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Old 01-11-2018, 03:37 PM   #1
nancy dip
Senior Member
 
Join Date: Jun 2007
Posts: 49
Re: 10 + years of Aromatase inhibitor

Hi All,

I stopped Anastrozole in November (after 10years) as the NHS in the UK will not fund longer use as it says there is no proof of further benefits. I am uncomfortable with this and am considering trying to buy anastrozole myself.

How many of you have taken 10+ years?

Have you noticed or been tested for side effects of prolonged use?

Is there any proof that really long term use is beneficial or is it all in the mind (as has been suggested to me!)

Thanks for any replies. Nancy
__________________
Found lump myself 8 months after routine mammogram.
29/11/06-WLE and then re-excision to get clear margins.
Tumour was 1.2cms; Grade3; Er+ Pr+ HER2 3+++; SNB negative out of 9 nodes.
Chemo was Epirubicin every 3wks x4 then Xeloda (2wks on, 1wk off) for 4 cycles. ( I am part of the TACT2 trial.)
Rads x25
Arimidex for 5 yrs.
Hoping to start Herceptin within the next 2 weeks (we have to follow the HERA protocol to qualify for Herceptin in the U.K.) I worry about the delay in starting Herceptin!! Started 8/10/07
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Old 02-14-2018, 08:09 PM   #2
Jean
Senior Member
 
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Re: 10 + years of Aromatase inhibitor

Hi All,
I am now on 11 years.
I am see my onc. in March. I am sure he will advise to stop AI since during my last visit he advised to stop.

My gut is telling me NOT to stop. I am going to follow my gut as i did back in 2005 when they said I could not have herceptin due to being stage 1.
Took it off label.

Will update after dr. visit.
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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