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Old 01-14-2008, 07:12 PM   #21
sassy
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Join Date: Sep 2005
Location: Mountains of Virginia
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Fast forward for me too---

My swelling and stiffness in all joints, especially hands/fingers persisted until November 07. My regular doc and my onc started working on changes in meds to try to alleviate side effects. I had been on HZTZ for slightly elevated BP. My regular doc suggested trying Lasix--and after a little trial and error on dosing, the Lasix seems to have all but eliminated my stiffness! I would not have thought fluid had so much to do with the stiffness. I know Arimidex and Lupron probably contribute, but with the improvements since starting Lasix, I don't think I need to change anything else. I feel SO much better.
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 01-15-2008, 11:34 AM   #22
Paris
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Join Date: Jan 2007
Posts: 73
I was on taxotere and definitely noticed I would swell up as soon as I took decadron which I thought was odd because it's supposed to help prevent the fluid retention issues of taxotere. Anyway, I was looking forward to all that going away after I finished chemo but then I started herceptin and I still have problems with swelling. Ironically over the last two months I started getting lymphadema as well as swelling in my ankles, abdomen and wrists. I saw a lymphadema specialist for the arm and a cardiologist because I was concerned the fluid might indicate a cardiac issue but he didn't seem to think I was retaining fluid. I am small framed to begin with so it's hard to "prove". I felt like I had to do alot of convincing to get further testing done. I hate feeling like a hypocondriat. Do the doctors think I enjoy sitting in their waiting room?

Thank you Suzan for posting this thread!

Jamie
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Diagnosed 11/06 IDC left breast Stage 1, High Grade w/extensive High Grade DCIS. Right breast extensive hyperplasia w/calcifications.
ER-/PR- HER2+++
Bi-lateral masectomy 12/15/06 w/expanders
SNB Node Negative
Chemo Taxotere, Cytoxan 2/07-4/07
Herceptin Started 5/07
Exchange surgery 6/15/07
Herceptin stopped after 12 rounds due to herceptin induced cardiomyopathy
On heart meds 'til?
Age 40 at diagnosis
Cancer may have been a defining moment but it does not define me!
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Old 01-15-2008, 06:45 PM   #23
tousled1
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Location: Acworth, GA
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While I was on Herceptin only I had swelling in my ankles/feet. Some mornings when I got up I felt like my feet were going to snap off. I attribute it to the Herceptin. I continue to have swelling and before I get out of bed in the morning I do some ankle exercises -- just roll them in a circle a few times -- seems to help.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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