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My HMO agreed to pay for the procedure if done in Tulsa, OK by a doc in network. I stayed in a hotel room, a friend (retired nurse), & my husband took care of me, had a home health nurse come 2x, hospitalized 1 night 2ndary to blood transfusion reaction. I couldn't be around anyone ill & was restricted from eating raw fruits & veggies until my whte count came up. My appetite was not good after reinfusion of stem cells, but I recovered pretty much on scedule.
Currently skin mets are back on my neck & chest. Just found out yesterday that CT of brain shows a suspicious .5cm area on L temporal lobe, so will have an MRI on Mon. Jan. 26th. Talk about being scared I am! Anyhow, I'm praying for best& preparing for the worst. The ability to get info on this board from people who had a similar problem is wonderful. Let us know what you decide & your progress. Best wishes. Velva
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