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01-09-2011, 02:57 AM
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#21
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Senior Member
Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
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Re: update on my progress
Tricia K is spot on : you are working hard just healing AND you go to doctor's appointments (have to tolerate some nonsense there) and jump online to share your experiences with us! Keep up the good work and don't be too hard on yourself.
Trish
__________________
5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004 6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006 oopherectomy, Arimedex
12/2006 liver mets largest 9cm
1/2007 Herceptin,
3/2007 Taxol + Herc
1/2008 Herc alone
4/2008 Multiple bone mets,Zometa
7/2008 Herc + Gemcitabine
8/2008 Herc+Navelbine/vinoralbine
10/2008 Herc+Carboplatin+Taxol
12/2008 Tykerb+Xeloda
2/2010 Herceptin + trial drug
5/2010 Herceptin+Tykerb
8/2010 Tykerb+Abraxane
9/2010 Abraxane
12/2010 Abraxane+Tyk+Herc
4/2011 Tyk+Herc+Femara
6/2011 Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011 Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011 Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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01-09-2011, 10:06 PM
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#22
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Re: update on my progress
Pam,
Thanks for keeping us posted. I am getting a chuckle out of the surgeon stories. I just visited a friend today. It has been 5 days since her "simple day surgery" which the doctor said would be a piece of cake. Well, 5 days latter she is feeling like someone forgot to stir the cake mix. Keep up the good work of getting through all of these challenges. I hope you can go out for coffee with a friend even if you have to drink water. Buy some new hand lotion or a new bathrobe. Treat yourself well, you deserve it. We all need our doctors, but I guess we get day-to-day truth here with our friends. Thinking of you.
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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01-12-2011, 02:04 PM
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#23
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Re: update on my progress
I saw the radiation doctor today and got all tattooed and measured. I will have 20 tx of radiation starting Jan. 20. I just hated radiation when I had it on my chest years ago. Dreading having to go 20 times again.
More news: my tumor marker up another 300 pts from 3 weeks ago, so something going on. My fecal occult test - 1 of the 3 was positive for blood ( better than 3of3 2 weeks ago). The nurse said the doc will discuss that with me when I see him in 2 weeks. I know I'm going to have to start a new chemo again, but the doc won't switch my treatment until I'm done with radiation. Good I guess; one thing at a time.
I have been losing more weight. I'd say I've lost 10-15 lbs since November. Lately I think it's some post surgery weight loss which I hope is normal and will come back. I am trying to eat, but can't seem to get enough calories. I won't take the ensure, boost stuff --that tastes like poison! After the 3rd nurse-type person commented on my weight today, calling me a 'skinny little thing' I went to a drive thru and got burger, fries, and malt to bring home. I haven't eaten that junk in months.
I also bought rice protein powder to mix in with food to add protein and some calories.
Maybe I'll just eat marshmallows like Flori!
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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01-12-2011, 02:47 PM
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#24
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: update on my progress
Hi Pam!
I highly recommend the marshmello therapy. It's good for lots of ailments!!
I have hot chocolate and marshmellows in front of a warm fire just ever so often.
Not only is your body working very hard, but your mind is probably at hyper speed.
Find whatever soothes you and do a lot of it.
And remember that you've got so very many of us believing for and praying for your healing.
lots of love and marshmellows galore,
ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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01-12-2011, 03:12 PM
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#25
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Re: update on my progress
Like Ma, my first choice would be marshmallow therapy. I know
those Boost and Ensure things taste crappy ... have you thought of
Carnation Instant Breakfast? They taste good and you can mix them
into a higher calorie milk ... just thinking out loud here ... really can't
wrap my head around trying to gain weight ... tehetehe.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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01-12-2011, 04:49 PM
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#26
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Senior Member
Join Date: Nov 2010
Location: PA
Posts: 297
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Re: update on my progress
Hi Pam, I have been praying for you and hoping for good results. I'm so sorry that you have to go through radiation and chemo again. You are such an inspiration for so many others and I hope that we can be a support to you. I will be praying for you. Mary L
__________________
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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01-12-2011, 05:01 PM
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#27
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Senior Member
Join Date: Nov 2010
Location: PA
Posts: 297
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Re: update on my progress
Hi Tricia K, I just had to tell you how wonderful your advice from the Dr. was. I will never foget that and I hope it will help Pam get through what she has ahead of her. I am new on this site but I want to say I have really enjoyed and learned alot from you. You are truly an inspiration. Mary L
__________________
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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01-12-2011, 05:34 PM
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#28
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: update on my progress
Pam,
I'm praying that your radiation treatments go well.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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