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Old 05-19-2008, 03:33 PM   #1
StephN
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Location: Misty woods of WA State
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Hi Yorkie fan -
Glad you are taking some kind of "memory aid" to help keep the cobwebs from accumulating.

As for time to Mental Clarity - that really has not happened! I noticed a gradual improvement, so decided it was enough to offset the age, hormone drop, chemo holdover, etc.

I am hormone neg so have never taken at AI. Just a lot of chemos and work on my brain mets such as Gamma Knife.

P.S. Donna there has been a lot of evidence that the ravages of chemos have a way of affecting the brain other than by crossing the barrier. When our red blood count is very low we are not getting the normal amount of oxygen to our gray matter, for one thing.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 05-19-2008, 03:42 PM   #2
R.B.
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Long chain Omega 3 DHA is essential to neuron and brain function.

Please see http://her2support.org/vbulletin/sho...ght=greek+diet

for other discussions on reasons to consider your omega 3 intake.

RB
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Old 04-24-2008, 08:01 PM   #3
dhealey
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Location: moved to Lancaster, Pa in June, 2010
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I too, suffer from chemo brain. I will be talking and can't think of a word I want to say or I will be writing in a patient's chart and the hand and the mind aren't working together and I end up writing something that makes no sense. I read recently in a medical journal that chemobrain can last up to ten years past your treatment!
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 04-24-2008, 08:35 PM   #4
Jackie07
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Location: "Love never fails."
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Coupled with my previous brain surgeries, my chemo brain had cost me my teaching career. Will have to make a new start again this summer. Oh, well. I love the phrase "Life is not fair but God is good". Everytime I have a major surgery, I would lose my job after about a year. But guess what? It may take a while, but things always turn out better. There's a Chinese saying: "A 'dangerous (critical) point' can be changed to a 'turning point'." I am embracing another turning point this summer.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 05-19-2008, 12:06 PM   #5
Yorkiegirl
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Steph N. wrote: (Then I found another one called "Neurozyme" by New Chapter. For "Supercritical Mental Clarity." It does have Ginko along with many other good things.
One thing I like about it is that it "reduces cortisol," a stress hormone that makes us hold the spare tire fat. )

Steph I just bought some of this, this week-end, do you remeber how long it took to notice any improvement?
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Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 05-19-2008, 04:03 PM   #6
chicagoetc
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Everybody here has been at this longer than I have. But I don't really expect much to change re cognition, have worked at my job through everything, and definitely notice significant changes. My focus is not good, especially multitasking (pretty scary when I'm driving and try to change the radio station at the same time). Like a lot of you have experienced, I don't remember/forget words or use the wrong ones often. My memory is somewhat improving but not good. If I don't write things down in my datebook at work, they simply are forgotten. If I meet with my supervisor and discuss something, I find myself having the same discussion the following week (she reminds me and is at times appropriately frustrated).

Again, I don't expect a lot to change. On the other hand, I'm pretty thankful for what I do have...in ways I never was. Stress is probably a factor but I don't think it is enough to cause the cognitive problems. Or at least not most. Some things we don't have control over. [But if antidepressants or supplements help some folk, that's great!]

Melanie

[I'm a social worker/supervisor in a community mental health clinic. Today a psychiatrist "yelled" at me for things she thought I was supposed to be doing. I was taken aback. This was the first time in many many months anyone has done anything like that. Leaves me appreciative of the kindness of others...and less willing to take that kind of interaction as any indication of the value of my life or work.]
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Diagnosed: 7/13/07 (or 7/7/07)
Surgery: 8/15/07 Modified Radical One Side with Lymph Node Dissection
Pathology Report: ER/PR-, HER2+ with FISH at 8.4 copies, Grade 3, Stage IIIa, 3.2 cm tumor plus 4/19 positive lymph nodes
Portacath: 9/7/07
Chemo: 9/14/07 with AC (every three weeks) for four rounds
Physical Therapy for ROM Loss / "Cording" (but not Lymphodema)
Taxol + Herceptin weekly (started 12/2007 with 8 of 12 Taxol)
Radiation: (28 rads from 3/07 to 4/07)
Reconstruction (silicone implant)
Herceptin done (10/08)
Cognitive Remediation (11/08 - 12/08)
Lymphedema Diagnosed 5/10/10 (almost 3 years post cancer diagnosis)
Lymphedema Rehab 9/10/10 - 11/10/10
Six years NED...7/7/2013!
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