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Old 01-20-2010, 05:36 PM   #21
suzan w
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Re: Remembering Joy

What a lovely tribute, thank you so much. XO Suzan
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 01-20-2010, 07:08 PM   #22
Jean
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Re: Remembering Joy

Luca,
Thank you for sharing so many speical parts of Joy.
I also remember when Joy posted about having a realtionship as a stage 4 survivor.

I remember answering her and thinking how beautiful she was being so aware of not hurting another due to her bc. We encouraged her to feel love and live.

How happy I am to hear that you and Joy shared so much in a few years. You were both blessed to have found each other.

I was so very sad when I heard about Joy passing. For days I dragged myself through the dayz thinking of Joy.

Your posting and sharing was so appreicated....
Thank you ..

Kind Regards,
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 01-20-2010, 09:13 PM   #23
caya
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Re: Remembering Joy

A beautiful tribute Luca. You were a true blessing to dear sweet Joy, I will miss her smiling face here.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 01-21-2010, 01:12 PM   #24
janieR
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Re: Remembering Joy

What a beautiful tribute.

Janie
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Old 01-21-2010, 02:19 PM   #25
Barbara H.
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Re: Remembering Joy

Thank you for your tribute, Luca. It's clear that you also brought her "joy" to her heart. I will miss her here.
Best,
Barbara H.
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Old 01-22-2010, 06:43 PM   #26
Ruth
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Re: Remembering Joy

Luca,
Thank you so much for writing such a beautiful tribute to your beloved Joy. She gave all of us here so much love and I think I can comfortably say we all wanted to be her BFF. She was so special and giving of herself. I never met her but I definitely wanted to. I am so thankful that you two found each other. You brought her so much happiness and joy back into her life. We all rejoiced with her when you two fell in love.
Thank you again for all you have done and will do for her children and family. Please give Jennifer our love too.
Ruth
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Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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Old 01-27-2010, 09:27 AM   #27
rinaina
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Re: Remembering Joy

Luca, thank you for sharing with all of us here. Joy was a beautiful, kind, considerate and comical woman who touched so many here on the forum. I will never forget how well she supported all of us here. She will forever live on in our hearts.
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Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 02-04-2010, 02:00 AM   #28
chrislmelb
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Re: Remembering Joy

Thank you Luca. I used to love seeing Joy's beautiful smile in her avatar.
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DX Sept 03 age 40 Stage 2B Grade 3 mastectomy (after 2 prior breast conserving surgeries)
"at least" 2.3 cm 3/12 nodes ER+/PR+ Her2+++
8 FEC. Tamoxifen then Arimidex. Ovaries out.
"late" Herceptin for 2 years (18months after chemo) on HERA trial. finished Herceptin Nov 2007.
Multiple bone mets May 2012 and now liver August 2012.
Abraxne, Herceptin and Zometa.
June 2013 Tykerb, Xeloda and Xgeva
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Old 02-04-2010, 11:54 AM   #29
ElaineM
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Wink Re: Remembering Joy

Thank you for sharing beautiful thoughts.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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