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01-26-2010, 05:42 AM
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#1
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Irene From Tampa
Dear John,
I'm so glad she's home, knowing that she is loved and cherished and able to smile.
You people are amazing!
Hugs
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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01-26-2010, 09:07 PM
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#2
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Re: Irene From Tampa
Dear friends -
Irene passes away tonight around 10:30.
Peacefully and quietly - no pain - no anquish.
Think of her often...and smile.
Love to all - John
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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01-26-2010, 09:35 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Irene From Tampa
John, I'm so glad Irene made it home. There is no doubt in my mind that is why she held on a little longer. I have had Irene on my mine daily and although I knew this was coming it does not make it any easier. As I type the tears come. I've said it before & I'll say it again. Irene was a true inspriation to me & I will so miss her presents on this board. But I will forever hold her in my heart. John, my sincerest condolences to you and the family at such a difficult time.
Sending much love to you and your family. God bless you all.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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01-26-2010, 10:34 PM
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#4
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Re: Irene From Tampa
John,
God bless you and your family, she will be missed so deeply by all of us. My prayers go for you and your entire family. My heart is broken.
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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01-27-2010, 12:05 AM
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#5
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Irene From Tampa
Dear John,
Thank you for letting us know. Hearing she was at peace and surrounded by love when she passed makes it easier for me to accept she is no longer on this planet, physically. Her spirit will be with us for as long as we live. She was an exceptional women with a great sense of humor. I hope you will be at peace with this too. My sincere condolences to you and all who loved her.
We will not forget.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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01-27-2010, 05:05 AM
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#6
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: Irene From Tampa
Dear John,
I never met Irene in person but feel like I've known her a long time and will miss her terribly. Though I know she is in heaven where there is no cancer I still sit here crying. Praying that peace above all understanding may blanket and fill your heart and carry you forward.
Anja
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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01-27-2010, 07:31 AM
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#7
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Irene From Tampa
John,
You and the family are in my thoughts and prayers.
Amelia
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01-27-2010, 05:37 PM
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#8
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Senior Member
Join Date: Nov 2009
Location: western ma
Posts: 280
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Re: Irene From Tampa
dear john - i have not been on this site long enough to have 'known' irene at all, but i have been following her story for some time now. i know in my heart that irene held on long enough to celebrate her birthday and to come home to be in the place she loved with the people she loved. it must have given her great peace. i lost my husband to cancer 3 yrs ago. he did not make it home from the hospital, but he did hang on long enough for me to make it there when they called me at 4:30 AM as he suffered a heart attack that actually took his life. i know he held on, just like irene, so that i could tell him i loved him and that he was the best thing that ever happened to me. i am SO glad that she got to be with all of you for her birthday and for her last day and that you got to have her close by. i have been very moved by your intense devotion and by irene's spirit. when she slipped from this earth, perhaps she really did fade away from the pure joy of being home and with you.
valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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01-27-2010, 05:40 PM
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#9
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Irene From Tampa
John, please accept our prayers and condolences.
__________________
For Nicola
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01-27-2010, 05:54 PM
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#10
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Irene From Tampa
I am so sorry, John. I wish you comfort.
Barb A.
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01-27-2010, 10:41 PM
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#11
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Senior Member
Join Date: May 2009
Posts: 510
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Re: Irene From Tampa
I am so sorry for your loss, John. May you find strength to go on with your angel now in heaven. Your love for her has inspired me and your posts have made me cry. I can see your beautiful Irene in a heavenly garden full of flowers with a big light coming out of heart and shining in on you.
My prayers go out to you and your family in this difficult time.
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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01-28-2010, 03:05 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Re: Irene From Tampa
Irene was such a special person and member of this group. I so looked forward to her inspiring posts. I will truly miss her. John, please accept my condolences. You and your family remain in my thoughts.
Barbara H.
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01-28-2010, 07:00 PM
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#13
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Senior Member
Join Date: May 2006
Posts: 157
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Re: Irene From Tampa
John,
I am so sorry and sad to know about Irene's passing. I have been praying for her since she went to the hospital. She was a very special lady and an inspiration to all of us. I liked to read her posts very much. She will be missed.
Irene was blessed to have you in her life, and so were you.
I am praying for Irene, you and your family. My deepest sympathy.
Hugs,
KarlaV.
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02-07-2010, 01:34 AM
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#14
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Irene From Tampa
I just added Irene's favorite quote to my signature. What an inspiration! Yes, we are carrying on the fight. And she will not be forgotten.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 06-02-2011 at 01:10 AM..
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02-07-2010, 04:18 PM
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#15
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: Irene From Tampa
Dear John. I am so sorry for your Loss of Irene. She was much loved and will be surely missed on these boards.
May God Bless you, Irene's Family and may you all be comforted of happy memories of this very special lady.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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