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03-21-2007, 05:50 AM
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#21
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Senior Member
Join Date: Sep 2005
Posts: 589
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Steph,
A 2nd prayer coming from NJ coming your way for both your dad and you!
Hugs,
Eric
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03-21-2007, 11:12 AM
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#22
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Thanks a heap!
Better news this morning. Dad woke up VERY slowly yesterday from all the sedation. He did not fight the breathing tube like we were so afraid he would. They got it out as soon as he would follow a command even though he was still very sleepy.
Today he is tracking and thinking better and they will try to get him up seated a little. This is the BIG test. He goes into cardiac arrest when he moves in an upright position, but is on a different med now that he has the pacemaker.
The docs are still baffled. Otherwise all his systems and functions are good and the docs say he is a very viable patient.
So this is back to square one for the third time in as many weeks. My sister arrived from Florida yesterday, so there is another family member at hand.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-21-2007, 08:34 PM
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#23
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Well, Steph, that is cautiously good news. I hope that is the first step AWAY from the edge of the cliff for your dad and your family.
continued prayers...
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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03-21-2007, 09:36 PM
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#24
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Hello Steph,
I see that a lot has been happening for you and your family. Your Dad has had really tough going and is remarkably resilient. I hope that he will continue to recover, and that you will be able to get some needed rest. I am also thankful that during this time you are not in the midst of treatment. Our thoughts are with you and your family.
As always,
AlaskaAngel
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03-21-2007, 10:54 PM
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#25
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Steph,
I am so sorry to hear about your Dad. How special our parents are.
It is so difficult when our parents are ill and fighting so hard.
Been through this myself....please take care of yourself also.
Pleae know you are in my prayers and I am hoping your Dad takes
a positive turn for the better.
Keep us posted.
Hugs,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-22-2007, 02:44 AM
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#26
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Member
Join Date: Mar 2007
Location: New Jersey
Posts: 5
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Prayers to your Dad and all who connect here.
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