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Old 12-13-2017, 08:14 AM   #1
marvass
Senior Member
 
Join Date: May 2012
Posts: 105
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Thanks everyone for your very kind posts.
I do not know what advances there was on this kind of cancer except that ONT-380 now called tucatinib is moving quickly in trials, and is very promising. Guess it will be the best medicine available soon.

Wish you all good luck.

Mario
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Old 12-13-2017, 09:21 AM   #2
Rolepaul
Senior Member
 
Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 391
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Marvin,
I can't imagine how you feel. Nina has done quite well. We are approaching the sixth year of her being on IT Herceptin and Topotecan. November 2 was the 8th anniversary of the discovery of the large lesion on her brain surface. Just under 70 women have contacted me for help with HER+ Brain mets. The survival and no progression rate remains very high. I am sorry Carol wsa not one of those.
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