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Old 03-29-2012, 01:05 PM   #1
v-ness
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Location: western ma
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Re: Christine our Founder needs Cards & Prayers
thank you for letting us know! i am 3 weeks behind the news, but writing a note for her today to drop in the mail ASAP. - valerie
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8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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Old 03-30-2012, 09:48 AM   #2
sarah
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Re: Christine our Founder needs Cards & Prayers
Hello Danielle,
Thank you so much for letting us know this news. We are all so concerned for her and our love for her and for the huge gift of this site that she has given us is endless.
A big hug to her and all of her family.
Keep us posted.
Health and happiness
love Sarah
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Old 03-30-2012, 03:04 PM   #3
chrisy
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Re: Christine our Founder needs Cards & Prayers
Danielle, that's great news! I know from all the San antonio trips that your mom is one strong lady, and am glad to see she is rallying.
Much love, Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 03-30-2012, 03:11 PM   #4
Joan M
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Re: Christine our Founder needs Cards & Prayers
Danielle,

This is great news!! Please hug your mom for me. I missed her at SABCS this year!

Joan
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Old 04-06-2012, 07:25 PM   #5
Ceesun
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Re: Christine our Founder needs Cards & Prayers
Card sent! Best to her always...Ceesun
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Old 04-06-2012, 11:50 PM   #6
Lettik
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Re: Christine our Founder needs Cards & Prayers
Thanks Sheila for letting us know. Turns out Christine and I neighbors and I never knew. I will send healing energy and a card in tomorrow's mail.
Prayers and God Bless to her daughters too.
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6/09 I found lump in left breast
7/09 & 8/09 Confirmed DCIS in breast and lymph nodes
9/09 Left breast mastectomy incl lymph nodes. er-/pr-, HER2+, Stage 3A.
10/09 Received phone call to schedule my liver biopsy. Stage IV extensive liver mets (!) ER/PR- Her2+++s
11/09 11/Port surgery
11/09 Weekly Taxol & Herceptin.
2/10 Completed 9 rounds -neuropathy in feet.
2/10 CT scan showed NO CHANGE.
3/10 PET scan came up NED.
4/10-10/10 Continued on Herceptin, 3 week cycle.
11/10 Blood test reveals Liver enzymes are high. CT, suggests progression
12/10 Changed doctors. TDM1 Trial or Tykerb/ Xeloda?
1/11 Tissue expander-could not qualify for trial.
2/11 -5/11 Tykerb/Xeloda -neuropathy -not working.
8/11Pulmonary Embolism -Now on daily shots
5/11-10-11 Everolimus & Navelbine &Herceptin trial Removed- Pul Emb, liver progression &fatty
10/11 -current, 3 wk Herceptin plus Tykerb
12/11- Abcess and infection upper lip- stopped Tykerb
01/12 CT Shows no progression in liesions, back on Tykerb
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