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Old 03-10-2008, 06:56 PM   #21
Barbara2
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Location: South Dakota.
Posts: 621
Hi, Amanda, everyone here totally relates to what you are feeling. The tears, the fears, the ups and downs.

When I was so sick from chemo, a 10 year breast cancer survivor...probably stage 2b, (whom I hardly knew... and a 15 year survivor by now...) sent me many cards in the mail, offering encouragement. They were beautiful messages of hope, and I will always remember her for her kindness.

One thing I especially remember, is her comment in regards to the sting of the cancer diagnosis. She said that believe it or not, as time passes, you will think less and less of the cancer. She said "I even have days when the thought of cancer does not come into my mind."

Now I cannot relate at all to that last comment, but it must happen! To give you more encouragement, read the comment from a well known physician who specializes in Her2+ breast cancer:

Do most Her2+ breast cancer patients have a recurrence?
<O

No. Most don’t. Now days, for early stage breast cancer, stage I or stage II, since Herceptin, most of those patients are not recurring.


All the best to you, Amanda!
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Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.

Last edited by Barbara2; 03-10-2008 at 06:57 PM.. Reason: spacing
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Old 03-10-2008, 07:07 PM   #22
Bill
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Heck no, Amanda, we're glad you've joined the site. I'm a relative newcomer here, so I'm still learning too, but from what I've seen so far, this is the best group of people around for offering support, prayers, answering questions, you name it. An awesome group of strong warriors here, and in our own way, we are "fighting the good fight". You stay strong, Love, Bill
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Old 03-11-2008, 04:38 AM   #23
Sheila
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Location: Morris, IL
Posts: 3,507
Amanda
Welcome to our group....I think here you will find someone who has been in your shoes before, and that to me is such a big help...not to mention the love, support and genuine bond and caring we have for each other....together with knowledge and support and love, we can hopefully calm each others fears as we travel this path....prayers and positive thoughts for your scans, when you get the "all clear", it will make you feel so relieved....savour the moment of good news, you will have many more to enjoy just like it!!!!
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"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 03-11-2008, 05:52 AM   #24
abrown
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Posts: 14
Thank you again. This has meant more to me than you'll ever know.

Much love,
Amanda
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Amanda
DX at 26 on 7/21/06
Stage IIA
ER/PR-
Her2+++
Lumpectomey on left side 7/17/06
4 AC Treatments (finished)
12 Weekly Taxol with Herceptin (Taxol finished)
35 Rounds of Rads (finished)
Finished 1 year of Herceptin in 11/2007
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