Hi All,
Yes Suzan and Steph it would be great to meet when I am back down again, I'll email you to arrange.
Steph I am sorry that you have still so much on your plate with your father. It was great speaking to you last time, you are a source of inspiration how you have been fighting and a good source of advice; otherwise yes it is still my number (and I still have yours). No I have not visited the campus yet.
Carolyn thanks for the encouragement, yes life at the mo is still very up and down I guess I am still adjusting to the relatively recent diagnosis and I have only been off chemo recently. Otherwise yes I suppose I have been travelling quite a bit in my life. At the moment with the high sterling vs Dollar it makes it relatively cheap to travel round the US (in real term everything is around 50% cheaper than here), so it is quite lucky and yes the vaccination is a great source of hope.
Today I left the wig at home!! it is the first time that I am walking around without it, it feels great! I only have few mm on top but I think it does not look to bad (with a lot of make up!)
Best wishes to all,
Karina
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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