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Old 10-08-2013, 11:46 AM   #1
gdpawel
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Re: Cancer secret to success?! Finding your match!

Yes! The Gynecologic Oncology Group. I just want to point out that some private laboratory oncologists have been trying to have this clinical trial for over 20 years now. This hasn't been something new to them. What was recently new was the support by one of the members of the GOG group to have this clinical trial. That is one of the main reasons it was proposed in ovarian cancer. A clinician involved with ovarian cancer and the GOG group suggested that some private laboratory oncologists put forth a proposal. They did!
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Old 06-12-2014, 12:14 PM   #2
Andrea Barnett Budin
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Re: Cancer secret to success?! Finding your match!

I seem to recall seeing some labs that do this in the New York area.

At a glance, I am not seeing that.

If I missed it, and YOU see, please inform me.

If you know such labs in the New York area, please SHARE...
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 06-12-2014, 02:02 PM   #3
gdpawel
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Re: Cancer secret to success?! Finding your match!

'lizbeth

For some reason, I didn't get back to you on the Phase II results. It wasn't a "battle of the bands" Physician's Choice vs Molecular Profiling vs Functional Profiling, but it was Molecular Profiling vs Functional Profiling.

http://cancerfocus.org/forum/showthread.php?t=3955

As was the case for the last 20 years, lack of funding hampers the success of having a Phase 3 Cell Culture Assay Clinical Trail: physician's choice vs molecular assay-directed vs cell culture assay-directed. GOG is willing to consider the proposal for the trial ONLY if there is guaranteed funding in advance, which in this case would be $11 million. There is no possibility of getting this from investors or from peer review grant funding organizations (NIH, ACS). The only source is philanthropy. Anybody know a philanthropist willing to help out?

Andrea

I don't recall any labs doing functional cytometric profiling in the New York area. Although there are doctors in the New York area that avail themselves to laboratories in southern California. Once such private practice medical oncologist I know (and would have certainly traveled to NYC to have my wife treated by him if I had known) is William R. Grace.

http://weisenthalcancer.com/Home.html
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Old 06-13-2014, 06:42 PM   #4
norkdo
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Re: Cancer secret to success?! Finding your match!

forgive the comic injection....
jackie, i just read the review, and i say "so ....he is a quack."
Andi:
I LOVE YOU. I LOVE YOUR SPIRIT. DON'T QUIT SEARCHING FOR US...
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fall 2008: mammo of rt breast worrisome so am asked to redo mammo and have ultrasound of rt breast.I delay it til january 2009 and the results are "no cancer in rt breast. phew."
found plum sized lump in right breast the day before my dad died: April 17th 2011. saw it in mirror, while i was wearing a top, examining my figure after losing 10 lbs on dr. bernstein diet.
diagnosed may 10 2011

mast/lymphectomy: june 7 2011, 5/20 cancerous nodes. stage 3a before radiation oncologist during our first mtg on july 15th says he found cancer on the lymph node of my breast bone. Now stage 3b.
her2+++, EN-, PN-. Rt brst tumors:3 at onset, 4.5 cm was the big one
chemos: 3fec's followed by 3 taxotere, total of 18 wks chemo. sept: halfway thru chemo the mastectomy scar decides to open and ooze pus. (not healed before chemo) eventually with canasten powder sent by friend in ny (illegal in canada) it heals.
radiations:although scheduled to begin 25 january 2012, I am so terrified by it (rads cause other cancers) I don't start til february, miss a bunch, reschedule them all and finally finish 35 rads mid april. reason for 7 extra atop the 28 scheduled is that when i first met my rads oncologist he said he saw a tumor on the lymph node of my breastbone. extra 7 are special kind of beam used for that lymphnode. rads onc tells me nobody ever took so long to do rads so he cannot speak for effectiveness. trials had been done only on consecutive days so......we'll see.....
10 mos of herceptin started 6 wks into chemo. canadian onc says 10 mos is just as effective as the full yr recommended by dr. slamon......so we'll see..completed july 2012.
Sept 18 2012: reconstruction and 3 drains. fails. i wear antibiotic pouch on my job for two months and have 60 consecutive days visiting a nursing centre where they apply burn victims' silver paper and clean the oozing infection daily. silicone leaks out daily. plastic surgeon in caribbean. emergency dept wont remove "his" work. He finally appears and orders me in into an emergency removal of implant. I make him promise no drains and I get my way. No infection as a result. Chest looks like a map of Brazil. Had a perfectly good left breast on Sept 17th but surgeon wanted to "save another woman an operation" ? so he had crashed two operations together on my left breast, foregoing the intermediary operation where you install an expander. the first surgeon a year earlier had flat out refused to waste five hours on his feet taking both boobs. flat out refusal. between the canadian health system saving money and both these asses, I got screwed. who knows when i can next get enough time off work (i work for myself and have no substitute when my husband is on contract) to get boobs again. arrrgh.


I have a blog where I document this trip and vent.
www.nora'scancerblog.blogspot.com . I stopped the blog before radiation. I think the steroids made me more angry and depressed and i just hated reading it anymore
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