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Old 03-28-2010, 05:32 PM   #21
Chelee
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Re: how much more?
Patricia, You have been thur an awful lot since Feb. so don't be so hard on yourself. Physically and mentally it takes a heavy toll on a person. It's bad enough trying to fight this dreaded disease...but when you one thing after another keeps going wrong it can sure bring you down. I can so understand why you are feeling like a hermit and wanting to isolate. I think at times like that ones your going thur it's human nature for many of us to feel like that. In fact I'm usually on this board all the time...but like you I have had so many things going wrong that I just couldn't even come up for air. I just crawled into my safe hole and sat here. This is the 1st time I've peeked my head out in a long while. So I can relate to how your feeling.

I think our body and mind direct & help us get thru these rough times. My heart really goes out to you. I'm glad you decided to post because I think you will see that many of us are the same way when we are going thur a difficult situation. You hang in there and know we are always here for you. Sending a really big hug your way.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 03-28-2010, 08:29 PM   #22
Jackie07
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Re: how much more?
Patricia,

Thank you for sharing your feelings on the board. I'm sure many of us identify with you in many ways including the 'hermit' part. It is a tough journey and a lonely one. And that's why we need the band of sisters to carry each other...

Thanks again.
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http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
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hptc hemangioma
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hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
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Old 03-29-2010, 09:07 AM   #23
mrsd
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Re: how much more?
Oh ladies just reading your posts lifts me and makes me thankful... I am still here just a little beaten at the moment but look out I am starting the uphill swing and I determined this will not defeat me... I'm sure you all can relate and that's what makes this board so special, you know where I'm coming from and I don't need explain all the details. Today is a better day for me ... stronger and back in the game. I would have liked to surprised my co-workers with a visit today but I think that would risk my strength right now and I am afraid to over do it... so I'll let that surprise for another day.. I can never say thank you enough to you all for your support and the strength it gives me.... take care
Patricia xo
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Intial Dx Sept3,2002, age 39
Masct/ Sentinel Node Biopsy Sept 11,2002 node negative
ER/PR- Her2+++, grade 3
Started AC Chemo Nov 2002, 4 rds
2003 NED
May 2004 reconstuction, saline and later silicone implant
Aug 2006 Dx recurrence, lymph nodes chest/lungs/sternum
Dec 2006 Herceptin q three weeks
May 2007 bone mets to sternum
June 2007 aredia for bone mets
June 2007 radiation to sternum X 5
June 2008 slow progression of lung met, all other mets NED, continue Herceptin, Aredia, add Xeloda
July 08 Stopped Xeloda, severe side effects from the drug, but it did a fantastic job after only 12 days at least 50% reduction
Feb 09 Started Navelbine with herceptin, slight progression in lungs.
July 09 - Nov 09 had a Navelbine holiday...
Nov 09 back to Navelbine, Herception
Feb 10, lungs have improved but 4 small lesions on liver, started Taxol, Herceptin....
Taxol not the magic drug for me
Continuing Herceptin,Aredia,and adding Xeloda once again..reduced dose
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