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Old 10-01-2007, 02:07 PM   #21
Soccermom
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Hi Harrie,
I JUST walked in the door from a trip to see my Surgeons (3 1/2 hrs away). They packed the area that will not heal in my abdomen (on the surface its just the drain opening size,but underneath about 2 1/2 inches wide,yikes!). I havent been running a fever for about 10 days (finally) am havreto continue to take Levaquin and Clindamycin (which leaves an aftertaste reminiscent of Adriamycin,,YUCK) and antifungals. I still have one abdominal drain which we are reluctant to remove. The cultures were negative so I believe the infection (cellulitis) is under control its just the danged thing will have to heal from inside now. I just hope I have the guts to actually pack this thing again tonight. Pulling my own drain last week was about as "surgically inclined" as I ever want to get. Although....I can now say (think Holiday Inn Express commercial on TV)" NO, I am not a breast surgeon, but I DID pull my own drain last week!" LOL
Where did you have DIEP surgery,Harrie...Calif?
I see you are BRCA2, have you read SWANKY's thread about the PARP inhibitors? They are for BRCA folks...I also saw there is another lady here, Kimberly Lewis who is BRCA also.
Sorry to be so scattered, and I do appreciate your offer of help, its just that so far I think its a waiting game. My Doc said that if we can get it to heal internally when I have revisions (stage2) they can fix it up. I have complete faith in my Docs, they are kind,gentle ,cautious surgeons,
GOOD healing to you Harrie, I hope you thrilled with your end result!
Hugs,marcia

Last edited by Soccermom; 10-01-2007 at 02:08 PM.. Reason: spelling errors
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Old 10-01-2007, 02:11 PM   #22
Sheila
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Marcia
THe antibiotics you are on are as strong as they get for oral ones...don't skip any...cellulitis is nothing to mess with...the more infection, the more scarring. Take care of yourself...my prayers for a quick healing on this...and perfect results!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-01-2007, 04:54 PM   #23
Soccermom
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((((((((thanks Sheila!)))))))))
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Old 10-01-2007, 10:52 PM   #24
harrie
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Marcia,
I have an outstanding plastic surgeon. If you go to the site www.plasticsurgery.la you can read about my doctor. He is located in Southern California.
So far I am very thrilled with my results.
I will try to find Swanky's thread. Thanks for the suggestion.

Maryanne
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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