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Old 10-11-2007, 07:32 AM   #21
PinkGirl
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Location: Canada
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Unhappy hey MJO

I was waiting for someone to echo my story. I also gained 40 lbs. along the way. I lost weight on FAC and then started to gain on T/H. I had a HUGE appetite that I blamed on the decadron. But when I finished Taxol and stopped the decadron, I kept gaining.

I have not been able to lose it. I manage to drop about 5 pounds and then when I eat normally, I gain it back. I also have HUGE cravings for chocolate. I have always liked chocolate but I didn't used to dream about it !!

My hair is growing very slowly ( used to need to trim it every 4 weeks ) and my fingernails just started to grow last month. I am tall and "big boned" and actually have more of a problem with the # of pounds I weigh than I do with what I look like. I have become a "Monday morning" dieter and exerciser. It lasts until Tuesday.
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PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 10-11-2007, 08:39 AM   #22
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Cool I'm Familiar With That Diet...

Ditto. Longterm Vit H user. The #####s. I know that Monday Morning Diet. For me, it only lasts till noon...

Hair thinner, dryer, less wavy on its own. PRODUCT. Volumizer and curl conscious hydrating lotion. Hairline never reappeared after Taxotere (2nd round of chemo). No eyebrows. Little eye lashes. Had good brows and long, thick lashes. Nails thin too. And peely. So -- thin hair, nails and veins (I'm told). Just my luck! What about the rest of me??? Not the areas I was hoping for thinness... BUT I'M DANCING WITH NED, and you just can't beat that. So full of gratitude and AW SHUCKS.
Andi

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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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