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Old 10-01-2017, 10:21 AM   #19
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 563
Re: Need input!

Another long day at hospital.

Only half of blood test came back in morning - the important result (bilirubin) held up in bio-chemistry lab as machinery broke down! 6 hours later told that I could have treatment as bilirubin down to 27. (max allowed is 30 and under)

It seems that the 3 of us on the trial have all hit problems in last 3-6 weeks. We are all on different cycles - 1 on 5th cycle, 1 on 8th and myself on 9th.
1 had treatment withheld for 3 weeks because of severe pain.
1 for inflammation. So she has decided to continue with Kadcyla only & drop trial drug - but remains in the trial!
& me with high bilirubin.

10th cycle received. Fingers crossed.

Anyone-else on this trial?

Juls

Last edited by Juls; 10-01-2017 at 10:23 AM.. Reason: addition
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