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07-06-2006, 07:23 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Lynn...
PLEASE, PLEASE, PLEASE...tell me that you are NOT getting treatment in St. Joseph, but are getting it out of Chicago? I grew up in Coloma and incidentally have been coming down every weekend to clean out my dads house as he passed away last year (the day before my 3rd chemo) maybe we can get together one of these weekends and while I sold the cottage on Paw Paw Lake (EVERYONE on the lake is from Chicago as my brother and sister also are...Naperville and Palos Heights) and I'm planning a weekend to Chicago w/ my son Tony next month AFTER my last Herceptin. If you are up to it TAKE the assignment...you NEED to live your life, BUT also do what it takes to take care of you. This is the BEST group you will ever find. If you need anything, we're here for you. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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07-06-2006, 02:08 PM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Lynn
I agree with Rhonda, you would be better off to get treatment in Chicago or elsewhere other that Coloma, St Joe area....I lived in St Joe for a year and have family in Perry and Grand Blanc.....the medical there is scary to say the least.
Keep positive and live your life...we all have to!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-06-2006, 02:14 PM
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#3
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Dear Lynn,
Two years ago I was feeling alot like you. I was severerly depressed and thought I would have a lousy quality of life if I took chemo. It has been almost 2 1/2 years since dx. of recurrance and I am feeling good, physically, mentally, and emotionally. I do get some help with meds, but If that is what it takes, why not?
None of us know how many days we have left on this earth. We just have to take a day at a time, stopping to smell the roses.
I have met so many on this board who are living with stable stage 4 disease. It can be done. Surround yourself with things and people that are optomistic. Don't let others negativity drag you down. I know it is sometimes easier said then done, but all we can do is try our best.
I don't know what you believe about the after life, but that is what has kept me going, knowing that this is not all there is. When I leave this world I will miss nothing, as Heaven is more spectacular then I can ever imagine.
I do feel sad at times, but this is all normal.
Our families and friends might not be able to give us the support we need, so feel free to come on board and get the help you need from us. We are here for each other.
Take care and God Bless You.
Lu Ann
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