| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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04-09-2009, 07:32 AM
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#361
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Bill, let us not feel sad about the loss of Scott our any of our fallen friends. Instead let us feel glad that our friends still live on with us in our hearts, our souls and our memories. The fact that Scott was an extraordinary soul is the reason he stays with you and that is what we should celebrate.
So let us all pour a drink and toast our absent friends who have touched our lives and changed us for the better. Be sad out of respect but do not forget to celebrate those amazing people as well.
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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04-09-2009, 09:08 PM
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#362
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
I agree. Our friends and family members who have passed away are gone in physical form, but will be with us forever in spirit.
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04-09-2009, 09:37 PM
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#363
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Well said, Elaine and Lee,
Let's honor all those that have gone on before us. Those brave souls who have blazed a path for us to follow someday. We'll all be together again...and happy to hold each other in our hearts and souls.
Love, Vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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04-11-2009, 10:10 PM
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#364
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Thanks, everyone! It just hits you once in awhile, you know. Let me toss a log on the fire for Marie and Ed. I've misplaced her number and would like to call her. (I know, I know, but I'm horrible with phone numbers and birthdays) Maybe a sweet little bird could lend a hand. Happy Easter to all!
__________________
For Nicola
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04-11-2009, 11:18 PM
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#365
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Hey WB....will I fit the "sweet little bird" since I am HarrieCanarie??!!
Everyone, I just put together some bread pudding with diced apples on top. It is in the oven right now as I write this! (really!!)
So everyone, please come by and have some!!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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04-11-2009, 11:51 PM
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#366
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Thanks, Maryanne. It tasted mighty good to me. How have you been? I've got some Chinese dumplings in the freezer. Maybe I'll cook some over the fire with a big pot of water...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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04-12-2009, 11:10 PM
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#367
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Hi Jackie! I'm doing great! And you???
Glad you liked my bread pudding. Are the Chinese dumplings called sui mai or won ton?
I love won ton. Every NY eve for our party, my daughter and I made won ton and with all the extra won ton wrappers, we fry them up and then sprinkle with either salt or powder sugar. This is our own homemade version of won ton chips!
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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04-12-2009, 11:40 PM
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#368
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Very smart, I'll bet you guys really enjoy it. No, it is called 'Sui Giao' (water dumpling) Our dumpling is like Wonton with thicker skin and more ingredience inside and is shaped like a gold 'Yuen Pao' (gold bullion?) You put them in boiling water, wait till the water boils again, add a cup of cold water, repeat the process three times (dumplings have been floating three times) then they are done. In the old, old days, poor farmers in the north only get to enjoy the dumpling during Chinese New Year Festival or special family gatherings (usually when someone's leaving home for a long journey.) Now anybody can eat it any time.
Young people (College students or members of churches or civic groups) often have the so-called 'dumpling party' where one or two persons roll the dough into flat round shape (small totilla sort of thing) and others would fold the ingredience into each one and tighten the folds. When there are enough (20-30, depending on the size of the pot) to put into the pot, they would be put into the pot when the water is boiling.
People learn division of labor and many young people find their 'mate' through the dumpling party. [You can fry them also - the steamed ones are
really, really good. (No, I am talking about frying dumplings, not those young people.  ]
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 04-13-2009 at 01:37 AM..
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04-13-2009, 12:03 AM
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#369
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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jackie, what kind of ingredients do you put inside your sui giao?
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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04-13-2009, 01:33 AM
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#370
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Traditionally it comprises with fine chopped pork and Chinese cabbage (Bah choy)with some green onion (salt & pepper to taste - be sure to squeeze out the liquid off the cabbage as much as possible). Another popular version is the 'giou tsai' dumpling made of Chinese chive (giou tsai).
My host family who used to live in Denton had experimented one time using cheese and artificial crab meat. Turned out pretty good, too. (I think it was deep fried like an egg roll, although in Chinese restaurant you will find something called 'crab rangoon' that is shaped like a small four-legged crab with cheese inside...
O oh, I've got to go get a buffet to go tomorrow from House of Lee...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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04-13-2009, 12:28 PM
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#371
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Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
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Friend's daughter
My friend's daughter that I posted about early is recovering and now out of the hospital. I just wanted to let everyone that read my earlier post know. It seems that she is recovering from the accident much faster than they had thought she would. I know it will take them all much longer to begin to recover from Sonya's loss. thank you for the prayers.
Leslie
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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04-14-2009, 12:17 AM
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#372
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Glad to hear the good news Leslie....
Jackie...bout the won tons or dumplings....
My friend makes won tons and puts cream cheese and crab (with seasonings) in the skins and deep fries it. It is SO good!!
You know how people have chocolate fondue parties? Is that what you are kind of talking about with the college dumpling parties?? ...putting whatever you want into the skins and cook it in the pot?? How fun that would be.
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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04-14-2009, 10:52 AM
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#373
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
Thanks for sharing the great news Leslie. I hope things continue to get better.
Thought I would come by with my morning coffee and sit awhile. Hot drinks taste so much better in the fresh air.
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04-14-2009, 11:40 AM
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#374
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Wonderful news about the daughter. Young people have such an amazing ability to heal and bounce back physically. (Don't these old bones wish ...)
We really have some things to smile about today, including Leslie feeling well enough to make it to the camp fire. Just need some good news from our friend Believe.
I brought some organic yoghurt covered raisins to munch on. Take a handful and pass them on.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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04-14-2009, 02:17 PM
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#375
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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throw some extra logs on please! it's wet and cold here. beginning to think i need to start building the ark.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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04-15-2009, 03:56 PM
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#376
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Hey all. I really haven't been posting much, but I'm here. Been doing the daily radiation routine, but tomorrow is my LAST DAY of treatment! I've definitely burned away some fears...and a whole lot more. Ugg, can't wait for my skin to heal. Blessings to all of you, and your dear friends we've been praying for, too.
Love, Celeste
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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04-15-2009, 09:52 PM
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#377
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
Hi Celeste,
Glad you dropped by. Have you considered aloe for the radiation induced skin problems if your radiologist hasn't recommended something? I heard putting aloe jell in the refrigerator and then applying it to the burn helps alot.
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04-17-2009, 09:06 PM
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#378
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
I just came to sit and relax awhile. Since it is getting a little warmer how about moving our campsite closer to the water? That way, we can enjoy the campfire and the coolness of the water at the same time when it gets a little warmer.
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04-17-2009, 09:48 PM
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#379
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Hi Elaine -
Maybe warmer where you are, but the campfire is still in the "late spring zone." I'll be away for a few days, heading for Denver with Joe, Christine and a few other ladies.
They are having a dang-blasted, full-fledged snow storm there tonight! Making my packing a little difficult to cover the weather bases. The warmth of the fire will be missed ...
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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04-18-2009, 11:51 AM
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#380
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Senior Member
Join Date: May 2006
Posts: 3,142
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The Campfire
Have a terrific trip Steph. It sounds very interesting.
Please share your insights with us after you get back.
We will keep the fire going until you get back.
I can understand if you folks in colder climates want to wait to move the campfire closer to the water. I am still using a blanket at night over here too. It gets cooler in the early morning.
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