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Old 10-14-2009, 09:02 AM   #21
BonnieR
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Re: PET scan....scared...

Your update is a good example of how we manage under the stress. You expressed a concern, got some feedback and then you went back into action with determination and hope! Good for you! Keep the faith.
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 10-14-2009, 12:45 PM   #22
bejuce
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Re: PET scan....scared...

Here's hoping that it's just scarring and you'll overcome this stressful time with strength and hope. I'm praying for you, your beautiful kids and your family.
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ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 10-14-2009, 02:59 PM   #23
DonnaD
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Location: Marengo, IL
Posts: 518
Re: PET scan....scared...

Maureen,
We could be twins. Your situation sounds exactly like mine.

Not once did my onc say to quit Herceptin while they tried to figure this out. We Her2 gals need that year of Herceptin. I am proud of you for fighting for it.

The most comfort I got was from my radiation onc. She felt positive the lungs nodules that appeared 3 months after radiation (in the radiated area) was from radiation. The CT was repeated in 3 months and was and is still stable. If it changed we would then have done a biopsy.

They are still trying to figure out the rib fractures, 2+ years later. I think I have reinjured them twice. My radiation onc says I am not the typical patient and hopes they will heal. I would think with two young children and all you do with them, you are not the typical patient either!

I would be happy to talk with you. Just private message me, or e-mail me if you feell the need.

Isn't this website just the best. Thank you Christine and Joe!!!!
Hugs,
Donna

If you want to talk more, private message me and I
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Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!

Last edited by DonnaD; 10-14-2009 at 08:42 PM..
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Old 10-14-2009, 07:29 PM   #24
sassy
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Location: Mountains of Virginia
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Re: PET scan....scared...

Maureen,

I failed to mention in my previous post, that I too ended up with fractured ribs. I think several others on the boards have had them also.
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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