HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-14-2017, 05:41 PM   #6
phil
Senior Member
 
Join Date: Nov 2010
Posts: 393
Re: Today in scotland - Perjeta

Picketing and Petitioning over here seems to have helped soften up our FDA . Personal meetings by we Stage IV survivors with our political reps. They are getting more flexible . Pick a public healthcare or big govt event and publically protest . Like my Lorraine did , wearing her " I Am A T DM-1 Miracle " , carrying her Fix the Slow FDA sign , along with about 25 of us , freezing in 10 degree weather as the FDA Commissioner tried to defend their slow system inside .
Next week we will be sitting with them at a conference on the future of randomized clinical trials in NY. and we have sat with them and testifed in front of them before. We knew it wasn't personal - they weren't trying to kill Lorraine , but their Impersonal , Blind Bureaucracy at that time nearly did .
Next up is More Compassion from Big Pharma .
phil is offline   Reply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 12:25 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter