2012, 08:30 AM
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#11
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Senior Member
Join Date: Mar 2010
Location: Thornhill Ontario
Canada
Posts: 266
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Re: Prayers needed for Sheila
Been away and just came back and checked boards. Sending love and prayers to dear Sheila. Sheila you are such a wonderful woman you have always been so caring and helpful to all of us on this board. As we have come on to this board when first diagnosed your words of wisdom and kindness have always given hope and strength to carry on. I am thinking of you. Lois
__________________
August 2008
Lumpectomy left breast
1 tumour 0.9 cm
Her2 negative
lymph nodes negative
venous/lymphatic invasion absent
ER+PR-
Stage I Grade 2
Radiation and Femara
November 2008
Lumpectomy right breast
2 tumours .03 cm and .05 cm and extensive DCIS
.05 tumour Her2+
lymph node negative
venous/lymphatic invasion "indeterminate"
ER+PR low postive
Stage 1 Grade 2
January 2009
bilateral mastectomy
chemotherapy taxotere
Herceptin one year
Femara
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10-07-2012, 09:29 AM
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#12
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Re: Prayers needed for Sheila
Jen, thanks for sending along this address. Why don't we all send cards and notes so that something or some things arrive each day? K
Karen Z my address is:
Attn: Sheila
%Jennifer Evans
705 S. Vermillion St
Streator IL 61364
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10-07-2012, 06:37 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: Prayers needed for Sheila
Love, prayer and cards to Sheila!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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10-08-2012, 12:36 PM
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#14
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Prayers needed for Sheila
Jenn I've been offline for a few days but will send a card off tomorrow but from Ireland may take a few days but praying for your Mom and wishing her well. xx
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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10-08-2012, 01:07 PM
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#15
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: Prayers needed for Sheila
Dear Jen,
Of course!!!
I met your wonderful Mother on a SABCS trip.
She is one special lady (but you know that already).
Payers of strength and healing are being done and some for you also.
Hugs,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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10-08-2012, 06:02 PM
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#16
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Prayers needed for Sheila
My heart really breaks tonight for my Mom, Sheila. I want her to get better but I can't stand to see her suffering. Please continue to keep her and her family in your prayers and pray for Jazzy too because she broke her rod and needs surgery~Thanks Jennifer
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10-08-2012, 06:10 PM
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#17
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: Prayers needed for Sheila
I am praying Jen. I'm so sorry you are all going through such a difficult time. Having had cancer and losing loved ones to cancer, I do now how you feel. It's hard. Watching our loved ones suffer is the worst. I don't know what to say. Only that I will pray. Praying peace and comfort for you all. I'm sorry this is happening. My heart is sad and I just don't know what to say.
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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10-08-2012, 06:31 PM
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#18
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Prayers needed for Sheila
Jasmine said to me a couple days ago "I hope Grandma doesn't give up on me" it broke my heart. Jasmine has developmental delays and is handicapped she has known Grandma all her life and Grandma has been there with us thru surgeries and hospitalizations.... What am I suppose to tell her? She asked me today if it was her fault Grandma had cancer. I explained to her that it was no ones fault that Grandma has cancer. I just wish my Mom would get better and be the Mom I have knew.... Sorry I just had to vent a little.... This is really hitting me hard and I know you guys will understand as my Mom Sheila would understand as she lost her own Mother to cancer a couple years ago almost.
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10-08-2012, 06:49 PM
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#19
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: Prayers needed for Sheila
Dear Jen,
I understand oh so well. We need to vent....we need to say, "it's not fair"...."why her"...."I want life as I know it back"...and many other things that go through our minds.
Know that I care and know that my prayers are with you.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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10-08-2012, 07:02 PM
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#20
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Senior Member
Join Date: May 2007
Posts: 236
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Re: Prayers needed for Sheila
I feel bad for venting as I don't have cancer but I would trade places with Mom if it would save her..
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